Suzielbeau19 hours ago
Hello, does anyone know if you can donate blood if you have PBC and are taking Urso? It’s not on the list of conditions / medications liste...
Ocaliva, dosage, elevated cholesterol
Ottley32 days ago
Hi, diagnosed with pbc 3/17, started on urso 4/17, improvement flattened 9/17, started ocaliva 5mg 11/17. Saw immediate improvement but now ...
7 Replies2 Likes
janine5412 days ago
Hope everyone is well. Im awaiting a consultant appointment to explain a letter they sent stating i had
: Pbc/Aih overlap syndrome
Hello. I am KKate
KKate20182 days ago
Diagnosed with PBC, taking Ursodial, in 2017. Multiple other issues: on second aortic valve replacement, radical cystectomy for bladder can...
3 Replies1 Like
Not feeling to good
2468102 days ago
Hello , I wonder if any one feels like there's no energy left . One day I can do things like house garden or pop out to shops with my Daugth...
11 Replies3 Likes
Best test results in years due to bizafibrate
shaza19663 days ago
Hi pbcer's just want to announce how thrilled i am that after a year on Bizafibrate my bilirubin has gradually gone done fro 600 to 19 WOW !...
11 Replies10 Likes
mtrafter3 days ago
I have had PBC for 10 yrs. Would be interested in hearing others experience with having a liver biopsy. Had my first CAT scan guided liv...
elsbells4 days ago
My wife has pbc and we went with tesco travel insurance and it cost no more than a normal annual insurance. And we had tesco write an addend...
5 Replies6 Likes
IOW-gal5 days ago
I know this has been asked before but can anyone recommend a travel insurance company.
Thank you Eileen
I have had elevated levels of AMA twice. First i got tested in October, now in July
james8285 days ago
What does it mean? My ALT and ALP levels seem normal.
The M2 test was positive (30 units in Oct last year ) and now 36 (in july this year). O...
Non -responder to ursodeoxycholic acid
Rozm20045 days ago
So I saw my consultant on 18th June and he told me I’m not responding to urso !!!
He said I fit the criteria for oclavia but woul...
5 Replies1 Like
Teri86725 days ago
Does anyone have white scaring around your eyes caused by high colesterol? Mine is out of control and makes me so insecure when I step foot ...
Low dose naltrexone
flora5 days ago
Has anyone been given low dose naltrexone for PBC or any other autoimmune disease. I have been doing a wee bit of reading about it and it se...
Pamela44756 days ago
Is it ok to take ibuprofen small amount short term? Hurt my back and it’s Sunday so can’t ask anyone
16 Replies1 Like
I have pbc and aih
Lucky19726 days ago
I am a mother 46 year old have acute aih and pbc. What is the life span for this diease? Also I need a support group in Los Angeles .
6 Replies2 Likes
Catherine38837 days ago
Really struggling with itching. I’m sure it’s the heat. I’m getting the really deep itch and the prickly/insect crawling itch. Lots of peopl...
I've just been diagnosed with PBC - in last four months I've been taking urso 2x a day now I'm taking 2x250mg at bedtime- anyone like this?
Bbbbbbbbbmmmm8 days agoPOPULAR
Just wondered as i thought taking it at bedtime was for disolving gall stones. I didn't know about at change to the prescription until the p...
JaniceK8 days ago
Is there anyone on the site who lives in Ayrshire with PBC ? If so can you contact me?
Be the first to reply
Just been diagnosed with PBC
MrsPearson9 days ago
Is there anyone in the Lymington area or nearby who has PBC. I would very much like to be in contact with you.
12 Replies1 Like
Skinny Liver - book by K. Kirkpatrick and I. Hanouneh
Ottley311 days ago
Has anyone read the book Skinny Liver? It’s written by a nutritionist and a doctor from the Cleveland Clinic. While the book is written for ...
10 Replies12 Likes
still dont know if i have pbc or
oreo201612 days ago
all blood work came back normal except i have the antibodies in my blood for pbc which was high i asked dr do i have it or do i still no dia...
Algae Cal for bone density
clvird12 days ago
I have been diagnosed with osteopenia and after a couple of months of high dose vitamin D3 (it had been very low) I was put on Calceos. My s...
Pinkcrush12 days ago
OK so I see my gp today, and thanks to the news letter I asked what my alt is, as I have never been told, its 129, was 131 so I guess its go...
Does anyone know if you can drink alcohol while taking Ocaliva?
Ktb3212 days ago
I’ve not been told I can’t but the last 2 times I’ve had a few drinks the next day I come out with a horrible sun burn like rash on my chest...
Cost of Ocaliva in the US.
kp123412 days ago
Diagnosed last year with PBC. ALP was 755 and after a year on Urso only down to 540; been checked 3 times since diagnosis. Dr. is talking...
11 Replies1 Like
Vitamin D3 and Urso
Ellyne12 days ago
Hi All, is it ok to take vitamin D3 and one of the 3 Urso capsules at the same time with food? I take synthroid on an empty stomach when I w...
9 Replies1 Like
Nitamarie6613 days ago
Hi everyone, I'm new here, Just been diagnosed today, have a referral to a specialist and my form to have a liver ultrasound........
6 Replies1 Like
Researching and scared and confused
Jenmorrow777114 days ago
Hi I’m Jen just got my test results back last night AMA Positive /NASH Fatty liver disease positive I have a gastroenterologist appt the 25t...
Try to reach Dr. PJ Chen
hermanc15 days ago
Dr. Robert Gish introduces me of Dr. PJ Chen who is located in Taiwan. Can anyone send a message if you know how to reach Dr. PJ Chen. My em...
Confused! Fibroscan versa elastograpy
Aussielouise15 days agoPOPULAR
Well last jan I had a elastgraphy at a private clinic for PBC . exam score was 22.7 kp with is equal to F4. Ultrasound technician said my li...
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