Please I need advice
ronniedobbie6 hours ago
Hello iv had pbc for a couple of years im on uro tablets for the last 4 months iv had a very itchy rash on my forehead and my face does anyo...
Jmorrison7 hours ago
I was diagnosed with pbc about 4 years ago and have been on Urso ever since. Although having read posts from the pbc foundation before I do...
janine54111 hours ago
Hope all well. Today i was out driving when my whole body drained and i felt really off. My legs went really weak.
Has anyone els...
ILik3Pizza12 hours ago
I was diagnosed in October 2016 with PBC. The AMA test was ordered after repeated elevated liver function numbers and chronic fatigue. Liver...
Won Esa appeal.
Kimearaa day ago
I'm hoping someone can help me on this,
I recently won my appeal for ESA, and was placed back into the support group after being on the ...
Louisethew2 days ago
Hi any recommendations for travel insurance , I'm in the uk had to cancel holiday to Florida as couldn't get insurance while under going tes...
mjk983 days ago
Has anyone ever taken the 6 MP drug I was just given that from my doctor if so how was your response? I had to take special blood tests to d...
Need help about AMA versus M2 test and my results
Erosen6 days ago
Can ANYONE here please tell me the difference between an AMA test and an M2 test. they are not the same. I tested positive 2 times with th...
12 Replies1 Like
PBC foundation about cirrhosis, same experiences?
Suzie386 days ago
I found this information about cirrhosis in the leaflet 'living with PBC' from the PBC foundation. If you have cirrhosis, do you agree with ...
8 Replies4 Likes
janine5417 days ago
Well folks. I feel as though im here again asking questions.
Hope you are all well.
Ive had a lot of tiredness through my diagosis but recentl...
Melwoods7 days ago
I’ve been told the disease is progressing fast and will need transplant 3-5 years
I’m a non responder to Urso etc.
Consultant said he might ...
Getting no where with drs
mtk09258 days ago
My journey has been a long one since 2012 my drs have suspected that I have something going on with my liver. My enzymes remain at 50AST, 54...
3 Replies1 Like
lorilee588 days ago
As if life is not challenging enough with PBC now I have also been diagnosed with
Sjogren's Syndrome. It is like living with the flu 24/7. Pl...
8 Replies2 Likes
Paracetamol with pbc
candy128 days agoPOPULAR
Hope there are some knowledgable people here today, who might be able to help. I’am told paracetamol is okay to take and at the moment ( the...
26 Replies2 Likes
Novel Non-Bile FXR Agonist Promising in PBC Patients
JaneIng8 days ago
This is from PBCers news feed. Sounds exciting.
PARIS -- Tropifexor, a non-bile acid FXR agonist, had a dose-d...
4 Replies7 Likes
Sissymcc10 days ago
Is it alright to take all three of my ursodiol at once? If so, when is the best time of day?
19 Replies1 Like
Have a caught extremly early PBC?
PaigeR10 days ago
I think I have extremely early pbc.
I have controlled hashimotos and supposedly conteolled hypothyroidism, stomach problems (need aid of othe...
OCA Press Release 4/13/18
gwillistexas11 days ago
A fellow PBCer on another site shared this with me today. Seems so far, OCA is doing very well. If you’re interested in reading it go to thi...
16 Replies5 Likes
kingsnorth12 days ago
Does anybody get severe leg cramps (charlie horses) l dont have slight scaring
11 Replies1 Like
My-life13 days ago
Does anyone feel like they are getting a bladder infection But your not.
Ruthyloo14 days ago
New but not to pbc had it since 1979 on no medication have blood test every 6 months or 12 months then just get told either up or down fine ...
gwillistexas14 days agoPOPULAR
Just wanted to share lab results.
TBIL 0.40 (0.20–1.30)
DBIL 0.30 (0.00–1.10)
ALP 132 (38-126) same as January
AST 30 (14-36)
ALT 26 (9-52)
26 Replies13 Likes
Pamela447514 days agoPOPULAR
Some days it feels like bones are just breaking from normal activities.... of course they are not but some days are good with no pain and th...
29 Replies1 Like
I found this study interesting. Possible genetic virus/PBC
Maur2214 days agoPOPULAR
33 Replies7 Likes
Jeanb4715 days ago
Hello. I thought I’d post results of my appointment with specialist. Blood tests. ALP- 245, bilirubin - 16. AST & ALt both marginally elev...
4 Replies4 Likes
Pamela447515 days ago
Garlic powder and onions are ok for pbc.... right?
LFT - ALP is up total bilirubin is down
danaLL16 days ago
In my recent blood test, my ALP tripled but my total bilirubin went from 1.0 to .9. I also recently did an MRI where the doctor said there...
17 Replies1 Like
ENuk16 days ago
4 months ago I had blood tests for tiredness and it highlighted poor liver function, more blood tests and then a scan which showed multiple ...
Interesting Read.....I'm going to give Raw eating a try. What can it hurt?
Ktltel16 days ago
Below is an article I found by googling "PBC and eating Raw." Also... I am not advocating anyone going off their medication. Anything anyone...
19 Replies3 Likes
My New journey, living with PBC
PBCforJPM16 days ago
3/19/2018 I was told I have PBC. I began taking Ursodiol on 3/20 to begin this new journey of life with PBC. I must say I am a bit scared b...
4 Replies5 Likes
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