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PBC Foundation

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Itching

I am a male and have had PCB for about 15 years. I have just started to get the ...

Lichen Planus

My Dr used this word today and prescribed medications. So far twice my pharmacy...

Serious pain in last 24 hours should i worry or wait till it passes

hi all, me again, about 24 hours ago, i started with some pain in my back and l...
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Covid vaccine and PBC

Has anyone’s PBC become worse after the Covid vaccine?

Side effects of Ursofalk

I’ve been recently diagnosed with PBC after positive AMA and liver biopsy. My LF...

PBC and Autoimmune Hepatitis

Diagnosed with PBC 2012 last biopsy 3yrs ago stage 2. Labs not improving over t...

Ocaliva itching permanent?

Has anyone taken Ocaliva and took it and had gotten worsening itch? If so, when ...

Is my PBc causing all this or is it the medication ?

hi all, since being diagnosed with the pbc and taking the Urso tablets, my hair...

PBC itch and bruising

PBC itch and bruising Itching is the only symptom I get from PBC and sometimes ...

Lingering Covid vaccine side-effects

Hi there! I wondered if anyone else with PBC has suffered from long-lasting side...

Interstitial cystitis

May I ask if anyone has this? I’m just stacking up medical issues. I’m very con...

Worried I have PBC.

I want to apologize in advance if my writing is disjointed, I’m writing this und...

New Member of the family

Hi all, My name is Tony and I was diagnosed with PBC (with cirrhosis) 3 years ag...

PBC itch

I’m told it’s Pruritis that goes with PBC and that the nerves are firing at the ...

The Itch and goose bumps or shivers

It’s been five years since my diagnosis. Today the itch is severe. I remember ...

Nervous 😩

Hi dear friends. As the time of regular lab tests getting closer, I feel extreme...

Side effects of ursofalk

What are the common side effects you have to this drug?

PBC due to Covid-19?

Hi, I have recently gotten an AMA M2 positive blood test result, as part of pane...

Gall bladder removal

I saw a consultant today who said that I needed my gall bladder removed, however...

I’ve just started taking Urso

Hi there, I’ve very recently just been diagnosed with PBC, and I finally got my ...

Finally got a reliable answer

Hello my fellow PBC sufferers, I hope that we are all feeling as well as possib...

Is it possible for Ursodiol responders to stop responding to the medication in the future?

That's my biggest worry. I am a responder now but I worry about the future.

Diet

Can anyone recommend food/ or what to eliminate to help with Fatigue. I know so...

Locations

Hi everyone. I’ve been wondering if anyone here is in Texas.

Ketosis

Hi I have started doing the Fast800 eating plan, but as it takes you into ketone...

PBC monitoring.

I got diagnosed last spring, during lockdown. Since then I've only had one hospi...

PBC and Sleep

I am averaging 2 hours a night deep sleep, the remainder snoozing. Any suggestio...

Medication

I have PBC which has progressed to Cirrhosis. I also have Fibromyalgia along wit...

Restless legs

Hi. Does anyone else suffer with restless legs. I have it alot and I haven't fou...

Ache on right side?

Hi, I was diagnosed with Pbc 11 months ago and I’m on Urso,but keep getting...
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