Becca7521 hours ago
Hi - I had written a post introducing myself the day after I was diagnosed, but I can't find it anywhere, so I'm thinking I must have done i...
Advice on recent symptoms please
Hiddena day ago
I know I posted recently to introduce myself and had some lovely replies and support. I thought I would do this as a new post t...
LindyRich2 days ago
Has anyone tried homeopathy for PBC symptoms?
Newly diagnosed and concerned about pain
Hibbsy2 days ago
I am newly diagnosed with PBC (diagnosed December 2015)
I've started Urso treatment, and my blood tests show that I'm responding ...
Some new crappy symptoms
JennyCville3 days ago
Hi friends....a few days ago I started having some new, and pretty severe, symptoms at 5am. How weird is THAT? So for the past few days, at ...
Michiganpbc3 days ago
Diagnosed by positive AMA and elevated LFT's waiting for liver biopsy appointment for staging ....
AdeleMalcolm3 days ago
I'm not taking anything as yet for my PBC and wondered if anyone knew if there was any issue in me taking turmeric tablets. I've read loads...
Had PBC for 9 years and now need a Liver Transplant
Hidden3 days ago
My name is Nicki and I have lived with PBC for 9 years. I was just 32 when I was diagnosed and it was a frightening time as my ...
wongie4 days ago
I'm having so much trouble getting treatment for ra. I have pbc too. Rhumatogist put me on salazine on 1st dec. Last week I told him its ...
LindyRich4 days agoPOPULAR
Could anyone tell me if there is a website which explains liver test results in layman's terms. I have just got a letter from the hospital ...
Felt very sick
cclcnal74 days ago
Hi, I have people coming over in a few days so have been cleaning. While stretching up high several times I suddenly came over feeling very ...
Any implications taking Ursofalk without food
amt504 days ago
The medication advises to take with food, anyone know of any implications of taking Ursofalk without food? Any side effects etc?
low blood sugar
sophie6664 days ago
hi i am to be tested for hypoglycaemia is this related to pbc please
Waiting for biopsy
Bettyfinn5 days agoPOPULAR
Hi everyone. I am 34 years old. I have two kids:. 3 years and 6 months. I have high liver enzymes and itchy skin. Now waiting for a liver ...
janetfolley7 days ago
Does anyone else who suffers from PBC get terrible leg pain and extreme weakness, have mentioned this to my GP who says it's arthritis ,I ha...
PBC - Recently diagnosed after 6 long years
Auds57 days ago
Hi All. This is my first post so I'll give you my experience. In late 2015 I was diagnosed Chronic Cholangiopathy which is similar to PBC. ...
kathmax7 days ago
Does anyone suffering with Chrones suffer with their periods and what does the PBC stand for?
Sudden red itchy swollen palms - very painful!
Jowen8 days ago
Help! Today my palms became red, swollen and crazy itchy in an all new way. My right wrist is swollen too and difficult to bend. Why is this...
Just diagnosed and petrified
Hidden8 days agoPOPULAR
I have just discovered I have pbc. No symptoms but AMA and abnormal lft's found whilst being tested for lupus. I have recently become...
Second hepatology appointment
Twinkle269 days ago
Hi just thought I would update you on my progress,
I have now been prescribed the urso, x3 per day.
I am now waiting on the liver biopsy date,...
Treatment and advice
temirzhan9 days ago
My mother was diagnosed with PBC 2 years ago. She has been taking Urso for about a year now: 3 capsules before bed (she is about 90 kg...
Hidden9 days ago
Hello, Shoda here
Has anyone heard of this person "Gizocsi" ??
appears to have vanished after getting private details of pple...
Study for the new med Obetichiolic Acid and my experience
kauthement10 days ago
Here's a study for the new med Obetichiolic Acid and my experience for on applying;
Subject: NCT02308111, 747-302, Phase 3 Study...
Is this disappointing information?
butterflyEi10 days ago
Has anyone read this article? Would like to know what...
chrissey710 days ago
Can any of you lovely people help me with advice re pain killers I am in a lot of pain with a recurring back problem am desperate to take so...
Is it detrimental?
Hidden11 days agoPOPULAR
Struggling on 3 x 250g Ursofalk wanting to rip my skin off at night so went back to 2 x 250g however now I seem to struggle to take that and...
Hidden11 days ago
Hello-All of my LFTs are in normal range.
AST-24; ALT-25; Tbili-.46; Alb-4.6; ALK-45
All the rest are normal.
Also CBC is is in normal range ...
Hi last month i was Diagnosed with PBC i have been told i need to take Ursofalk for the rest of my life i am 33 very active and eat pretty h...
kandiepat11 days ago
Hi everybody, I want to do a colon cleanse with different herbs. Can anyone think of a reason why not? I have PBC and Sjogrens and I take U...
Miss Leading Post
Brummi11 days ago
Hi all you wonderful folk out there. Someone posted a miss leading post concerning cannabis. , Well I complained to the moderators about it ...
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