Kidney pain/Kidney stones
PBCTracyan hour ago
Has anybody experienced kidney pain?I wasn't sure if it was PBC related or Urso related.It is sharp then goes away.My spouse gets frequent k...
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gwillistexas5 hours ago
G’morning! I’m just curious about which antibiotics any of you have taken for upper respiratory. I’m still trying to get rid of what I’ve h...
Sona_akb15 hours ago
Hi everyone ❤️❤️
My hepatologist started urso with 1500mg/day. I’m 55kg. Isn’t it too much for me? Does anyone else take same dosage?
Just diagnosed and scared.
Sandb26a day ago
Two years ago I was diagnosed with Lupus because of symptoms and positive ANA. Last month I decided to get a second opinion because I felt a...
7 Replies1 Like
boneytoys2 days ago
I’ve was diagnosed ( by a liver biopsy)
with pbc in 2008. I am on urso . Ive heard about fibroscan and am keen to have a second opinion usi...
Pamela44752 days ago
I have been having diarrhea for about a week. Diagnosed 2 years ago and on Urso since diagnosed with no issues. Seems everything I eat just ...
Vespa272 days ago
Hi I am not new to p c foundation it nor been on here for a very long time due to work comittment. I have the new Facebook log in name of ...
Camp_Host3 days ago
I am new to this chat. I was diagnosed with PBC over 10 years ago. I have been taking Ursodiol since diagnosis. I have had an up and d...
11 Replies2 Likes
Most recent labs. I stopped RA drugs & My Hepatologist Appt. today.... If it wasn't for you all.... I'd be upset. But I'm good! ❤
Ktltel4 days agoPOPULAR
LFT'S were going up instead of down. Weird nausea and URQP. I have elavated ferritin, as the lab that tested me has a range (30ng-13...
44 Replies3 Likes
Yvonnetrowman564 days ago
Hi I had my liver test results and its blue 6 apparently that is very high ...does anyone know how these results work
Kind regards yvonne
Starfish724 days ago
Diagnosed 2.5 yrs ago with PBC stage 3.
Non responder to urso, have tried OCA but temporarily stopped due to intense itch.
Since starting O...
Undiagnosed skin problem
Dallas824 days ago
Combination of sand like substance as well as grainy salt like substance under top layer of facial skin. I’ve been to doctors, dermatologist...
gwillistexas6 days agoPOPULAR
Have any of you had to use a bronchial inhaler? I’m sure my sweet hubby shared his germ with me. Started antibiotic & steroid pack last Thu...
31 Replies1 Like
Hi av just been diagnosed with angina I am very worried as I dnt know when I would need help r if it’s the angina
Kimy12346 days ago
Hi I have just been diagnosed with angina I am so scared that I won’t know when to phone for help
5 Replies1 Like
Lorn476 days ago
Was wondering if geting a flu shot with pbc is ok .
Urso and Iron
Han738 days ago
Hi everyone. I take 500mg urso and a couple of iron tablets before I go to bed at night but the next day I suffer from terrible diarrhoea a...
My First Post
barbararobino3038 days agoPOPULAR
I am 67 yr. living in Colorado, USA
March 16, 2018 at 3:30 pm my doctor called to advise me that from the routine lab work indicated I had P...
21 Replies5 Likes
Just got the biopsy result
Sona_akb8 days agoPOPULAR
😭😭 it’s written florid duct and periportal expansion, stage 2 PBC. Anybody with same stage? Now what to do?
Chels20128 days ago
Hi I’m becks and I have PBC ,
Was diagnosed 2016 , I’m on urso 1000mg a day ,
I have tolerated the meds very well , however since Feb this y...
PBC Fatigue and AIP Diet
SuperJo9 days agoPOPULAR
Have you ever heard of the AIP diet? About 10 days on the AIP diet (Dr. Amy Myers) and the fatigue started to lift. I have not felt that a...
20 Replies9 Likes
PBS chronic Fatique
stevie110 days ago
I have PBC. One of the symtoms is Chronic Fatigut but on occasions the fatigue can be more severe and I feel exhausted for long periods. Doe...
13 Replies4 Likes
BabyK10 days ago
Hi all should I get the flu jag? Diagnosed with PBC 4 weeks ago. Already on urso but still to have my first hospital appointment
12 Replies1 Like
Can I get Ursodiol over the counter?
Jaydublin10 days ago
Hello everyone I'm Jay I have gallstones and I want to try Ursodiol to help try devolve my stone
Can someone tell me can I get Ursodiol over ...
ALP level and stage
Sona_akb11 days agoPOPULAR
Hi everyone, I had a liver biopsy couple of days and stressfully awaiting the result. I had two AMA test with complete different titer withi...
Sona_akb12 days ago
Hi everyone. I had AMA and ANA test 10days ago with titer of 1:320 for AMA and 1:640 for ANA, but my rheumatologist Dr wanted to redo them i...
MRE (Magnetic Resonance Elastography) "My Results" So much for trusting Biopsy and Ultrasound. 😡 ***High ferritin skewed my MRE score.
Ktltel12 days agoPOPULAR
My Biopsy 2 years ago said "zero" evidence of PBC. My labs though said I had PBC. I was put on URSO since 2016. Only thing elav...
58 Replies4 Likes
Waiting biopsy results
Cherry6913 days ago
I am now waiting my biopsy results which is making me worry worry in what overlap syndrome I have with my PBC and if it will change how I ...
sand like substance on skin
Crystallstar14 days ago
I have crystals and sand like substance on my body. Every doctor I have seen is arrogant and dismiss it as psychiarist although I can show...
Baking Soda water
Jlruggie14 days ago
Has any one read about how drinking baking soda water can help the spleen regulate the immune response and reduce inflammation?
Feeling frustrated and despondent LFTs rising
Hils6714 days agoPOPULAR
Hi, sorry everyone, this is a bit of a rant as I need to get this off my chest...only you people on here really know what it feels like when...
63 Replies3 Likes
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