Pbc joint pain
Lorn474 hours ago
Does anyone get joint pain from pbc or is it from taking the urso.Also would like to know about any experience of getting reflux after takin...
Bamba67995 hours ago
I wish to retract the word 'winning' in the heading of my original post. By no means can I guarantee you winning an appeal and so I shouldn'...
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tinajohnston10 hours ago
For the last few months I have started suffering with some memory lost its not too bad only the odd thing or two like thinking did I a...
Can autoimmune diseases cause a false positive for PBC?
freckles196221 hours ago
I started going to a hematologist because my white bloods cells were elevated. He ran all sorts of lab work and finally got a hit on the CRP...
2 Replies1 Like
Bamba6799a day ago
I posted something on this site yesterday but forgot a few things so this is the revised (and hopefully more concise and coherent) version. ...
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As much help and advice on winning an ESA Appeal as I can give.
Bamba67992 days ago
I have only just found this site but really want to give as much advice and help as I can. I won my appeal against ESA last month. I prepare...
Medical problems and ESA tribunal
Bradley222 days ago
Hi I'm new to this site , but was wondering if anyone knew about the point scoring system used for ESA , I am waiting for my tribunal and ha...
MR with elastography
claygi2 days ago
Yesterday I had an abdominal MRI with contract and an elastography under MRI, at a large research hospital in California. Got back the resul...
Question for Ocaliva patients - 5 mg or 10?
Ottley33 days ago
Hi! A question for my fellow Ocaliva people .... is it true that everybody starts at 5 mg and then is moved up to 10 mg? I’ve been on 5 mg f...
19 Replies1 Like
Mid diagnosis perhaps?
KN19814 days ago
Ok so I took some blood tesss last week and the results came back normal. I am going to take all the tests again at a private clinic so I ca...
Gwelos7 days agoPOPULAR
Hi, I have a diagnosis of PBC since 2008 and I am on urso 750 daily.
I have a yearly US and I am wondering what is the purpose of a fibroscan...
Ellyne8 days ago
Saw the hepatologist today and my test results were posted on the portal. Everything looks pretty good except direct bilirubin went from .2 ...
17 Replies2 Likes
Should I get liver biopsy? Advise and guidance needed.
Blueandyellow8 days ago
Hi! Sorry if post is too long.
I am new to the group and grateful to have found it.
I received a call from my GI doc yesterday saying I migh...
ritarobainapbc8 days agoPOPULAR
I had my first Fibroscan on September 2017, it was 5,8 F0-F1.
September 2018, the result is 6,2.
Eventhough the result is still in F0-F1 there...
20 Replies1 Like
Has anyone had pale colored stools as a side effect of ursodoil?
1811tc9 days ago
I take ursodiol 500ml 2 x daily. If I stop taking medication a couple days stools turn to normal color.
KN19819 days ago
I went to the hospital for something which was not an issue but due to the blood tests i had my liver enzymes were high. I tested positive f...
Reply to Rleo re Urso
Haylsnewc10 days ago
I’ve always taken my unsolicited with all my other pills then had a glass of milk or yogurt then 12 hours later repeat for the evenin...
what causes a spontaneous fall
omaghtyrone11 days ago
I experienced first no reason fall last week; I was in line in store, and simply crumpled down; no warning, I ended sitting on my rump, tot...
Arthritis pain and antiinflamatories
Tootoot12 days ago
Lately my hands have been swelling and when I wake up in the morning they are hard to get mobile. They are stiff and sore. My wrists are sta...
Biliary Tree Gas
atmn2g14 days ago
Has anyone had an ultrasound of their liver and had a finding of 'gas in the biliary tree' ? Only information online is that it might be cau...
4 Replies1 Like
IAmTheGlue16 days ago
So I've been on Prednisone for an entire year. So far so good I suppose. I have a few little side effects usually that aren't too bad. I tap...
Not yet diagnosed but feeling awful
mpetal16 days ago
First post here. I have struggled with exhaustion for over a year had numerous tests including tests for sleep apnoea etc but all negati...
Coco2116 days ago
I am terrible for remembering to take my medication! It’s beside my bed with a bottle of water to take before bedtime. I try to take my 2 ...
13 Replies1 Like
stevie117 days ago
I have PBC and take Ursofalk. I went to donate blood tonight but they said I was not suitable due to PBC. is this correct?
Liver biopsy negative but specialist says I have PBC
Rottiemommy17 days ago
Well after fighting with my Gastro she sent me to a liver specialist. He looked at my chart and said the biopsy was wrong I am diagnosising...
9 Replies1 Like
Robert - RE:STAGING
gwillistexas18 days ago
Robert, wondering if you might share on ALF, again, about staging? Looks like some didn’t see it from before.
I'm not winning no battles
Toliveyoumustdie20 days ago
Looking for some advice, I've been suffering with serous anxiety and depression problems the last 3 years and it all started when my dad die...
Autominium - PBC
bozcan20 days ago
Hi everyone, I just find a web site and talk with "Denise Otten", her daughter was autominium hepatit, they uses a lot drugs udca, imuran et...
Irisw23 days ago
Hello just checking in to see what others thought about taking antidepressants while having PBC...
bozcan23 days ago
Does anyone takes immunotherapy session for pbc, i am not responce udca .. 2 years past i didnt find a solution and ocaliva did...
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