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PBC Foundation

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Tuesday's Tip

This is a reminder really to always make sure you are taking the correct dose of Urso. The dosage is 13-15mgs/kg of your body weight. It...

This is a reminder really to always make sure you are taking the correct dose of...

DonnaBoll

Administrator•19 hours ago

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It's 'Monday Me'!

Ok folks... what have you done for yourself over the past few weeks? I hope you can think of even just one thing. We all need to take care...

Ok folks... what have you done for yourself over the past few weeks? I hope you ...

DonnaBoll

Administrator•2 days ago

3 Replies

Early retirement

morning So I’m 56 /57 this year . I have pbc - aih . The main issue I have is the fatigue . I work 4 days a week in a SEN secondary school . Last year I...

morning So I’m 56 /57 this year . I have pbc - aih . The main issue I have is ...

She-66

•3 days ago

9 Replies

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'Thank you' researchers!

https://medicine.washu.edu/news/researchers-find-missing-link-in-autoimmune-disorder/...

https://medicine.washu.edu/news/researchers-find-missing-link-in-autoimmune-diso...

DonnaBoll

Administrator•4 days ago

2 Replies

take note!!!

* Q&A update ** Don't forget that, from Thursday 27 March, we will be starting to make changes to the structure and delivery of the weekly Q&A sessions....

* Q&A update ** Don't forget that, from Thursday 27 March, we will be starting ...

DonnaBoll

Administrator•5 days ago

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Friday Fun Question

What are you looking forward to in the coming months? For me, I am celebrating having had my liver transplant for 20 years on April 13th. I'm...

What are you looking forward to in the coming months? For me, I am celebrating ...

DonnaBoll

Administrator•5 days ago

7 Replies

PBC and Scleroderma

Hello everybody,I have learned this week that I have tested positive to Scleroderma. The neuroligist is refering me to a rheumatologist. I am anguished because...

Hello everybody,I have learned this week that I have tested positive to Sclerode...

Ancolie

•5 days ago

13 Replies

Seladelpar Gilead availability in Ireland?

It looks like Seladelpar was approved by the European Medicines Agency (EMA) in February 2025! Since I haven't had a good response to URSO, this approval is...

It looks like Seladelpar was approved by the European Medicines Agency (EMA) in ...

GerryPBC

•5 days ago

2 Replies

Thursday's Thoughts

Hoping that the weather will soon catch up with the calendar date, I'm convinced Spring will arrive. As you know I do like to garden - weeding and hoeing...

Hoping that the weather will soon catch up with the calendar date, I'm convinced...

DonnaBoll

Administrator•6 days ago

3 Replies

Livdelzi

I just wanted to share about Livdelzi. My GP ran several labs the 13th of March (after covid), to make sure electrolytes, etc. were in balance. He included a...

I just wanted to share about Livdelzi. My GP ran several labs the 13th of March ...

gwillistexas

•6 days ago

29 Replies

Wednesday's Word

platelets These are very tiny fragments of blood cells that are responsible for our blood clotting. In PBC, they are...

platelets These are very tiny fragments of blood cells that are responsible for...

DonnaBoll

Administrator•7 days ago

3 Replies

take note....

This week's Q&A will be at 5am UK time / 4pm Sydney time on Thursday with Dr Martin Weltman answering your questions. If you have any questions, please submit...

This week's Q&A will be at 5am UK time / 4pm Sydney time on Thursday with Dr Mar...

DonnaBoll

Administrator•7 days ago

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watch if you can....

Last week's Q&A with Prof David Jones and Mo is available to watch on YouTube: https://youtu.be/jGYWAAA7ej8 Additionally, there are a couple of new mini...

Last week's Q&A with Prof David Jones and Mo is available to watch on YouTube: h...

DonnaBoll

Administrator•8 days ago

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