June99619 hours ago
Hi, just recently I have noticed that I am getting the shakes quite a lot. Have had PBC for 17years but this has just happened recently. ...
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B12 deficiency links to PBC and brain fog??
boneytoys2 days agoPOPULAR
I was diagnosed with PBC over 10 years ago and have been relatively well. l ast week while on holiday in Australia from NZ I awoke with a ...
26 Replies2 Likes
IBS - D
JaneIng2 days ago
Can't remember who was asking about IBS -D and today I see a related link and think it's worth reading. I have personal experience with both...
Provigil patient assist program
Saw this post from PBCers.org. Thought some might benefit it.
PBC and Diabetes
mamma2612 days ago
hello, was wondering does anyone else have type 2 diabetes and being told the PBC caused the diabetes ?
rubyrose154152 days ago
My consultant recently wrote to me and advised that she wanted me to start ezetimibe as my alk phos was higher than she was comfortable with...
New to this..
hopefulDaisy3 days ago
Hi, mother of 2 young kids. Just gave birth 3 months ago. Doctor thinks its pcb, still have some more testing to do. Been dealing wih an int...
Back from the Mayo Clinic
windfire7773 days ago
As an update to my previous post, I just got back from the Mayo Clinic and they said I have inconclusive PBC. I guess it’s so early or it’s ...
8 Replies4 Likes
PBC cirrhosis of the liver
Yankeerose33 days ago
I had a liver biopsy showing I have PBC however, all the blood tests for it comes back normal. Anybnody know why that would happen?
New diagnosis - early stage PBC
Danig4 days ago
Hi - just received test results from biopsy which was ordered due to elevator LFT and itching after ERCP. My follow up with Dr isn’t for ano...
Dragging my feet on starting ocaliva
Ottley34 days agoPOPULAR
I was diagnosed in March 2017 (caught by a random blood test during my annual checkup, I’m 49). While i showed initial improvement on Urso, ...
25 Replies3 Likes
Veins looks like going blow up
Sachin12344 days ago
My Right upper side of foot vines has been swollen. No pain nothing just big swollen up vines? Does any one have problem like this ?
Pbc and pregnancy
Char_char19804 days ago
Hi i was diagnosed with pbc 2 years ago and have always found the itching the worst symptom for me i am now 20 weeks pregnant and the itchin...
Why are my LFT rising?
IAmTheGlue5 days ago
Been a rough week here. We had 2 deaths in our family and I drove from Indiana to Kansas and back to Indiana in the course of 3 days with m...
Best & Worst foods for the liver
nycgirl20126 days agoPOPULAR
27 Replies5 Likes
Swollen glands on one side
SharonM696 days ago
I have painfull swollen glands in my neck on one side, it's really painfull to swallow, but I dont have a sore throat, it kept me awake all ...
Flower-powr7 days agoPOPULAR
Hi all. I went to see my rheumatologist recently due to raised ANA's on a routine blood test. Also raised M2. She feels it's nothing from a ...
donna017 days ago
I re-posted this link in my previous thread but wasn't sure if you get notifications or not. Anyway, I know this is complex and not PBC spe...
1 Reply5 Likes
Newly diagnosed with preclinical PBC
labootz167 days agoPOPULAR
Just got a call yesterday from my gastroenterologist telling I have preclinical PBC and he set me up with an appointment to discuss treatmen...
AmandaSlater7 days agoPOPULAR
Does anyone else with PBC suffer from prolonged bouts of Diarrhea? I can have severe bouts of this for 3 or 4 months at a time and then it c...
So fed up of feeling ill
S1cknt1rd8 days ago
I had hepatitis about 20 years ago, was itchy and felt like flu whole time. By the time it was picked up it had cleared and I have...
AIH/PBC over lap sindrome
YADILURO8 days ago
Just went to see the hepatoligist and said I have AIH and PBC overlap síndrome. And she prescribe me prednisone and azathioprina. I am scare...
4 Replies1 Like
Is my reasoning faulty?
ILik3Pizza8 days ago
Elevated liver function tests led to a diagnosis of PBC in October 2016. (Positive AMA and liver biopsy, moderate to severe cirrhosis stage ...
Akaline phosfates almost normal
Bonnieanne549 days agoPOPULAR
I'm soooo happy. Just for today my alt is 117. And the rest are within normal range
Most of you know I was diagnosed stage one 22 years ago ...
20 Replies13 Likes
Victorwhite19689 days ago
Hi does anybody know about I'll Heath tier 3 as I could be heading that way
To build or not to build
Biddyb9 days ago
I am really confused (again) should I be improving my immune system as I thought that part of the PBC problem was immune system being too ac...
10 Replies1 Like
emilyellafaye10 days ago
Hello! I've been poked and prodded for 6 years. Long story short, I've had every test available (in two different cities) and my GI Dr. told...
New member newly diagnosed
JGM5910 days ago
Hi. 59 year old man in Seattle. Just diagnosed as stage 3 and taking Urso and Cholestyramine currently. Waiting on bone density test and ref...
14 Replies1 Like
Aches and pains
Biddyb10 days ago
Ok PBC ers, one of the main problems that have cropped up in the last few posts are muscle and bone aches and pains lots of ideas as to what...
1 Reply1 Like
Louisethew11 days ago
Hi I was diagnosed with pbc in September,after second opinion am back on waiting list for biopsy re aih or fatty liver , just wonder if anyo...
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