Posts - PBC Foundation | HealthUnlocked

Administrator•2 hours ago

I just wanted to share with you some thoughts that really just impacted me yesterday. One of the things on my 'to do' list was to start writing my...

not Thursday but....

I just wanted to share with you some thoughts that really just impacted me yeste...

Hi everyone! Time to take stock of what you've done just for you lately. This morning I sat in my recliner (my second home), wrapped in my thick...

Administrator•1 day ago

1 Reply

It's 'Monday Me!'

Hi everyone! Time to take stock of what you've done just for you lately. This m...

Administrator•1 day ago

and so the holiday season begins - hope to take down my Fall decorations today. Up with the holiday ones. Bringing up all the totes of 'stuff' is a chore. My...

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December 1st!

and so the holiday season begins - hope to take down my Fall decorations today. ...

Just curious, what body lotion is considered for safe use with Pbc.

Administrator•2 days ago

6 Replies

Body lotion

Squirt83

•3 days ago

17 Replies

check it out!

Our Project 90:90 launch event is now available on YouTube including: The Patient/Clinician Partnership Introduction to PBC Patient Services Click this...

Our Project 90:90 launch event is now available on YouTube including: The Patie...

Administrator•3 days ago

This is for US citizens only it says but I thought it might be helpful for some of you as another resource for support and information. Looks like it's a...

might be helpful

This is for US citizens only it says but I thought it might be helpful for some ...

Administrator•3 days ago

How many enjoy Thanksgiving leftovers as much as I do?

Friday Fun Question

Administrator•4 days ago

I can't believe it's already Thanksgiving! Doesn't the time go by fast?! I'm sitting here watching the Macy's Parade. So many memories watching this on...

Thursday's Thoughts

I can't believe it's already Thanksgiving! Doesn't the time go by fast?! I'm sit...

Well, this is kind of weird. I broke out with a rash on my hip last April and have been fighting with it until this week. It was like a bunch of hives, some...

Administrator•5 days ago

5 Replies

Rash on trunk of body

Well, this is kind of weird. I broke out with a rash on my hip last April and h...

Gaspereaux

•6 days ago

fibrosis Simply, this means the formation of scar tissue. Our body tries to repair and return injured tissue to its normal...

Wednesday's Word

fibrosis Simply, this means the formation of scar tissue. Our body tries to rep...

Administrator•6 days ago

Hi everyone The next virtual meeting for the PBC community will take place on Friday December 20, 10.00am PT, 11.00am MT, 12.00 CT, 1.00pm ET. Hosted by a...

just so you know...

Hi everyone The next virtual meeting for the PBC community will take place on F...

Administrator•6 days ago

hi everybody, in April I started second line therapy as my alp wasn’t comeing down enough with urso, in march my alp was 465 October went down too 292 I then...

Second line therapy

hi everybody, in April I started second line therapy as my alp wasn’t comeing do...

Lena2011

•6 days ago

1 Reply

Tuesday's Tip

Pain is frequently felt as a dull to severe sensation in the right upper quadrant of your abdomen. It can often be an indication of gallstones,...

Pain is frequently felt as a dull to severe sensation in the right upper quadran...

Administrator•7 days ago

Hi, I’ve been really unwell this year with scleroderma/PBC/Sjögren’s syndrome and I also have hypothyroidism. I started methotrexate a few weeks ago and I’m...

Urso meds

Hi, I’ve been really unwell this year with scleroderma/PBC/Sjögren’s syndrome a...

MissusTee

•7 days ago

11 Replies

It's 'Monday Me'

Hello all! I hope some of you over the last week or so took the time for yourself. I know we are coming up on a busy season for the year....

Hello all! I hope some of you over the last week or so took the time for yourse...

Administrator•8 days ago

This really resonated with me - maybe with you too....

food for thought...

Administrator•10 days ago

Sjögren’s Disease If you have been diagnosed with Sjögren’s Disease in the past 10 years you may be eligible to take part in a 30-minute online journal...

from The Autoimmune Association...

Sjögren’s Disease If you have been diagnosed with Sjögren’s Disease in the past...

Administrator•11 days ago

Who has already seen some Christmas lights, trees, or decorations up in any of your neighborhoods? 🎄 I've seen several places with...

Friday Fun Question

Who has already seen some Christmas lights, trees, or decorations up in any of ...

I play a game on my phone called Zen Word.. when the game begins the app gives you a phrase just to think about. Yesterday, the message was 'make...

Administrator•11 days ago

4 Replies

Thursday's Thoughts

I play a game on my phone called Zen Word.. when the game begins the app gives y...

Administrator•12 days ago

Sorry, I slept later this morning and need to leave for an appointment soon. I didn't forget my 'Thursday's Thoughts'. I just want to have time to write it as...

later...

Sorry, I slept later this morning and need to leave for an appointment soon. I d...

Administrator•12 days ago

Your #PBC questions will be answered by Prof David Jones tomorrow at 2pm. You can take part in our private online room here:...

Take Advantage of This!

Your #PBC questions will be answered by Prof David Jones tomorrow at 2pm. You ca...

Administrator•13 days ago

Golexanolone A relatively new drug that is in clinical trial mostly being tested to help relieve cognitive and motor functions. It...

Wednesday's Word

Golexanolone A relatively new drug that is in clinical trial mostly being teste...

Administrator•13 days ago

Has anyone taken this new drug? My hepatologist has offered for me to try it since Ocaliva isn’t keeping my ALP down to a desirable level. Your thoughts?

Seledelpar

Has anyone taken this new drug? My hepatologist has offered for me to try it si...

gwillistexas

•14 days ago

32 Replies

Tuesday's Tip

Taking Urso can often cause some stomach issues - bloating or nausea. Being a bile salt, it can cause many people GI issues until your body adjusts to...

Taking Urso can often cause some stomach issues - bloating or nausea. Being a bi...

Administrator•14 days ago

I'm up, showered, did my hair, and even put on some makeup. I have an early morning with my primary this morning. Between the pouring rain and the...

It's 'Monday Me!'

I'm up, showered, did my hair, and even put on some makeup. I have an early morn...

According to the Mayo Clinic Coffee ☕️ ☕️ ☕️ has components beyond just caffeine that are beneficial to people with chronic liver disease, including...

Administrator•15 days ago

3 Replies

I'm having some right now...

According to the Mayo Clinic Coffee ☕️ ☕️ ☕️ has components beyond just caffei...

What item of clothing can you just not get rid of?

Administrator•17 days ago

9 Replies

Friday's Fun Question (I almost forgot!)