Posts - PBC Foundation | HealthUnlocked

Administrator•11 hours ago

Well, after our whirlwind weekend in airports and delayed flights, my husband just tested positive for Covid. Life just keeps giving us challenges, doesn't...

unexpected events

Well, after our whirlwind weekend in airports and delayed flights, my husband ju...

Administrator•14 hours ago

If at all possible, see a knowledgable hepatologist Only use trusted and reputable sources for information Don’t google unless the article is current and...

Some 'tips' for new/already diagnosed members

If at all possible, see a knowledgable hepatologist Only use trusted and reputa...

Administrator•1 day ago

We are both proud and excited to announce that registration for the PBC Patient Conference 2024 is now open! For more information and how can reserve your...

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Attention! Attention!

We are both proud and excited to announce that registration for the PBC Patient ...

Administrator•2 days ago

What a whirlwind weekend flying to Tucson, AZ Friday afternoon, returning last night. Awful connection problems with all the flights on Friday. Should have...

No place like home...

What a whirlwind weekend flying to Tucson, AZ Friday afternoon, returning last n...

Share with us how you have taken care of yourself mentally and/or physically over the last week. We all should feel we deserve to have 'me'...

Administrator•2 days ago

4 Replies

It's 'Monday Me!'Day

Share with us how you have taken care of yourself mentally and/or physically ov...

Administrator•2 days ago

hi I have pbc/aih stage 4 cirrhosis. On the usual meds ….. Go on my hols at the end of the month to Turkey , my feet always puff up when I’m there … are...

PBC/AIH

hi I have pbc/aih stage 4 cirrhosis. On the usual meds ….. Go on my hols at th...

She-66

•3 days ago

We are both proud and excited to announce that registration for the PBC Patient Conference 2024 is now open! For more information and how can reserve your...

Take Note!!

We are both proud and excited to announce that registration for the PBC Patient ...

Administrator•3 days ago

I am leaving for Tuscon, AZ this morning - returning late Sunday evening. My husband's best friend from high school, enlisted together, and were each others'...

Unplanned trip

I am leaving for Tuscon, AZ this morning - returning late Sunday evening. My hu...

Administrator•5 days ago

Friday 'Just for Fun' Question

What was your first car?

What have you found that helps you manage your stress?

Administrator•5 days ago

7 Replies

Thursday's Thoughts

Here in the Midwest we are suffering with some awful heat and high heat indexes - yesterday 107. I was wondering if the heat affects your level of fatigue?...

Administrator•6 days ago

1 Reply

How are you doing?

Here in the Midwest we are suffering with some awful heat and high heat indexes ...

AMA - Anti - mitochrondial Antibody This classic antibody type is seen in PBC. Combined with elevated alkaline phosphatase, part of...

Administrator•7 days ago

6 Replies

Wednesday's Word

AMA - Anti - mitochrondial Antibody This classic antibody type is seen in PBC. ...

Hello all. I just wanted to share my experience and ask if there is anyone out there with a similar profile? In the 1990s I had a lot of symptoms which are...

Administrator•7 days ago

1 Reply

AMA M2 antibody, 26 years on told no sign of PBC - but life limited by extreme fatigue

Hello all. I just wanted to share my experience and ask if there is anyone out ...

Wilderswimmer

•7 days ago

7 Replies

Did you know?

Choose Me Tuesday is an online service where people can talk about how #PBC affects them and what they would like to do better. We are hear to listen and maybe...

Choose Me Tuesday is an online service where people can talk about how #PBC affe...

Administrator•8 days ago

Friends and family catch taking place on Tuesday 25th June at 7pm UK time. Click this link to register and login:...

Want everyone to know about this....

Friends and family catch taking place on Tuesday 25th June at 7pm UK time. Click...

Administrator•8 days ago

I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book The Definitive Guide for Patients Who Have...

Tuesday's 'Tip'

I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips'...

How have you taken time just to do something for you lately? Self care is crucial for us to stay healthy both mentally as well as...

Administrator•8 days ago

9 Replies

It's ' Monday Me!' Day

How have you taken time just to do something for you lately? Self care is cruc...

Administrator•9 days ago

"Due to family genetic problems, I was diagnosed with type 2 diabetes in 2020. Coupled with some of the things I experienced at the time, I felt like the whole...

I am a type 2 patient, but I always try to be positive about life.

"Due to family genetic problems, I was diagnosed with type 2 diabetes in 2020. C...

MartinaT

•9 days ago

4 Replies

palpitations.

Does Anyone get palpitations and does anyone know if this is related to PBC?

Wocket

•10 days ago

15 Replies

Elafibranor

I’m almost a little reluctant to ask this question, but is anyone taking this new drug? My hepatologist would like me to try it considering Ocaliva isn’t...

I’m almost a little reluctant to ask this question, but is anyone taking this ne...

gwillistexas

•10 days ago

17 Replies

Do you know about all the PBC events?

https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.pbcfoundation.org.uk%2Fevents%2F%3Ffbclid%3DIwZXh0bgNhZW0CMTAAAR2_7kngy4uDqwXHvNMa_H-f6QhxlXduIffOIzuplW8D7Sjc1

https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.pbcfoundation.org.uk%2Fevents%2...

Administrator•11 days ago

I have high cholesterol , at 8 , i have tried all statins and cannot tolerate any of them.My main worry is i have had clots in the past and had a...

Fenofibrate for cholesterol

I have high cholesterol , at 8 , i have tried all statins and cannot tolerate an...

lcunliffegizmo123

•11 days ago

10 Replies

Some 'itch' suggestions

Regarding itching…. DO’S Tepid showers Dove or baby soap/shower gels Exfoliating gloves using quick, easy strokes Coconut oil in the shower – and...

Regarding itching…. DO’S Tepid showers Dove or baby soap/shower gels Exfolia...

Administrator•12 days ago

What movie do you feel (on TV or in the theatre) was a total waste of your time? I walked out of seeing Disney's Fantasia years ago.....

Friday Fun question!

What movie do you feel (on TV or in the theatre) was a total waste of your time?...

Administrator•12 days ago

www.robertgish.com/blog/the-pruritis-sheet This is a sheet of 'itch' information from one of the Q&A sessions held this week with Dr. Gish. In the search bar...

Itch recommendations from Dr. Gish

www.robertgish.com/blog/the-pruritis-sheet This is a sheet of 'itch' informatio...

Do you and your husband ( or significant other) really ever talk about your diagnosis? I know for me, my husband rarely spoke about it....

Administrator•13 days ago

5 Replies

Thursday's Thoughts

Do you and your husband ( or significant other) really ever talk about your dia...

Arrived home last afternoon around 3. Laundry and unpacking all done... felt good to be in my own bed though. Had a great little trip to Ozark area of...

Administrator•13 days ago

13 Replies

I'm back..

Arrived home last afternoon around 3. Laundry and unpacking all done... felt goo...

Hello friends I hope you’re doing well! I’m booked to have a liver MRI ‘with contrast’ which I’m fairly sure uses Gadolinium as the contrast medium, at an NHS...

Administrator•13 days ago

4 Replies

MRI with/without contrast anyone?

Hello friends I hope you’re doing well! I’m booked to have a liver MRI ‘with co...

Skypony

•13 days ago

19 Replies

It's Monday ' Me '

What have you done to take care of you recently? We all deserve - and need - to take time to just do what makes us happy. Regroup, recharge...

What have you done to take care of you recently? We all deserve - and need - to...