Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,514 members•8,440 posts

Sort posts by:

slightly raised ALP

Diagnosed with Pbc last Feb through routine blood test, very high LFT'S, no symptoms, ultrasound normal, fibroscan 7.5, after taking urso within 3 weeks bloods...

Diagnosed with Pbc last Feb through routine blood test, very high LFT'S, no symp...

Stlucia1936

•11 hours ago

4 Replies

Friday Fun Question

What do you think is your strongest personality trait? for me, I think I'm a good listener

What do you think is your strongest personality trait? for me, I think I'm a go...

DonnaBoll

Administrator•16 hours ago

4 Replies

Additional Checks?

Hello Everyone 🙂 Just a quick question: I’m still waiting on my appointment for hi & liver, but in the meantime, I’ve also received an invite for cancer...

Hello Everyone 🙂 Just a quick question: I’m still waiting on my appointment fo...

Misssjb

•2 days ago

3 Replies

Want to take advantage of all our features? Just log in!

Thursday's Thoughts

https://liverfoundation.org/resource-center/blog/what-i-wish-people-knew-about-pbc/ I wanted to post this again for you to read. Hopefully you can relate to...

https://liverfoundation.org/resource-center/blog/what-i-wish-people-knew-about-p...

DonnaBoll

Administrator•2 days ago

1 Reply

Just so you know...

** IMPORTANT UPDATE ** Unfortunately, today's session with Ange has been postponed. The good news is that the session will take place on Thursday 06...

** IMPORTANT UPDATE ** Unfortunately, today's session with Ange has been postpo...

DonnaBoll

Administrator•2 days ago

Be the first to reply

Specialist change

hi I have PBC/AIH overlap and see gastro dr in my local hosp in Northumberland. Can I request to move to a specific dr in a different trust (Newcastle) . Not...

hi I have PBC/AIH overlap and see gastro dr in my local hosp in Northumberland...

She-66

•2 days ago

2 Replies

Wednesday's Word

anti-mitochondrial antibody This is the antibody seen in PBC. There is no evidence of it doing any harm to us. in and of itself....

anti-mitochondrial antibody This is the antibody seen in PBC. There is no evid...

DonnaBoll

Administrator•3 days ago

4 Replies

Taking care of YOU!

There will be no Q&A this coming week. Instead, we have a special self-care workshop with guest host Ange Cameron coming up on Thursday 16 January: Navigating...

There will be no Q&A this coming week. Instead, we have a special self-care wor...

DonnaBoll

Administrator•4 days ago

Be the first to reply

Stomach issues

Hi Just wondering if anyone stopped their Urso for a week to see if it helped with stomach issues. I've been on it now for 2 years and my numbers are all good...

Hi Just wondering if anyone stopped their Urso for a week to see if it helped wi...

Casslucy

•4 days ago

17 Replies

Tuesday's Tip

I know we have touched on this subject before ( I think) but it is so important to repeat. Although it is part of the guidelines regarding...

I know we have touched on this subject before ( I think) but it is so important ...

DonnaBoll

Administrator•4 days ago

9 Replies

It's Monday 'Me'

Just try to take 5-10 minutes out of your day just for you... Have you been able to do that lately?

Just try to take 5-10 minutes out of your day just for you... Have you been ab...

DonnaBoll

Administrator•5 days ago

Be the first to reply

Ursodeoxycholic acid intolerance

Hi everyone, I was recently diagnosed with Primary Biliary Cholangitis (PBC), and my doctor started me on UDCA. Unfortunately, I’m struggling to tolerate it....

Hi everyone, I was recently diagnosed with Primary Biliary Cholangitis (PBC), an...

Juhainar

•5 days ago

28 Replies

pemphigoid

my mother passed away from pemphigus because she was hemorrhaging from her mouth and nose etc. dr thought her labs were false positives and kept taking her off...

my mother passed away from pemphigus because she was hemorrhaging from her mouth...

Dvern

•6 days ago

4 Replies

sounds great!

There will be no Q&A this coming week. Instead, we have a special self-care workshop with guest host Ange Cameron coming up on Thursday 16 January: Navigating...

There will be no Q&A this coming week. Instead, we have a special self-care wor...

DonnaBoll

Administrator•7 days ago

2 Replies

Friday Fun Question

Anyone have any fond sledding memories? currently we have a lot of snow and still coming down..... I can remember sledding down a...

Anyone have any fond sledding memories? currently we have a lot of snow and sti...

DonnaBoll

Administrator•8 days ago

2 Replies

It has come 😁

I’m happy to say I haven’t had to wait long for my rheumatology appointment as I now have one for mid Feb. & according to my NHS alert yesterday,...

I’m happy to say I haven’t had to wait long for my rheumatology appointment as I...

Misssjb

•8 days ago

2 Replies

News on PBC clinical trial progress

Hello friends, I have been following this companies exciting research as they have been developing a nano-particle platform geared at addressing the...

Hello friends, I have been following this companies exciting research as they h...

EileenUSA

•9 days ago

4 Replies

Thursday's Thoughts

How often have I said - or you've read it - that exercise help with the fatigue. Seems hard to believe but it's true. But.... when you can hardly put one...

How often have I said - or you've read it - that exercise help with the fatigue....

DonnaBoll

Administrator•9 days ago

2 Replies

Wednesday's Word

Hepatocellular Carcinoma (HCC) This is a cancer of the hepatocytes ( liver cells). This is usually a secondary...

Hepatocellular Carcinoma (HCC) This is a cancer of the hepatocytes ( liver cel...

DonnaBoll

Administrator•10 days ago

Be the first to reply

... another opportunity to learn

Dr Martin Weltman will be with us tomorrow from Sydney, Australia to answer your #PBC questions. It's an early one for the UK with a start time of 2am, which...

Dr Martin Weltman will be with us tomorrow from Sydney, Australia to answer your...

DonnaBoll

Administrator•10 days ago

Be the first to reply

Tuesday's Tip

Chronic fatigue syndrome (CFS) is one condition that cannot co-exist with PBC. CFS is always its own diagnosis, meaning it's reached only after all other...

Chronic fatigue syndrome (CFS) is one condition that cannot co-exist with PBC. C...

DonnaBoll

Administrator•11 days ago

2 Replies

GP update

Well, yesterday’s visit didn’t go as expected. My GP seems to think my positive ANA & positive AMA relate to 2 separate issues. So I’ve been referred to...

Well, yesterday’s visit didn’t go as expected. My GP seems to think my positive ...

Misssjb

•11 days ago

13 Replies

It's 'Monday Me'!

How many of you have taken time over the holidays just for yourself?

DonnaBoll

Administrator•12 days ago

Be the first to reply

Ana & ama positive help

Hello, I joined this group because I’ve been trying to research what it means to have serum anti nuclear antibody’s positive Cytoplasmic, & Mitochondrial...

Hello, I joined this group because I’ve been trying to research what it means to...

Misssjb

•12 days ago

7 Replies

Friday Fun Question

What was the best vacation spot you've been to?

DonnaBoll

Administrator•15 days ago

10 Replies

Thursday's Thoughts

I know I keep referring to this being a new year - but it is and we often associate that with starting over, making changes, being better at something,...

I know I keep referring to this being a new year - but it is and we often associ...

DonnaBoll

Administrator•16 days ago

Be the first to reply

just some thoughts I found....

live your life... see all the beauty around you!

DonnaBoll

Administrator•17 days ago

Be the first to reply

Wednesday's Word

First of all, Happy New Year to all of you. I sincerely wish health and peace for you in 2025. Resolution - I...

First of all, Happy New Year to all of you. I sincerely wish health and peace fo...

DonnaBoll

Administrator•17 days ago

7 Replies

Tuesday's Tip

I'm a little under the weather today so my 'tip' is short but I hope somewhat comforting to you..... It's OK to not be OK...... I hope you take...

I'm a little under the weather today so my 'tip' is short but I hope somewhat co...

DonnaBoll

Administrator•17 days ago

12 Replies

It's 'Monday Me'

It's hard to believe that tomorrow we end another year. 'Flying by'surely has a new meaning as I age. I hope each of us can take the time...

It's hard to believe that tomorrow we end another year. 'Flying by'surely has a ...

DonnaBoll

Administrator•19 days ago

4 Replies

Write a post or ask a question

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

slightly raised ALP

Friday Fun Question

Additional Checks?

Thursday's Thoughts

Just so you know...

Specialist change

Wednesday's Word

Taking care of YOU!

Stomach issues

Tuesday's Tip

It's Monday 'Me'

Ursodeoxycholic acid intolerance

pemphigoid

sounds great!

Friday Fun Question

It has come 😁

News on PBC clinical trial progress

Thursday's Thoughts

Wednesday's Word

... another opportunity to learn

Tuesday's Tip

GP update

It's 'Monday Me'!

Ana & ama positive help

Friday Fun Question

Thursday's Thoughts

just some thoughts I found....

Wednesday's Word

Tuesday's Tip

It's 'Monday Me'

Search posts

Pinned Posts

Latest poll

Where in the world are you? Please select an option, but feel free to tell us specifically which country you are in, if you would like. No more detail than that, however. Thank you.

Topics

Archive