Tootoot5 hours ago
I have been on urso for almost a year. My alp is still high. 225. Is this normal?
Really sore pain
BabyK16 hours ago
I'm in severe pain right now. On right hand side. Second time today. Is this a pbc thing?
5 Replies1 Like
Happy with first follow up labs
Sona_akb2 days agoPOPULAR
Just wanted to share my first follow up labs, enzymes are going down after 2 months on urso.
AST was 80, now is 50
ALT was 100, no...
33 Replies8 Likes
Mrsfancypants2 days ago
Hi. Has anyone experienced problems with chemists getting your urso prescription? I have about 4 times now , it makes you anxious worrying i...
9 Replies1 Like
Vespa273 days ago
Hi does anyone suffer with thirst....I am really thirsty, and been like this for a few days now x
11 Replies1 Like
Kidney issues to do with PBC?
Mariontp3 days ago
Hi all. I’ve had a recent blood test, having been tired over the holiday period. My thyroid medication seems a bit off (I also have under ac...
The norm lol
Vespa274 days ago
Well woke up this morning...and its another normal day in tbe world of AIH PBC. My joints hurt especially my hip and hands, and I still ha...
15 Replies1 Like
2bear4 days ago
curious anyone in the New York ,Queens,nassau area
Be the first to reply
I just received this and thought it was very intresting
Haking4 days ago
arugula health benefits
Green leafy vegetables have been identified as a viable “new treatment” for fatty liver disease due ...
5 Replies2 Likes
Does it matter what time of the day I take my medication?
Gilz17024 days ago
I’m on urso and ocaliva. I started a year ago for not responding to urso. In the beginning I gradually increased ocaliva dose and had no...
Rottiemommy4 days ago
I know this is a touchy subject but I have a question. A friend of mine who has a medical marijuana card due to cancer shared on...
Realtor15 days ago
Anyone in the Phila, Trenton, Bucjs County area and loves their medical team?
mjk985 days ago
I have PBC with overlap of AIH but I also have high ESR and CRP I think I may have Lupus I have a lot of the symptoms listed anyone have Lup...
Does anyone know how to interpret those results?
No alcohol/ low alcohol
aljosu6 days ago
Just wondering is it ok to drink zero alcohol/ low alcohol drinks I.e 0.5 %. Since been diagnosed almost a year ago I have steered clear of ...
PBC Stage 0, no medication
Beatris036 days agoPOPULAR
Hello again! Another question for you since you're ever so helpful Is there anyone who has been diagnosed with PBC and it's really ea...
24 Replies1 Like
App version 2 is coming!!
PBCRobert6 days ago
And it is going to be awesome!!!!!!
So, how do you get it? Make sure you are registered with the PBC Foundation. Both regist...
6 Replies12 Likes
Experiences of Ocaliva
Hils676 days agoPOPULAR
What’s your experience of being put on Ocaliva? My Gastro is considering putting me on Ocaliva as the Urso doesn’t seem to be wo...
20 Replies1 Like
PBCRobert7 days agoPOPULAR
I am wondering if you can help us. We are asking you what tests you have that are common, aside from the obvious PBC ones.
So an exa...
Travel insurance (I'm in UK)
Beatris037 days ago
Hello everyone! I hope you're all well. I haven't been on here for a while, I needed time to accept everything, struggled with panick attack...
Vespa277 days ago
I went to see my consultant today. Prepared all my questions that I wanted answering. My appointment was 9.30, I was out for 9.45....he di...
Jess53778 days agoPOPULAR
Why is ursidiol so expensive? With my insurance a 30 day supply is 76.00 and a 90 day supply is 106.00. Is that what you all pay? I have not...
Urso not working?
lilygrower9 days ago
I'm newly diagnosed with PBC just a little over 2 months ago. I've had elevated liver enzymes (alk phos) for several months. I star...
7 Replies1 Like
ALP levels at diagnosis
Pamcakes7189 days agoPOPULAR
Hi - I’m being monitored on suspicion of PBC. I’m curious for those that were diagnosed at an early stage, how elevated was your ALP? Mine c...
Anyone experiencing blepharitis with PBC?
smokylake9 days ago
I know dry eyes are a symptom, but blepharitis is a more serious consequence. Does anyone have any suggestions on how to treat it and preve...
Prettyeyes799 days ago
Hi everyone! Hope everyone had a great new year
Does anyone have yellow eyes and jaundice to the skin with pcb? If you do did you take or do ...
Vespa279 days ago
Hi can anyone tell me if a fibroscan is the same as an ultrasound, and is it better than an ultrasound. Thanks
Pain left hand side
Shashwoo10 days ago
I have read people who get pain the the right hand side of their body however mine is left hand side, just to the left and around the...
Elevated ana, ama and alt
Sachin123411 days ago
This is my stat results after my alt went 94 from 50...my ana and ama titter are higher than previous 4 years ago..
My alt went down to 89 an...
Vespa2712 days ago
Hi another question as I am rather fed up with cramp.....feet legs hands.....sometimes from my big toe up to my groin and my hands, wrists ...
Start a Community