Reflux and upper right "liver" pain?
NotorDJPan hour ago
Hey all! I've been having more liver pain than normal with my PBC, mainly because I've been sick with sinusitis and fever and I've had to ...
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exhaused and irritable
happy05077 hours ago
I have noticed since being diagnosed with PBC that I have much less patience and am much more irritable. Has anyone else experienced this?
5 Replies1 Like
Please tell them to find cure for autoimmune diseases
Evaibrahim609 hours ago
I feel like I have been kept in the dark for too long about my autoimmune conditions. I wish a cure should be found sooner. I don’t like my ...
1 Reply1 Like
Hit a wall
tessiecat2 days ago
Hello I’ve got pbc in my 3rd year on urso I’ve been under a lot of stress last 3 months work full time looking after sick mother whose now g...
6 Replies1 Like
Alternative approach to PBC
M_rose2 days ago
Hi all I've been diagnosed with PBC and have been taKing 1000th Ursodeoxycholic per day. Dry mouth in particular driving me crazy. Just wond...
janine5412 days agoPOPULAR
Does any body struggle with really bad feet pain. And struggle to walk on them in a morning
24 Replies2 Likes
angel743 days ago
Hi all, started on azathiropine as being treated ow for AIH as well as PBC . Has anyone who is in similar situation ?my question is .. if o...
11 Replies1 Like
LorraineLouise3 days ago
Has anyone ever tried a bile extract along with the Urso?
I was told by someone that they were able to bring their labs to normal and eventua...
17 Replies1 Like
My Liver Biopsy
Ellyne3 days ago
I have been diagnosed with PBC and started taking Urso 300mg 3 times a day. My question is how do I know for sure if it is PBC? My ...
12 Replies2 Likes
Allergies to URSO. Help What can I do?
Sdone3 days ago
Dilemma, what can I do if I am allergic to treatment of PBC. The pills cotain sodium lauryl sulfate a big allergen for me. What other meds s...
4 Replies1 Like
Urso and weight gain
pjfort3 days ago
I was diagnosed with PBS in Dec of 17. I have been followed for years due to my LFT's being extremely high and was just told it was fatty l...
7 Replies1 Like
Pamela44753 days ago
Is stevia ok to use? The organic plant sweetener
Right rib in pain
Hidden4 days ago
I've been having pain on the right side of my hip. I thought I just bruised it, but yesterday the bottom of my spin and the left side of my...
cutt45525 days ago
ok, need help. I have found that there is no other medication for the pbc. my husband was diagnosed with it a few years back. we have bee...
8 Replies2 Likes
Correlation between PBC and Crohn’s or Ulcerative Colitis
GhostHunter5 days ago
So I finally had my liver biopsy and it would appear I am at the end of Stage 2 PBC. As my immune system is compromised and I have been diag...
Bobbiesitzman6 days agoPOPULAR
Just read the fizzy drink post, intresting. Is it also true we can't eat shellfish? I thought that was only if you had hemochromatosis?
43 Replies1 Like
Hello everyone longtime 🙏
Sachin12346 days ago
I’m moving to Chantilly Virginia so bye to Kentucky after 16 years 😔🤗..
So I need a help from pbcer living around that area for good liver...
9 Replies2 Likes
Pamela44756 days agoPOPULAR
Tell me why we need to avoid fizzy drinks? I’ve seen it but did not understand
28 Replies1 Like
PBC Gallbladder removed
Seybeaute7 days ago
I am new to this site and truly appreciate reading all of your questions and all of the support you give one another . I was diagnosed...
Hep B vaccination reaction
kp12347 days ago
Had the series of 3 Hep B vaccinations in the 1990's without any problems. After my PBC diagnosis I was told to re-do the series (no immun...
janine5417 days ago
Hi all hope everybody is well. Has anybody come off urasal and felt better
Urso for life?
54227 days ago
Hi i've just had a diagnosis of pcb today after high protein levels, im going to take urso to bring them back down, once you start taking u...
10 Replies1 Like
Difference in reference range for Mayo Clinic vs other labs?
alexsmith_19848 days ago
Does anybody know why Mayo Clinic puts the reference range for Mitochondrial (M2) antibodies at different numbers than other laboratories?
KevinHall10_8 days ago
My stomach feels so bloated, only in stage two, Just feels hard and miserable. I am not constipated. My back has been hurting all wkend. Has...
Wingding9 days ago
I’m now 66, so well through the menopause but still experience incessant night sweats and spend the night throwing my duvet off, then...
19 Replies6 Likes
Grannacat9 days agoPOPULAR
I was diagnosed with PBC in 2015. I am taking 2 Ursodiol 250 mg twice each day. I was diagnosed by liver biopsy. I see a gastroenterologis...
26 Replies1 Like
Jennyhadenough10 days ago
I just seen my biopsy from Mayo Clinic. It is 10 months old.
It says that two of eight portal tracts show loss of bile ducts and four portal...
Louisethew10 days ago
Finally got to see hep dr for liver biopsy results , it confirmed pbc but also found autoimmune hepatitis and signs of fibrosis. Dr has uppe...
GGT AND ALK PHOS INCREASING
Gwelos10 days ago
I had an ablation in mid January and was then put on a beta blocker plus flecanide and zarelto. My LFT's 10 days later had gone up. For the...
Baja12311 days ago
Had a guided liver biopsy at Scripps Memorial La Jolla 2/7/18. Absolutely 0 pain, during or after.
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