Posts - PBC Foundation | HealthUnlocked

PBC Foundation

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All posts for April 2021

Anyone with PBC experience pain under right rib?

Hi all, Just wondering if anyone with PBC experienced pain under right rib as a symptom when diagnosed?

Hi all, Just wondering if anyone with PBC experienced pain under right rib as a ...

Lorelle09

•4 years ago

13 Replies

Heterogeneous changes on liver

What are the implications and what happens when the liver has heterogeneous changes on ultrasound despite taking Urdu and fenofibrate.

What are the implications and what happens when the liver has heterogeneous cha...

Italy2019

•4 years ago

5 Replies

Second opinion I don’t understand

Ha everyone I am new here, since 18 months diagnosed with PBC, just had my second opinion and tested this time AMA and ANA NEG..? Does that mean I don’t have...

Ha everyone I am new here, since 18 months diagnosed with PBC, just had my secon...

Zuske

•4 years ago

8 Replies

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Clinical Trials

I will be talking with my hepatologist next Friday about a clinical trial he will be conducting. All I know is the drug is from France. He says he is very...

I will be talking with my hepatologist next Friday about a clinical trial he wil...

gwillistexas

•4 years ago

16 Replies

Hair loss and PBC

Has anyone suffered hair loss as a result ot PBC or Urso?

MsLibra

•4 years ago

10 Replies

PBC itch

Hi I have PBC for past 4 years, non responder to urso but still take with bezafibrate. My Alk phosphate are always abnormal at around 400-500 and I’m positive...

Hi I have PBC for past 4 years, non responder to urso but still take with bezafi...

Rozm2004

•4 years ago

6 Replies

Itching

I am a male and have had PCB for about 15 years. I have just started to get the itching symptom which is really really irritating - is there a medication or...

I am a male and have had PCB for about 15 years. I have just started to get the ...

Piot

•4 years ago

8 Replies

Lichen Planus

My Dr used this word today and prescribed medications. So far twice my pharmacy wouldn’t refill a prescription for me without Dr authorization. She said it...

My Dr used this word today and prescribed medications. So far twice my pharmacy...

Jennyhadenough

•4 years ago

14 Replies

Serious pain in last 24 hours should i worry or wait till it passes

hi all, me again, about 24 hours ago, i started with some pain in my back and liver again which i wasnt too worried about as the norm , but last night i was...

hi all, me again, about 24 hours ago, i started with some pain in my back and l...

Jennied66

•4 years ago

6 Replies

Covid vaccine and PBC

Has anyone’s PBC become worse after the Covid vaccine?

SSMPCW123

•4 years ago

11 Replies

Side effects of Ursofalk

I’ve been recently diagnosed with PBC after positive AMA and liver biopsy. My LFT’s are all in normal range except slightly elevated GGT. I started on 500mg of...

I’ve been recently diagnosed with PBC after positive AMA and liver biopsy. My LF...

Vic71

•4 years ago

4 Replies

PBC and Autoimmune Hepatitis

Diagnosed with PBC 2012 last biopsy 3yrs ago stage 2. Labs not improving over the years dispite using Urso and Ocaliva combined. Now trying steroids and bone...

Diagnosed with PBC 2012 last biopsy 3yrs ago stage 2. Labs not improving over t...

Q8Cooper

•4 years ago

13 Replies

Ocaliva itching permanent?

Has anyone taken Ocaliva and took it and had gotten worsening itch? If so, when you stopped, did the itch lessen or is that side effect permanent?

Has anyone taken Ocaliva and took it and had gotten worsening itch? If so, when ...

Rimeru

•4 years ago

2 Replies

Is my PBc causing all this or is it the medication ?

hi all, since being diagnosed with the pbc and taking the Urso tablets, my hair is falling out so badly, i have pretty longish hair and is now so thin i dread...

hi all, since being diagnosed with the pbc and taking the Urso tablets, my hair...

Jennied66

•4 years ago

21 Replies

PBC itch and bruising

PBC itch and bruising Itching is the only symptom I get from PBC and sometimes the itching is so intense. At the moment my legs are covered in bruises, some...

PBC itch and bruising Itching is the only symptom I get from PBC and sometimes ...

Cookie712

•4 years ago

5 Replies

Lingering Covid vaccine side-effects

Hi there! I wondered if anyone else with PBC has suffered from long-lasting side effects after their first Covid jab? I had my first jab four weeks ago (Astra...

Hi there! I wondered if anyone else with PBC has suffered from long-lasting side...

AM2016

•4 years ago

3 Replies

Interstitial cystitis

May I ask if anyone has this? I’m just stacking up medical issues. I’m very concerned that this will be my next diagnosis.

May I ask if anyone has this? I’m just stacking up medical issues. I’m very con...

Jennyhadenough

•4 years ago

5 Replies

Worried I have PBC.

I want to apologize in advance if my writing is disjointed, I’m writing this under some stress. If you don’t feel like reading the wall of text, please skip to...

I want to apologize in advance if my writing is disjointed, I’m writing this und...

ChecktheRhime

•4 years ago

13 Replies

New Member of the family

Hi all, My name is Tony and I was diagnosed with PBC (with cirrhosis) 3 years ago. I live in Salisbury UK and keep myself fit having completed 33 years in the...

Hi all, My name is Tony and I was diagnosed with PBC (with cirrhosis) 3 years ag...

Tango52

•4 years ago

6 Replies

PBC itch

I’m told it’s Pruritis that goes with PBC and that the nerves are firing at the bottom layer of skin. No amount of scratching will control it. However, many...

I’m told it’s Pruritis that goes with PBC and that the nerves are firing at the ...

Kearny

•4 years ago

3 Replies

The Itch and goose bumps or shivers

It’s been five years since my diagnosis. Today the itch is severe. I remember sometime ago I mentioned to my Hepatologist that the itch comes with goose...

It’s been five years since my diagnosis. Today the itch is severe. I remember ...

Chumito

•4 years ago

3 Replies

Nervous 😩

Hi dear friends. As the time of regular lab tests getting closer, I feel extremely nervous. I don’t know how to control these feelings. Next week I have to...

Hi dear friends. As the time of regular lab tests getting closer, I feel extreme...

Sona_akb

•4 years ago

51 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for April 2021

Anyone with PBC experience pain under right rib?

Heterogeneous changes on liver

Second opinion I don’t understand

Clinical Trials

Hair loss and PBC

PBC itch

Itching

Lichen Planus

Serious pain in last 24 hours should i worry or wait till it passes

Covid vaccine and PBC

Side effects of Ursofalk

PBC and Autoimmune Hepatitis

Ocaliva itching permanent?

Is my PBc causing all this or is it the medication ?

PBC itch and bruising

Lingering Covid vaccine side-effects

Interstitial cystitis

Worried I have PBC.

New Member of the family

PBC itch

The Itch and goose bumps or shivers

Nervous 😩

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