Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,476 members•8,330 posts

All posts for January 2023

Fribroscan

Hi couple questions had a Fibroscan last week the Doctor that did it at Q.E said result was 13.2 no idea what this means any idea just said no change...

Hi couple questions had a Fibroscan last week the Doctor that did it at Q.E sai...

cavi

•2 years ago

13 Replies

hot hot hot

keep having hot &sweaty moments throughout the day is this normal/ side effect of Urso? Or just plan menopause Any advice appreciated And would also like...

keep having hot &sweaty moments throughout the day is this normal/ side effect o...

Eppy

•2 years ago

4 Replies

No diagnosis yet but AMA+. Any advice?

You are a wonderful group of caring people. I am new here and have learned a lot and found some peace reading your forum. I need help finding proper medical...

You are a wonderful group of caring people. I am new here and have learned a l...

Donti

•2 years ago

16 Replies

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Strontium and ursodiol

Anyone using ursodiol for PBC and using strontium citrate for osteoporosis at the same time?

Anyone using ursodiol for PBC and using strontium citrate for osteoporosis at th...

RachelAnne24

•2 years ago

1 Reply

Enlarged spleen and PBC

HiHas anyone with PBC had an enlarged spleen caused by blood backing up into the spleen, possibly portal hypertension??

HiHas anyone with PBC had an enlarged spleen caused by blood backing up into the...

Beatrice110924

•2 years ago

4 Replies

My Thoughts

I was diagnosed stage 3 four years ago next month. In warm weather, I bike 5-10 miles six days a week and go to the gym. In cooler weather, I do 30 minutes of...

I was diagnosed stage 3 four years ago next month. In warm weather, I bike 5-10 ...

Stub007

•2 years ago

9 Replies

constipation

hey! How do you deal with constipation? I have tried Prunes, Pears, Green smoothies Nothing works for me I am still getting constipated from food and......

hey! How do you deal with constipation? I have tried Prunes, Pears, Green smoo...

Tramezzini

•2 years ago

7 Replies

feeling overwhelmed going to tell my to boys today about my diagnosis 😔

Any tips they are both Adults

Eppy

•2 years ago

5 Replies

Paxlovid

has anyone been prescribed this or taken it with having PBC and being on Urso? It doesn’t look like it conflicts with URSO but I also wonder if it’s safe with...

has anyone been prescribed this or taken it with having PBC and being on Urso? ...

CeeCee101

•2 years ago

5 Replies

Good news for URSO

https://www.cam.ac.uk/stories/UDCA-COVID19

zinchunter

•2 years ago

15 Replies

Raynaud’s syndrome

In the past couple of years this condition is affecting me more and more. I’ve been prescribed Nifedipine - with the option to take 3 times a day but I’m wary...

In the past couple of years this condition is affecting me more and more. I’ve b...

DebatDG9

•2 years ago

2 Replies

Bile extraction from captive bears

I've seen lots of distressing stories on Facebook about caged bears being used for bike extraction.Can anyone reassure me that the Ursooxydeolic tablets...

I've seen lots of distressing stories on Facebook about caged bears being used f...

Wingding

•2 years ago

12 Replies

Hello

PBCCheryll

Administrator•2 years ago

1 Reply

PBC & microbiome

Has anyone had an analysis of their microbiome? What test did you have?

DebatDG9

•2 years ago

6 Replies

can you take antibiotics

hi I’m wondaring if it’s ok too have antibiotics with Pbc I have a throat infection and willl have too see a doctor tomorrow but I’m scared about takeing any...

hi I’m wondaring if it’s ok too have antibiotics with Pbc I have a throat infect...

Lena2011

•2 years ago

11 Replies

ocaliva

I was prescribed it for a short time and my consultant had to seek permission as cost about £10,000 for a year’s supply in the UK. It didn’t work so tried...

I was prescribed it for a short time and my consultant had to seek permission as...

Gioielli5

•2 years ago

5 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2023

Fribroscan

hot hot hot

No diagnosis yet but AMA+. Any advice?

Strontium and ursodiol

Enlarged spleen and PBC

My Thoughts

constipation

feeling overwhelmed going to tell my to boys today about my diagnosis 😔

Paxlovid

Good news for URSO

Raynaud’s syndrome

Bile extraction from captive bears

Hello

PBC & microbiome

can you take antibiotics

ocaliva

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