Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,385 members • 7,989 posts

All posts for December 2020

Happy New Year

As we are spread far and wide some of us will be celebrating our New Year ealier than others so I would like to wish you all A Happy and Healthy New Year....

As we are spread far and wide some of us will be celebrating our New Year ealier...

butterflyEi

•3 years ago

10 Replies

Ibuprofen

Hi I’m in agony with my wisdom tooth and I have been taking ibuprofen the last couple of days to help ? Are you meant to take ibuprofen with pbc I’m currently...

Hi I’m in agony with my wisdom tooth and I have been taking ibuprofen the last c...

Shezza123

•3 years ago

18 Replies

I'm new here...!

Hi everyone, I was diagnosed with PBC in December 2019, aged 27 and to be honest, I don't know much about it. I haven't seen a doctor since about it, no...

Hi everyone, I was diagnosed with PBC in December 2019, aged 27 and to be honest...

Cookie712

•3 years ago

4 Replies

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Excruciating shoulder and arm pain for 8 months now told I have PBC but I’m told it’s not why my arms hurt! ,HELP!!!

For 8 months my arms have been killing me and 5 doctors ruled out many things kept testing now I’m told I have PBC, and they claim there is no relation to my...

For 8 months my arms have been killing me and 5 doctors ruled out many things ke...

Camsarmshurt

•3 years ago

1 Reply

Wieght Loss / Weight Gain

Can a person with PBC, regardless of stage, can we lose weight? Does this condition make it difficultvto lose weight do to the digestion issues?

Can a person with PBC, regardless of stage, can we lose weight? Does this condit...

Elliweim

•3 years ago

12 Replies

Chest pain

does anyone else get nights when you get to bed and have bad chest pain ? Presume it’s something I ate but it’s so uncomfortable and keeps me awake and the...

does anyone else get nights when you get to bed and have bad chest pain ? Presum...

Jnuttall

•3 years ago

7 Replies

ITCH and disillusionment

Hello. I'm in the UK. Waiting on an MRI to diagnose pbc for sure. ITCH is the worse thing. I dont know how people cope. Nothing helps. I'm 60 so relatively...

Hello. I'm in the UK. Waiting on an MRI to diagnose pbc for sure. ITCH is the wo...

geraldine60

•3 years ago

14 Replies

Merry Christmas

Wishing everyone a Merry Christmas/Happy Holiday. 🎅🏻 🎄🍗 🥗 🍰 🎁 🤶🏻

Wishing everyone a Merry Christmas/Happy Holiday. 🎅�...

gwillistexas

•3 years ago

12 Replies

Pbc

Merry christmas xx

janine541

•3 years ago

5 Replies

Feel alone

Lost friends and family. Just wondering how many of you have you have lost friends and some family due to this disease. Iv lost a very close friend because I...

Lost friends and family. Just wondering how many of you have you have lost frien...

kimphoebe

•3 years ago

7 Replies

Sleep and Medication

I've been having problems sleeping through the night which became too much a week ago. The doctor prescribed Melatonin (brand Circadin). 1 x 2mg per night....

I've been having problems sleeping through the night which became too much a wee...

Odieweb

•3 years ago

14 Replies

Cholesteroland PBC.

Never had high cholesterol. Had PBC for at least 8 yrs. Now cholesterol high. What does everyone take? How did it effect you

Never had high cholesterol. Had PBC for at least 8 yrs. Now cholesterol high. Wh...

My-life

•3 years ago

15 Replies

Positive for AMA antibodies?? AMA quantitation level of 100iu/ml.

Hi All, I've just been refered to a specialist after 2 years of repeatedly high levels of ggt and alp as my GP has said it needs to be investigated. I am 35...

Hi All, I've just been refered to a specialist after 2 years of repeatedly high...

kirstm85

•3 years ago

13 Replies

Sleep Study

For those of you that have PBC and are having problems sleeping, have you undergone a sleep study? And if so, what did you find out? Still having issues...

For those of you that have PBC and are having problems sleeping, have you underg...

Camp_Host

•3 years ago

4 Replies

Herbalife and raised readings

Hi I was diagnosed in 2000 and in recent years I have put a lot if weight on due to lifestyle. I decided in june this year that I would lose this excess weight...

Hi I was diagnosed in 2000 and in recent years I have put a lot if weight on due...

Lezley23

•3 years ago

22 Replies

Pbc

Well been for my bloods again hoping for a better result

janine541

•3 years ago

6 Replies

Stomach pain

Hi just wondering if anyone suffers from stomach cramps, upper back pain and feeling sick, mainly in the evening and waking me at night and I keep loosing...

Hi just wondering if anyone suffers from stomach cramps, upper back pain and fee...

SUE42SUSAN

•3 years ago

9 Replies

Oxcarbazapine

Hi I have been given Oxcarbazapine for Trigeminal Neuralgia, it is a med for epileptics, wondering if anyone here has TN? Just feel it can't be doing my liver...

Hi I have been given Oxcarbazapine for Trigeminal Neuralgia, it is a med for epi...

Jaycee

•3 years ago

6 Replies

Autoimmune conditions and Covid vaccine

PBC & ITP and Covid vaccine is it safe for people with autoimmune illnesses?

Eileen-Emily

•3 years ago

22 Replies

Diagnosis wait

Hello, wonder if anyone in Uk has difficulty with waiting and time spent trying to get diagnosed. I had abnormal LFTs for a couple months, fatigue,itching,...

Hello, wonder if anyone in Uk has difficulty with waiting and time spent trying ...

geraldine60

•3 years ago

4 Replies

Mirtazapine

I have been prescribed mirtazapine 15mg for anxiety.i have pbc. Have any of the followers taken this drug with pbc.just worried about the side effects with...

I have been prescribed mirtazapine 15mg for anxiety.i have pbc. Have any of the ...

Ballymahon2

•3 years ago

2 Replies

Pbc

Hi everybody. Feel a bit of a mona at the moment just carnt seem to cure things easy . My itch has been controlled with Riferden but I'm struggling with pain...

Hi everybody. Feel a bit of a mona at the moment just carnt seem to cure things ...

janine541

•3 years ago

13 Replies

PBC and Bio-Identical hormones

Does anyone take bio identical hormones? What is the relationship of estrogen and PBC. Is it ok to take them if you have PBC?

Does anyone take bio identical hormones? What is the relationship of estrogen a...

Tootoot

•3 years ago

6 Replies

Pbc and blood test results

Hi i am trying to understand my blood test results I know I need to see what my alt is and alkaline phosphate is but don’t know what a normal result is to...

Hi i am trying to understand my blood test results I know I need to see what my ...

Shezza123

•3 years ago

8 Replies

Chrones/Colitis and PBC

Does anyone in here have Chrones/Colitis and taking Entivyo develop PBC? I’ve never had my liver numbers change until very recently. Curious if anyone else...

Does anyone in here have Chrones/Colitis and taking Entivyo develop PBC? I’ve ne...

FullSend

•3 years ago

1 Reply

PBC & the Covid-19 Vaccine

Waiting to hear back from my doctor. As an Educator on the Reservation, we may be getting the vaccine. I heard the having PBC you shouldn't take the vaccine?

Waiting to hear back from my doctor. As an Educator on the Reservation, we may b...

MarisaD

•3 years ago

43 Replies

Itching!

I was diagnosed with PBC about 7 years ago & my levels have been stable for 2 years now. I take urso. I have been experiencing itching but wasn’t sure if it...

I was diagnosed with PBC about 7 years ago & my levels have been stable for 2 ye...

astalpbili10

•3 years ago

3 Replies

Pbc

Had my blood results yesterday as I have to have them every 2 week due to Riferdan My Alp is 219 And my Alt is 243. Because they have been higher before...

Had my blood results yesterday as I have to have them every 2 week due to Rifer...

janine541

•3 years ago

15 Replies

Itching

Hi again I’m so agitated tonight again I’ve covered myself in cream to try stop itch but driving me mental just can’t stop itching and as usual covering...

Hi again I’m so agitated tonight again I’ve covered myself in cream to try stop...

Shezza123

•3 years ago

14 Replies

Has anyone had to take early retirement from work due to the fatigue with PBC ?

I work 3 days a week and am finding it increasingly difficult to continue

fudge13

•3 years ago

20 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for December 2020

Happy New Year

Ibuprofen

I'm new here...!

Excruciating shoulder and arm pain for 8 months now told I have PBC but I’m told it’s not why my arms hurt! ,HELP!!!

Wieght Loss / Weight Gain

Chest pain

ITCH and disillusionment

Merry Christmas

Pbc

Feel alone

Sleep and Medication

Cholesteroland PBC.

Positive for AMA antibodies?? AMA quantitation level of 100iu/ml.

Sleep Study

Herbalife and raised readings

Pbc

Stomach pain

Oxcarbazapine

Autoimmune conditions and Covid vaccine

Diagnosis wait

Mirtazapine

Pbc

PBC and Bio-Identical hormones

Pbc and blood test results

Chrones/Colitis and PBC

PBC & the Covid-19 Vaccine

Itching!

Pbc

Itching

Has anyone had to take early retirement from work due to the fatigue with PBC ?

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