Posts - PBC Foundation | HealthUnlocked

Administrator•14 hours ago

Growing up, what was a memorable family vacation for you?

Friday's Fun Question

Administrator•20 hours ago

I'm pretty sure I've shared some of these thoughts before but I just want to say it again..... You are brave!! Don't ever underestimate...

Thursday's Thoughts

I'm pretty sure I've shared some of these thoughts before but I just want to say...

Administrator•2 days ago

pancreas This is the gland that makes the most digestive enzymes. They drain thru the pancreatic duct which joins the bile ducts...

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Wednesday's Word

pancreas This is the gland that makes the most digestive enzymes. They drain th...

Administrator•3 days ago

This is a reminder really to always make sure you are taking the correct dose of Urso. The dosage is 13-15mgs/kg of your body weight. It...

Tuesday's Tip

This is a reminder really to always make sure you are taking the correct dose of...

Ok folks... what have you done for yourself over the past few weeks? I hope you can think of even just one thing. We all need to take care...

Administrator•4 days ago

6 Replies

It's 'Monday Me'!

Ok folks... what have you done for yourself over the past few weeks? I hope you ...

Administrator•5 days ago

morning So I’m 56 /57 this year . I have pbc - aih . The main issue I have is the fatigue . I work 4 days a week in a SEN secondary school . Last year I...

Early retirement

morning So I’m 56 /57 this year . I have pbc - aih . The main issue I have is ...

She-66

•6 days ago

9 Replies

'Thank you' researchers!

https://medicine.washu.edu/news/researchers-find-missing-link-in-autoimmune-disorder/...

https://medicine.washu.edu/news/researchers-find-missing-link-in-autoimmune-diso...

Administrator•8 days ago

* Q&A update ** Don't forget that, from Thursday 27 March, we will be starting to make changes to the structure and delivery of the weekly Q&A sessions....

take note!!!

* Q&A update ** Don't forget that, from Thursday 27 March, we will be starting ...

Administrator•8 days ago

What are you looking forward to in the coming months? For me, I am celebrating having had my liver transplant for 20 years on April 13th. I'm...

Friday Fun Question

What are you looking forward to in the coming months? For me, I am celebrating ...

Hello everybody,I have learned this week that I have tested positive to Scleroderma. The neuroligist is refering me to a rheumatologist. I am anguished because...

Administrator•8 days ago

7 Replies

PBC and Scleroderma

Hello everybody,I have learned this week that I have tested positive to Sclerode...

Ancolie

•8 days ago

15 Replies

Seladelpar Gilead availability in Ireland?

It looks like Seladelpar was approved by the European Medicines Agency (EMA) in February 2025! Since I haven't had a good response to URSO, this approval is...

It looks like Seladelpar was approved by the European Medicines Agency (EMA) in ...

GerryPBC

•8 days ago

2 Replies

Thursday's Thoughts

Hoping that the weather will soon catch up with the calendar date, I'm convinced Spring will arrive. As you know I do like to garden - weeding and hoeing...

Hoping that the weather will soon catch up with the calendar date, I'm convinced...

Administrator•9 days ago

I just wanted to share about Livdelzi. My GP ran several labs the 13th of March (after covid), to make sure electrolytes, etc. were in balance. He included a...

Livdelzi

I just wanted to share about Livdelzi. My GP ran several labs the 13th of March ...

gwillistexas

•9 days ago

30 Replies

Wednesday's Word

platelets These are very tiny fragments of blood cells that are responsible for our blood clotting. In PBC, they are...

platelets These are very tiny fragments of blood cells that are responsible for...

Administrator•10 days ago

This week's Q&A will be at 5am UK time / 4pm Sydney time on Thursday with Dr Martin Weltman answering your questions. If you have any questions, please submit...

take note....

This week's Q&A will be at 5am UK time / 4pm Sydney time on Thursday with Dr Mar...

Administrator•10 days ago

Last week's Q&A with Prof David Jones and Mo is available to watch on YouTube: https://youtu.be/jGYWAAA7ej8 Additionally, there are a couple of new mini...

watch if you can....

Last week's Q&A with Prof David Jones and Mo is available to watch on YouTube: h...

Administrator•11 days ago

I know all of you know that yesterday was 'Monday Me'. I was surely taking care of myself in every possible way I could. I was in an ER from 6am until...

my absence...

I know all of you know that yesterday was 'Monday Me'. I was surely taking care...

What's one of the first things you look forward to with the warmer weather coming? for me it's weeding and maintaining my perennials...

Administrator•11 days ago

13 Replies

Friday Fun Question

What's one of the first things you look forward to with the warmer weather comin...

I have had PBC over 10 years, remain pretty healthy and almost asymptomatic except for light itch and that comes and goes. Since diagnosis I've paid for...

Administrator•15 days ago

7 Replies

Do I need special medical holiday insurance?

I have had PBC over 10 years, remain pretty healthy and almost asymptomatic exce...

KatherineM_PBC

•16 days ago

7 Replies

Thursday's Thoughts

I know we've talked about listening to your body a few other times lately. Sorry for this last post... I am still dealing with the...

I know we've talked about listening to your body a few other times lately. Sorr...

Administrator•16 days ago

Sorry for long post....... Had PBC for around 15yrs, dont see a Liver Specalist just a Rheumatologist for Systemic Scleroderma. Over...

PBC Symptons

Sorry for long post....... Had PBC for around 15yrs, don...

bev5779

•16 days ago

25 Replies

Wednesday's Word

bile This is the drainage fluid from the liver. It is made from the hepatocytes (liver cells) and the altered by the cells of the...

bile This is the drainage fluid from the liver. It is made from the hepatocytes...

Administrator•17 days ago

We often read on the internet that there is an association with PBC, heart disease, and cancer. There is, of course liver cancer, but there is no additional...

Tuesday's Tips

We often read on the internet that there is an association with PBC, heart disea...

This last few months since I was diagnosed with PBC were incredibly hard, filled with uncertainty and fear, but I want to share some positive results from...

Administrator•18 days ago

6 Replies

Urso :)

This last few months since I was diagnosed with PBC were incredibly hard, fille...

Juhainar

•19 days ago

8 Replies

It's Monday Me!

In several of the posts below on the fatigue that often accompanies PBC, I see how some of you do take care of yourselves by just resting when you feel...

In several of the posts below on the fatigue that often accompanies PBC, I see h...

Administrator•19 days ago

Got up this am nearly fell asleep before taking dogs out after come home kept myself going went down the allotment 20 min work just putting in some rasberrie...

Aches and pains

Got up this am nearly fell asleep before taking dogs out after come home kept my...

Purdy2017

•20 days ago

13 Replies

You are strong...

Don't ever think you aren't a person who can do great things..one step at a time.

Don't ever think you aren't a person who can do great things..one step at a time...

Administrator•21 days ago

I’m feeling a bit confused! My dr wants to discuss my lipid levels, but my cholesterol is only 4.7 and within range. I know that there can be problems with PBC...

Lipid levels

I’m feeling a bit confused! My dr wants to discuss my lipid levels, but my chole...

MissusTee

•21 days ago

9 Replies

Friday Fun Question

What do you look forward to the most now that Spring is coming?

Administrator•22 days ago