Posts - PBC Foundation | HealthUnlocked

PBC Foundation

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All posts for August 2013

Methotrexate combined with Ursofalk seems to be improving bilirubin levels and other blood tests.

After being prescribed methotrexate my blood tests have progressively improved. Bilirubin has now dropped to 26 (it was at 76 at its highest point) and the...

After being prescribed methotrexate my blood tests have progressively improved. ...

skippydownunder

•11 years ago

8 Replies

Cataracts

I have just been diagnosed with cataracts and am scheduled to have an operation on 17th September. Could there be any link to PBC with this condition?...

I have just been diagnosed with cataracts and am scheduled to have an operation ...

MoPo

•11 years ago

6 Replies

The PBC Foundation ‏@PBCFoundation 8m Have you voted for our Brew with a View challenge? Voting closes tomorrow! Please help us win £5,000,

Please all vote it will really help us all x:)

Lisacj

•11 years ago

7 Replies

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What natural remedies such as milk thistle, celery seed , licorice etc are we permited to take with pbc ?

Maybe a light liver detox of some sort. Any ideas or just stick to the prescribed medicine . I have the crossover pbc -aih , diagnosed 2009 an taking ursosan...

Maybe a light liver detox of some sort. Any ideas or just stick to the prescribe...

Pils

•11 years ago

4 Replies

Does anyone suffer with migraine attacks in relation to their PBC?

nursenicky13

•11 years ago

7 Replies

Itching

Hi today i have come up in what looks like bites, I have 3 of them and they really itch, could like be linked to my PBC?

Hi today i have come up in what looks like bites, I have 3 of them and they real...

Gemma01

•11 years ago

9 Replies

Does anyone think I should talk to my union representative? My boss is trying to make me use my leave instead of increasing my sickness

record despite having an understanding that I was given a diagnosis of PBC earlier this year. I have a meeting tomorrow with human resources & him. I am...

record despite having an understanding that I was given a diagnosis of PBC earli...

nursenicky13

•11 years ago

13 Replies

Has anyone on her had Plasmopheresis for the dreaded itch?

My consultant mentioned this to me about a year or so ago when I had a horrendous yr with the itch. However to cut a long story short the itch settled and I...

My consultant mentioned this to me about a year or so ago when I had a horrendou...

littlemo

•11 years ago

2 Replies

Right sided pain fatigue. GI specialist confused.

Just went to see my GI specialist today. For the last month I have had bad hip pain (mostly hip but sore other joints too), muscle pain and severe fatigue, and...

Just went to see my GI specialist today. For the last month I have had bad hip p...

engasser

•11 years ago

19 Replies

Are hot sweats normal for pbc

It all gets so much worse at night, the sweats are getting more often

sandgroundergirl

•11 years ago

15 Replies

Does anyone on here think that maybe the dosage per kilo for Urso is wrong and needs to be reviewed by those who do that? I do.

Just been reading through few posts of people who have itch like myself and who when had doses increased found the itching increased. I am no longer on Urso...

Just been reading through few posts of people who have itch like myself and who ...

littlemo

•11 years ago

18 Replies

How to stop the god awful " ITCH"

My itch was unbearable - I have now been under the RPA transplant ward for 10 months. I went through all the workups for placement on the list, but couldn't...

My itch was unbearable - I have now been under the RPA transplant ward for 10 m...

SNOOZY

•11 years ago

10 Replies

Newly diagnosed

& have found this forum so useful since I was diagnosed with PBC at the beginning of July. So how did my diagnosis come about? A routine blood test about 8yrs...

& have found this forum so useful since I was diagnosed with PBC at the beginnin...

vickyRhodes

•11 years ago

18 Replies

Hi, this is my first time on here. The question i want to ask is if the urso medication is not proven to work why do i have to take it?

Gemma01

•11 years ago

29 Replies

I have an excellent gastroenterologist but should I be asking to be referred to a liver specialist?

I'm going to see my gastro in a couple of weeks for the first time post biopsy - I got my diagnosis by letter. Should I be asking to be referred to a liver...

I'm going to see my gastro in a couple of weeks for the first time post biopsy -...

Goose60

•11 years ago

13 Replies

Has anyone been through the liver transplant assessment and can let me know what it entails etc. Thanks

Would like to know what is really important in order to pass and also anyone who has had the transplant and can say what life is like afterwards.

Would like to know what is really important in order to pass and also anyone who...

MrG5

•11 years ago

22 Replies

Hi, Am wondering about this urso as I"m from nz and have been on ursosan 300 for the last 2 years. It is manufactured in czech republic.

Is there there any problem with this medication

Pils

•11 years ago

2 Replies

Hi everyone, my first time on here, so am hoping my fellow pbc suffers will understand me.Does anyone feel like they have hot legs at night

Sometimes feels like they are going to pop, then they ache, this is then followed by the dreaded itching everywhere.I feel like am going mad !!! Only...

Sometimes feels like they are going to pop, then they ache, this is then follow...

fluffpuff64

•11 years ago

7 Replies

Chronic fatigue!!

Diagnosed at Xmas, and other than a small itch and fatigue not too bad. Now though the fatigue is over whelming,I go to work and sleep,I cant concentrate, cant...

Diagnosed at Xmas, and other than a small itch and fatigue not too bad. Now thou...

Lisacj

•11 years ago

10 Replies

Advice on winning a ESA Tribunal this Friday, please,,as I'm fretting loads!!!!!

Having been off work and left my employment since October 12, I have been claiming ESA while I have been on it, I have now had a Full Knee Replacement so now...

Having been off work and left my employment since October 12, I have been claimi...

Franklin_38

•11 years ago

1 Reply

Where on this site do I find the blogs for people pre and post transplants? I know I've read them Before but I can't find them! Help!??

Perkywerky76

•11 years ago

1 Reply

Itching at it's worst !!!

I am having the worst itching I have ever had just didn't think it could get me in such a state i just don't stop scratching my skin is so sore and bleeding,i...

I am having the worst itching I have ever had just didn't think it could get me ...

cavi

•11 years ago

9 Replies

Urso - once again!!

If these urso 300 mg have been withdrawn suddenly - I hope that does not mean that there was a problem with what was in the ones they have been issuing to us?

If these urso 300 mg have been withdrawn suddenly - I hope that does not mean th...

Shirleygreen

•11 years ago

4 Replies

Liver transplant at Leeds1

Dear PBC people, I have been informed that I am in need of a transplant as my liver is deteriorating quite fast. My albumin levels are at present. The weird...

Dear PBC people, I have been informed that I am in need of a transplant as my li...

florrie505

•11 years ago

21 Replies

Benefit of a gluten-free diet for liver health regardless of gluten intolerance?

I just read the book, 'wheat belly' by William Davis. He talks about gluten being the source of many autoimmune conditions, even in the absence of gluten...

I just read the book, 'wheat belly' by William Davis. He talks about gluten bein...

123pbc

•11 years ago

13 Replies

Bloating and Things

Saw my consultant yesterday bloods ok (don't think I've every been ok) ultrasound ok I do have gall stones but he said they are better left alone. He did say...

Saw my consultant yesterday bloods ok (don't think I've every been ok) ultrasoun...

Jude1

•11 years ago

3 Replies

Urso difficulties obtaining

I have just been to the chemist to pick up my urso and have been told there is difficulties in supply. I have been off line for a bit so dont know if there...

I have just been to the chemist to pick up my urso and have been told there is d...

Shirleygreen

•11 years ago

14 Replies

BIOPSY DONE

Hi Every one Have had the Biopsy done. Wasn't as bad as I thought it would be but slightly uncomfortable. I think the size of the needle was enough for me...

Hi Every one Have had the Biopsy done. Wasn't as bad as I thought it would be bu...

Disy

•11 years ago

7 Replies

MY URSO STOPPED WORKING :-(

I found out I have PBC about 5 months ago. I started on the URSO and the first month I didn't notice any difference but the end of the second month to the...

I found out I have PBC about 5 months ago. I started on the URSO and the first m...

engasser

•11 years ago

8 Replies

45 yrs old next week & today told I have PBC. Are there any restrictions to diet & taking medications. My doctor said to lead normal live.

snowqueen13

•11 years ago

14 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for August 2013

Methotrexate combined with Ursofalk seems to be improving bilirubin levels and other blood tests.

Cataracts

The PBC Foundation ‏@PBCFoundation 8m Have you voted for our Brew with a View challenge? Voting closes tomorrow! Please help us win £5,000,

What natural remedies such as milk thistle, celery seed , licorice etc are we permited to take with pbc ?

Does anyone suffer with migraine attacks in relation to their PBC?

Itching

Does anyone think I should talk to my union representative? My boss is trying to make me use my leave instead of increasing my sickness

Has anyone on her had Plasmopheresis for the dreaded itch?

Right sided pain fatigue. GI specialist confused.

Are hot sweats normal for pbc

Does anyone on here think that maybe the dosage per kilo for Urso is wrong and needs to be reviewed by those who do that? I do.

How to stop the god awful " ITCH"

Newly diagnosed

Hi, this is my first time on here. The question i want to ask is if the urso medication is not proven to work why do i have to take it?

I have an excellent gastroenterologist but should I be asking to be referred to a liver specialist?

Has anyone been through the liver transplant assessment and can let me know what it entails etc. Thanks

Hi, Am wondering about this urso as I"m from nz and have been on ursosan 300 for the last 2 years. It is manufactured in czech republic.

Hi everyone, my first time on here, so am hoping my fellow pbc suffers will understand me.Does anyone feel like they have hot legs at night

Chronic fatigue!!

Advice on winning a ESA Tribunal this Friday, please,,as I'm fretting loads!!!!!

Where on this site do I find the blogs for people pre and post transplants? I know I've read them Before but I can't find them! Help!??

Itching at it's worst !!!

Urso - once again!!

Liver transplant at Leeds1

Benefit of a gluten-free diet for liver health regardless of gluten intolerance?

Bloating and Things

Urso difficulties obtaining

BIOPSY DONE

MY URSO STOPPED WORKING :-(

45 yrs old next week & today told I have PBC. Are there any restrictions to diet & taking medications. My doctor said to lead normal live.

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