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PBC Foundation

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All posts for April 2019

Little White Bumps on Chest, Shoulders, Back, Arms, Jaw etc with PBC?

Hi Everyone, I was diagnosed not quite a year and a half ago. I have been taking Urso since then and I'm currently waiting for my follow up appointment to...

Hi Everyone, I was diagnosed not quite a year and a half ago. I have been taki...

FairyFae

•6 years ago

6 Replies

Hives everywhere

I have the worst case of hives I have ever had. Literally, entire parts of my body (stomach, feet are red, swollen and ITCHY! I went to an allergist and one...

I have the worst case of hives I have ever had. Literally, entire parts of my b...

Itsmecork

•6 years ago

22 Replies

Lisinopril

Does anyone have a puffy face from takin lisinopril?

teyris

•6 years ago

4 Replies

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Different AMA results

Hello everybody, may be someone had similar results like me. My GGT and ALP hight elevated, ALT and AST just a bit above the level. Fibroscan, US, MRI are...

Hello everybody, may be someone had similar results like me. My GGT and ALP hig...

Belgium22

•6 years ago

8 Replies

Just need to understand

I was diagnosed last year and told I had had it for seven years I had been in hospital when I came out my GP phoned me at home and told me what medication I...

I was diagnosed last year and told I had had it for seven years I had been in h...

Hntina

•6 years ago

4 Replies

Newly diagnosed

I just got my biopsy results back. Positive for PBC with and overlay of AIH. I am at stage 1 but have had symptoms for years without a diagnoses. I am 49 and...

I just got my biopsy results back. Positive for PBC with and overlay of AIH. I a...

Sleopold

•6 years ago

31 Replies

Dry eyes 👀

Hi my friends. I want to ask if anybody experienced severe dry eye and what solution worked properly? Dry eyes is the only symptom I have. I’ve tried many of...

Hi my friends. I want to ask if anybody experienced severe dry eye and what sol...

Sona_akb

•6 years ago

58 Replies

Cap score

What is your cap score in your fibroscan? Mine is over 330

Jennyhadenough

•6 years ago

4 Replies

PBC and living kidney donor possibility

I offered to be a living kidney donor for my sister who is in end-stage renal failure. Determined to be perfect match, underwent ALL tests and cleared until...

I offered to be a living kidney donor for my sister who is in end-stage renal fa...

liverb

•6 years ago

2 Replies

Itching

I haven't been on this site for some time, so please forgive me if you've heard this all before. I was diagnosed in 2011 as having PBC, but I was itching...

I haven't been on this site for some time, so please forgive me if you've heard ...

Pat_H

•6 years ago

8 Replies

Alcohol

Can I just ask if anyone actually still drinks alcohol, since diagnosis??

Hidden

•6 years ago

21 Replies

Itchy Scalp Please help

Hi all, I have for the past 2 months experienced a lot of itch in my hair especially at the back of my head. And whenever I lay my head on the pillow it...

Hi all, I have for the past 2 months experienced a lot of itch in my hair espec...

316xplot

•6 years ago

25 Replies

ALT

My ALT is 250 again and it seems to do this every couple of weeks. I can now pin point when this is going on. Nsusea, no appetite, extremely tired, general...

My ALT is 250 again and it seems to do this every couple of weeks. I can now pi...

Vespa27

•6 years ago

6 Replies

Urso causing hairloss! Any treatment?

I have been diagnosed by Pbc about three years ago lots hairloss which worries me so much. Are there sny treatments that can stop the hairloss?

I have been diagnosed by Pbc about three years ago lots hairloss which worries m...

oranos

•6 years ago

9 Replies

PBC levels

Recently diagnosed with PBC negative which I don’t understand and a lot of people on here have been talking about levels etc. How come everyone seems to have...

Recently diagnosed with PBC negative which I don’t understand and a lot of peopl...

deborahfrog

•6 years ago

13 Replies

If You Could Go Back in Time and Tell Yourself Something When You Were First Diagnosed with PBC, What Would It Be?

I'm 41. I only found this site a week ago, so this is all very new to me. My diagnosis is early for me, no scarring and my levels/function are all really well....

I'm 41. I only found this site a week ago, so this is all very new to me. My dia...

Someonewhowants2know

•6 years ago

16 Replies

PBC or AIH

Good morning everyone. I have AIH PBC overlap. Today I feel completely exhausted, and I have for the last few days to be fair. I am walking much slower than...

Good morning everyone. I have AIH PBC overlap. Today I feel completely exhauste...

Vespa27

•6 years ago

3 Replies

PBC Foundation Coming to USA

About to board a plane for Japan to present at APASL, so only a quick message. In partnership with American Liver Foundation and Intercept Practice to Policy...

About to board a plane for Japan to present at APASL, so only a quick message. ...

PBCRobert

Partner•6 years ago

6 Replies

2 MONTHS On Ocaliva

(FEB. 8). (MAR 11) (April 15) Ast...18. Ast.... 14. Ast... 13 Alt.... 28. Alt..... 21. Alt... 15 Bili.... 0.35....

(FEB. 8). (MAR 11) (April 15) Ast...18. Ast.... 14. A...

Ktltel

•6 years ago

15 Replies

Funnies to spread cheer x

Just wanted to add some nonsense to take our minds off serious matters xx

P13jne

•6 years ago

7 Replies

PBC Maybe?

I have a positive actin igg 35.2 and positive AMA M2 41.2, liver biopsy showed mild fibrosis, I still have not received a diagnosis. Please help?

I have a positive actin igg 35.2 and positive AMA M2 41.2, liver biopsy showed m...

staylor1776

•6 years ago

3 Replies

Feeling happy

So I got my test results back today from my biopsy and I am negative for PBC I am so happy they said my whole report looked pretty darn good I see the doctor...

So I got my test results back today from my biopsy and I am negative for PBC I a...

HULK80

•6 years ago

4 Replies

Itching & Urso?

Can anyone please offer me some advice I am going crazy with itching. I’ve had it for 3 weeks now, every day & night. I’ve not been on urso long & wonder if...

Can anyone please offer me some advice I am going crazy with itching. I’ve had i...

Karaxxx

•6 years ago

5 Replies

Started Tricor

I am a 64 year old woman and I was diagnosed with PBC in 2012. I had high LFT's and it was confirmed with a liver biopsy. I was put on URSO and my LFT'S came...

I am a 64 year old woman and I was diagnosed with PBC in 2012. I had high LFT's...

brjl

•6 years ago

4 Replies

New and confused about what to do

I was diagnosed 8 yrs ago with PBC. At the time my doctor told me there was no cure for this. I guess I was in denial, I never saw my doctor again for 5...

I was diagnosed 8 yrs ago with PBC. At the time my doctor told me there was no ...

donikeeth

•6 years ago

25 Replies

Pbc/AIH

Anybody used anything good for itching, I’ve trued assorts and I’m going crackers

Anybody used anything good for itching, I’ve trued assorts and I’m going cracker...

janine541

•6 years ago

3 Replies

Has anyone had a low white blood cell count as a result of being on Ocaliva?

My partner has been on Ocaliva for a while now - around 12 months - and has seen good results from it. However, its recently been flagged up from blood tests...

My partner has been on Ocaliva for a while now - around 12 months - and has seen...

djws

•6 years ago

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Gastroparesis

I was recently diagnosed with gastroparesis and was wondering if this is some how connected with PBC or not. Does anyone else suffer from this? I hope everyone...

I was recently diagnosed with gastroparesis and was wondering if this is some ho...

Lisa15

•6 years ago

3 Replies

Urso brands

Just a query, just collected my repeat prescription for Urso, have been given white tablets instead of the orange Ones I’ve had recently. Also they are...

Just a query, just collected my repeat prescription for Urso, have been given wh...

P13jne

•6 years ago

24 Replies

PBC

Once again the itching is in bearable hope everyone else is okay Till my results come no relief

Once again the itching is in bearable hope everyone else is okay Till my result...

janine541

•6 years ago

8 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for April 2019

Little White Bumps on Chest, Shoulders, Back, Arms, Jaw etc with PBC?

Hives everywhere

Lisinopril

Different AMA results

Just need to understand

Newly diagnosed

Dry eyes 👀

Cap score

PBC and living kidney donor possibility

Itching

Alcohol

Itchy Scalp Please help

ALT

Urso causing hairloss! Any treatment?

PBC levels

If You Could Go Back in Time and Tell Yourself Something When You Were First Diagnosed with PBC, What Would It Be?

PBC or AIH

PBC Foundation Coming to USA

2 MONTHS On Ocaliva

Funnies to spread cheer x

PBC Maybe?

Feeling happy

Itching & Urso?

Started Tricor

New and confused about what to do

Pbc/AIH

Has anyone had a low white blood cell count as a result of being on Ocaliva?

Gastroparesis

Urso brands

PBC

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