Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,389 members • 7,995 posts

All posts for December 2023

Wishing you all a Happy New Year!

Dear friends, I hope you have as happy and healthy a year as you can in 2024. Sending special wishes to anyone who’s struggling with something - I guess we...

Dear friends, I hope you have as happy and healthy a year as you can in 2024. S...

Skypony

•4 months ago

13 Replies

Vitamin/mineral deficiencies

Hi. I've had Pbc for 6 yrs now. Recently I've noticed that I am more fatigued than normal. I asked for my blood results over the last 10 yrs . I noticed a...

Hi. I've had Pbc for 6 yrs now. Recently I've noticed that I am more fatigued th...

Finn2021

•4 months ago

12 Replies

fibroscan

hi Finally had my fibroscan yesterday, but it did not work due to the fatty infiltration of the liver the probe could not penetrate through to give a...

hi Finally had my fibroscan yesterday, but it did not work due to the fatty in...

Cumbria7

•4 months ago

6 Replies

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How effective is fenofibrate for itch?

Carly92

•4 months ago

12 Replies

Pbc personal independence payment

Hi everyone is anyone on here getting pip I'm due my review dreading it as I hear there tacking it away from people got my review form today any useful advice

Hi everyone is anyone on here getting pip I'm due my review dreading it as I hea...

Purdy2017

•4 months ago

4 Replies

Stronger sense of taste on Urso

Has anyone here noticed a stronger sense of taste whilst taking Urso? Specifically sweet and salty tastes seem much stronger since I have been taking them.

Has anyone here noticed a stronger sense of taste whilst taking Urso? Specifical...

MSJT

•4 months ago

2 Replies

Gabapentan/neurotonin

i am having a real time with lower back pain. It feels like it is a nerve as it really hurts after five minutes of sitting. I am fine walking, standing, and...

i am having a real time with lower back pain. It feels like it is a nerve as it...

Gaspereaux

•4 months ago

5 Replies

PCB/AIH for 20 years but urine now turned browm

Hi I have lived with this condition for almost 20 years and been on Urso and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I...

Hi I have lived with this condition for almost 20 years and been on Urso and Az...

Sandpiperx

•4 months ago

10 Replies

Vitamins for PBC

Does anyone know if particular vitamins should be taken if you have PBC? Thanks

MSJT

•4 months ago

9 Replies

The itch

Hi there, Hope everyone is doing well? I have a general question about the dreaded itch and just keen to understand different PBC patients experiences. Mine...

Hi there, Hope everyone is doing well? I have a general question about the drea...

FarahS

•4 months ago

11 Replies

PBC and Joint Hypermobility Syndrome

Hi, I have joint hypermobility syndrome and possible PBC. I was just wondering if anyone else has the same two health issues. It would be nice to speak to...

Hi, I have joint hypermobility syndrome and possible PBC. I was just wondering i...

MSJT

•5 months ago

3 Replies

Fatty food

Does anyone experience difficulty with fatty food? I tried a new recipe for the festive season - a wreath made from croissant dough stuffed with cambazola...

Does anyone experience difficulty with fatty food? I tried a new recipe for the...

DebatDG9

•5 months ago

5 Replies

Tylenol

i seem to be suffering from chronic lower back/hip pain (four months now) . My question is…..is it okay to take Tyelenol as long as you follow the recommended...

i seem to be suffering from chronic lower back/hip pain (four months now) . My q...

Gaspereaux

•5 months ago

9 Replies

Travel insurance with PBC. UK

Hi Everyone I think I’m like the majority of us with PBC. My liver is fine, responding well to URSO etc. However, finding travel insurance has been...

Hi Everyone I think I’m like the majority of us with PBC. My liver is fine, res...

Jacqui0112

•5 months ago

5 Replies

Terbinafine tablets and pbc

Morning all, so I know we’re not supposed to be asking for medical advice but I’m just keen to understand if anyone has had any experience with taking...

Morning all, so I know we’re not supposed to be asking for medical advice but I...

FarahS

•5 months ago

2 Replies

PBC pins & needles

hi everyone, I have the pins and needles in my hands and feet as well, as quite a few other people on here. Is that associated with Pbc? I also have...

hi everyone, I have the pins and needles in my hands and feet as well, as quit...

Hastingsgal

•5 months ago

9 Replies

ama2 positive but nhs doing nothing

hiya, I tested AMA positive in 2009 whilst doing blood tests. They wondered if I had MS. This was not a high positive (though it’s my understanding that it...

hiya, I tested AMA positive in 2009 whilst doing blood tests. They wondered if...

Hastingsgal

•5 months ago

7 Replies

Fibromyalgia and PBC

hi guys what the best treatment for fibromyalgia when you also have Pbc? Xxx

Elkol

•5 months ago

3 Replies

GGT marker

Good morning everyone, I noticed some of you talking about your GGT levels….mine was 569. I know that is very high, i am just wondering if it is...

Good morning everyone, I noticed some of you talking about your GGT levels….mi...

Gaspereaux

•5 months ago

4 Replies

Terrible joint pains

Hi guys as diagnosed with PBC a couple of months ago but not started Urso yet as my LF are in normal range. however my shoulder / elbow is killing me at the...

Hi guys as diagnosed with PBC a couple of months ago but not started Urso yet ...

Elkol

•5 months ago

6 Replies

Acid reflux

Hi everyone, does anyone else suffer severe acid reflux, and is it anything to do with PBC.Thanks all.

Hi everyone, does anyone else suffer severe acid reflux, and is it anything to d...

SUE42SUSAN

•5 months ago

12 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for December 2023

Wishing you all a Happy New Year!

Vitamin/mineral deficiencies

fibroscan

How effective is fenofibrate for itch?

Pbc personal independence payment

Stronger sense of taste on Urso

Gabapentan/neurotonin

PCB/AIH for 20 years but urine now turned browm

Vitamins for PBC

The itch

PBC and Joint Hypermobility Syndrome

Fatty food

Tylenol

Travel insurance with PBC. UK

Terbinafine tablets and pbc

PBC pins & needles

ama2 positive but nhs doing nothing

Fibromyalgia and PBC

GGT marker

Terrible joint pains

Acid reflux

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