Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for July 2016

Stages?

Could anyone explain what what the various stages are as I haven't a clue. The letter diagnosing me from the specialist was vague at best. It just says that...

Could anyone explain what what the various stages are as I haven't a clue. The l...

Jules-S

•8 years ago

9 Replies

Nausea

Hi, I have recently been diagnosed with PBC, I have found the information I have found here really useful and reasuring. I was prescribed urso and deloxetine...

Hi, I have recently been diagnosed with PBC, I have found the information I have...

Jules-S

•8 years ago

8 Replies

Fibroscan and Urso...

Well folks just a small update from me. I went to the liver unit in King's and had my fibroscan which came out with a score of 10.4. Not great but I guess...

Well folks just a small update from me. I went to the liver unit in King's and ...

AdeleMalcolm

•8 years ago

10 Replies

Want to take advantage of all our features? Just log in!

To take or not to take Urso!!!!

I have been diagnosed with PBC in 2010 and have been taking Urso for 6 years. I have my LFT's done regularly and the results are a bit like a roller-coaster....

I have been diagnosed with PBC in 2010 and have been taking Urso for 6 years. I ...

TracG

•8 years ago

15 Replies

New GI states Urso will not help my PBC

I was diagnosed last August with PBC and prescribed Urso. Although I never started taking the drug, I have since moved and therefore decided to follow up on...

I was diagnosed last August with PBC and prescribed Urso. Although I never start...

kauthement

•8 years ago

43 Replies

I'm newly diagnosed with PBC

I have not yet had the liver biopsy but I have so many questions. Such as is it okay to shampoo and shower with regular soaps if not what should I cleanse...

I have not yet had the liver biopsy but I have so many questions. Such as is it ...

bartholomewpatri

•8 years ago

14 Replies

Hip pain

Hi all, I'm feeling sorry for myself today, my hips are really painful and it's hard to sleep so I'm grouchy too. I have zero hours contract at work and at the...

Hi all, I'm feeling sorry for myself today, my hips are really painful and it's ...

Twinkle26

•8 years ago

10 Replies

Conjugated Bile Acids

Has anyone heard of these and or tried them? If so did they help?...

Zelda5

•8 years ago

12 Replies

ALP spiked after three 2 years stable

Hello all. My ALP responded quickly to URSO when I was diagnosed in 2014. I started having pain again off and on and lately more on. I have had three...

Hello all. My ALP responded quickly to URSO when I was diagnosed in 2014. I st...

NotorDJP

•8 years ago

7 Replies

Pain in Eyes? Dry Eye maybe?

Hi Everyone, I have limited Wifi to get online since recently selling my home to size down and still haven't found what I need. Meanwhile I have missed much...

Hi Everyone, I have limited Wifi to get online since recently selling my home t...

DeeSree

•8 years ago

14 Replies

Vitamins

Have a question for anyone that knows...are there any specific vitamins we should stay away from since we have PBC? Living in the U.S and I know the FDA...

Have a question for anyone that knows...are there any specific vitamins we shoul...

Cstar1079

•8 years ago

3 Replies

Getting my m2 antibody retested? Still in pain

Hi everyone I tested positive a few weeks ago for the mitochondrial m2 antibody test. And my primary dr disgnosed me with pbc. When i saw my g.i specialist he...

Hi everyone I tested positive a few weeks ago for the mitochondrial m2 antibody ...

nessarose714

•8 years ago

8 Replies

Looking for any South Africans with PBC

Hi there I am interested in contacting anyone residing in South Africa to hear about their PBC journey. I am female, 57 years old and diagnosed 4 years ago.

Hi there I am interested in contacting anyone residing in South Africa to hear a...

SANDYTaylor

•8 years ago

15 Replies

Liver Clinic at Q E HOSPITAL

Hi All anyone had a appointment at Q E Hospital to see Professor David Mutimer usually see Andrew Holt at the Liver Unit Clinic on a Monday for my PBC hes a...

Hi All anyone had a appointment at Q E Hospital to see Professor David Mutimer u...

cavi

•8 years ago

3 Replies

8 month update - doing good :)

I just wanted to keep track of my blood test history here. I got the blood test results back and wanted to post an update. Summary: liver good, Vitamin D was...

I just wanted to keep track of my blood test history here. I got the blood test...

chynablue

•8 years ago

17 Replies

NIH Peer-Reviewed Article: AMA Alone Not Diagnostic of PBC

"Only about 10% of patients who are AMA seropositive, but lack clinical features of PBC, subsequently develop PBC."...

"Only about 10% of patients who are AMA seropositive, but lack clinical features...

Kevin733

•8 years ago

12 Replies

ALP results

hi all, if possible can you post your alp results cause mine have just gone up by 50% in a year.this would ge only for positive ama .thanks so much xxxx

hi all, if possible can you post your alp results cause mine have just gone up b...

meandmypbc60

•8 years ago

8 Replies

Just been diagnosed with PBC

Hi I'm a 48 year old Mum of twins aged 16, went for a routine blood test in May this year and after 8 blood tests (all with LFTs abnormalities), positive AMA...

Hi I'm a 48 year old Mum of twins aged 16, went for a routine blood test in May ...

Chappers2204

•8 years ago

11 Replies

Now really confused!

I am in the process of changing surgeries and whilst having the initial consultation with the GP to sort out prescriptions etc I asked about my itching and...

I am in the process of changing surgeries and whilst having the initial consulta...

butterflyEi

•8 years ago

12 Replies

Malaria tablets with pbc

Hi I'm off to Goa in November , and I'm unsure if I can take malaria tablets or not, I tried last time I went before dx and they made me ill so I stopped after...

Hi I'm off to Goa in November , and I'm unsure if I can take malaria tablets or ...

Kieraferret

•8 years ago

10 Replies

Questions for Gp - newly diagnosed

Hello Diagnosed with pbc within last two weeks. Had gall bladder removed in March 2016, and blood tests pre and prior to op have identified condition. Have...

Hello Diagnosed with pbc within last two weeks. Had gall bladder removed in Marc...

jemlola

•8 years ago

20 Replies

Upper right pain and upper middle back pain

So i felt as if i just had a gallbladder attack but i have no gallbladder. 2 days ago i was diagnosed with pbc. Is this a common pain for everyone? It was...

So i felt as if i just had a gallbladder attack but i have no gallbladder. 2 day...

nessarose714

•8 years ago

27 Replies

Migraine

Hi everyone, hope today's a good day for you. I've had what everyone is telling me, my first ever Migraine on Tuesday. Really bad never had one before, totally...

Hi everyone, hope today's a good day for you. I've had what everyone is telling ...

teddybear7

•8 years ago

7 Replies

Diagnosed today. Scared

Hi everyone i was diagnosed today with pbc. I had a blood test done called mitochondrial (m2) antibody. It showed me at level 76.4. I recently had my...

Hi everyone i was diagnosed today with pbc. I had a blood test done called mitoc...

nessarose714

•8 years ago

29 Replies

Scan

Hi I've been diagnosed Pbc for about 4 years now, had scan when first diagnosed but was wondering how often should we have scans as not been for one since ?

Hi I've been diagnosed Pbc for about 4 years now, had scan when first diagnosed ...

jen23lilly

•8 years ago

18 Replies

Hi all.

Good afternoon everyone. Been ages since I have been on here. Hope you are all keeping well. Been a bit off colour for a few weeks and been having tests done....

Good afternoon everyone. Been ages since I have been on here. Hope you are all ...

donnathompson

•8 years ago

12 Replies

Just Enquiring!!!

Does anyone know if I'll be ok taking vitamin B complex. Obviously have PBC early stages no Cirrhosis on 500mg of urso. Thanks in advance for any advice 😊

Does anyone know if I'll be ok taking vitamin B complex. Obviously have PBC earl...

Louedwards

•8 years ago

6 Replies

Side effects from Urso?

Hello. I just started taking a divided dose of 1000mg of ursodiol. While I hadn't been exactly well for several months, the Urso seems to have made matters...

Hello. I just started taking a divided dose of 1000mg of ursodiol. While I had...

Carol60

•8 years ago

21 Replies

Newly diagnosed & started Urso

Hello. I have recently been diagnosed with PBC; a disease I'd never heard of until now. I'm thankfully in stage 1 with just inflammation and a little...

Hello. I have recently been diagnosed with PBC; a disease I'd never heard of un...

Carol60

•8 years ago

13 Replies

Amazing news

Just been for my consultant appointment and he said he doesn't think I have PBC and if I do it's so early that I wouldn't have any meds to take. Really can't...

Just been for my consultant appointment and he said he doesn't think I have PBC ...

Chazzy

•8 years ago

14 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for July 2016

Stages?

Nausea

Fibroscan and Urso...

To take or not to take Urso!!!!

New GI states Urso will not help my PBC

I'm newly diagnosed with PBC

Hip pain

Conjugated Bile Acids

ALP spiked after three 2 years stable

Pain in Eyes? Dry Eye maybe?

Vitamins

Getting my m2 antibody retested? Still in pain

Looking for any South Africans with PBC

Liver Clinic at Q E HOSPITAL

8 month update - doing good :)

NIH Peer-Reviewed Article: AMA Alone Not Diagnostic of PBC

ALP results

Just been diagnosed with PBC

Now really confused!

Malaria tablets with pbc

Questions for Gp - newly diagnosed

Upper right pain and upper middle back pain

Migraine

Diagnosed today. Scared

Scan

Hi all.

Just Enquiring!!!

Side effects from Urso?

Newly diagnosed & started Urso

Amazing news

Search posts

Pinned Posts

Latest poll

Where in the world are you? Please select an option, but feel free to tell us specifically which country you are in, if you would like. No more detail than that, however. Thank you.

Topics

Archive