Posts - PBC Foundation | HealthUnlocked

PBC Foundation

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All posts for February 2014

Sleeplessness.

Hi There, I was diagnosed via,a biopsy and poor liver tests,I also have underactive thyroid,and osteoporosis diagnosed via a dexa scan, I started on Urso, at...

Hi There, I was diagnosed via,a biopsy and poor liver tests,I also have underact...

Jaycee

•11 years ago

18 Replies

Anyone put weight on with taking uro. ?

jen23lilly

•11 years ago

11 Replies

Scleroderma is attacking neuropaths in legs. Anybody else with this problem please?

About two years ago I started losing sensation in my toes. Then my balance became quite bad. I tested positive for Romberg's in October, and had an MRI to see...

About two years ago I started losing sensation in my toes. Then my balance becam...

Hidden

•11 years ago

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Hi im new to all this.anyone else get back and shoulder pain? Diagnosed last year with pbc but also have under active thyroid.

jen23lilly

•11 years ago

7 Replies

Got more blood test results-more confused than ever.

Hello everyone. I have been working towards, what I thought was a diagnosis of PBC, but not sure now. I got back my latest new bloodwork and not only am I...

Hello everyone. I have been working towards, what I thought was a diagnosis of ...

NotorDJP

•11 years ago

6 Replies

Severe dizziness?

I have PBC/AIH overlap. Been suffering from really severe dizziness...like the kind you feel from heavy duty narcotics (anesthia or iv pain meds) had it all...

I have PBC/AIH overlap. Been suffering from really severe dizziness...like the k...

ZiggyBean

•11 years ago

18 Replies

Blood test results

Hi I was diagnosed last august and have just received copies of my blood test results, can anyone tell me what I should be looking out for x

Hi I was diagnosed last august and have just received copies of my blood test re...

Kieraferret

•11 years ago

4 Replies

Has anyone developed a rash on their face from taking Urso?

I was diagnosed with PBC last August and a month after starting urso I developed an annoying itchy rash at side of my nose and small blotches around my mouth....

I was diagnosed with PBC last August and a month after starting urso I developed...

Suzzypops

•11 years ago

1 Reply

Dx 1/2014. My concern is my alk phos?2010 was 75 now has climbed to 245. Should I do further testing? Feel like my doctors say "that's PBC!"

Cher29

•11 years ago

6 Replies

Bizaar question really.mildly curious but does anyone out there suffer from facial thread veins and black'panda'eyes?

Idily trawling through some other sites I came across this as an autoimmune symptom.now my dad who is 90 and in disgustingly good health bless him has always...

Idily trawling through some other sites I came across this as an autoimmune symp...

cazz22

•11 years ago

5 Replies

Elevated ALT at 65 u/l

Hi all hope you are well. I seen my gastro last week and have just had my results back. 6 months ago he said that my ATL was showing mild abnormalities. He...

Hi all hope you are well. I seen my gastro last week and have just had my result...

Gemma01

•11 years ago

12 Replies

Does anyone know what Weak Positive ANA Hep2 means, doc says not alot on its own? thanks.

My EGFR seems to be going down as well which doc is monitoring..

sunflower1

•11 years ago

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What meds for pain relief with PBC

Can anyone say what meds we can use. I have read numerous posts, but everyone seems to have different ideas. ie. Paracetamol, ibroprufen, tramadol ,...

Can anyone say what meds we can use. I have read numerous posts, but everyone se...

Pookie18

•11 years ago

6 Replies

Take care to not be blind to other symptoms.

Hi, I just wanted to pass on some friendly advice to users of this site! I have recently been diagnosed as having Multiple Sclerosis and was not vigilant...

Hi, I just wanted to pass on some friendly advice to users of this site! I have...

SamT

•11 years ago

12 Replies

Jaundiced

Has anyone been jaundiced at all? Few people had commented to me about it x I got my bloods checked x was told that my lft was fine but that my billirubin was...

Has anyone been jaundiced at all? Few people had commented to me about it x I go...

Dmb1

•11 years ago

7 Replies

Hi all. I have just had a liver biopsy to confirm pbc. But it has come back with a possibility of hepatitis. I have to have a second opinion

I still have all the symptoms of pbc. Severe fatigue and tiredness. I just wanted to know has anyone had the same happen to them.

I still have all the symptoms of pbc. Severe fatigue and tiredness. I just wante...

smudger123

•11 years ago

9 Replies

How often should you have an endoscopy?

kaywire

•11 years ago

12 Replies

How does it feel to be on the waiting list for organ transplantation? Either yourself or a loved one? Please share your stories?

I am a journalist in Nottingham working on a documentary surrounding Organ donation. I want to hear and speak to as many real people as I can to get a feel for...

I am a journalist in Nottingham working on a documentary surrounding Organ donat...

HattieMurphy

•11 years ago

15 Replies

Got appointement with GI doc. Have to wait a month to see him.

Just letting you all know that I have finally gotten a GI doctor. My area is relatively small, so no liver specialists locally, but this doctor does have a...

Just letting you all know that I have finally gotten a GI doctor. My area is re...

NotorDJP

•11 years ago

4 Replies

Pain killers allowed with PBC

Good morning (or Afternoon depending on where you are)! Just kicking back on a federal holiday in the US, doing a little housework and dodging yet another...

Good morning (or Afternoon depending on where you are)! Just kicking back on a ...

NotorDJP

•11 years ago

8 Replies

Hi I'm new here :-( having problems coping being newly diagnosed. I have a neg AMA but biopsy confirmed my dx. Is this familiar to anyone?

I can't help but think I have something other than PBC causing my liver damage.. Appreciate any thoughts... Thanks!!

I can't help but think I have something other than PBC causing my liver damage.....

Cher29

•11 years ago

17 Replies

Pbc and complications

Has anyone had Cholangitis (or similar) with from pbc?

Ellean

•11 years ago

7 Replies

Ultrasound normal!!

Great news. Ultrasound is normal, liver looks normal. so no damage as of yet! go to the doctor tomorrow. Hopefully he will refer me to GI doctor. Bloods...

Great news. Ultrasound is normal, liver looks normal. so no damage as of yet! ...

NotorDJP

•11 years ago

13 Replies

Hormonal changes

I thought I read somewhere that PBC can affect hormones. I have been on my cycle for six days (normally lasts three) and I have noticed thickening facial hair....

I thought I read somewhere that PBC can affect hormones. I have been on my cycle...

ZiggyBean

•11 years ago

4 Replies

Had ultrasound today and now I'm even more sore than I was

I've been sore in my right side and actually sore all across my upper abdomen now. I am ok in the morning, though by the end of the day I'm really sore. The...

I've been sore in my right side and actually sore all across my upper abdomen no...

NotorDJP

•11 years ago

8 Replies

Osteitis of the Clavicle, wrist pain, dizzy spells, constipated, and a few more concerns.

Hi all, Hope you are all as well as can be. I have a few questions if anyone can help or advise. The more I read on here I can see the connection with my own...

Hi all, Hope you are all as well as can be. I have a few questions if anyone can...

Fudger126

•11 years ago

8 Replies

I ran across this information today and wanted to share in case you are interested: New PBC Research Trial / UK and US

NEW PBC RESEARCH Lumena is an early stage biotech company focused on better treatment options for adults and children living with rare cholestatic liver...

NEW PBC RESEARCH Lumena is an early stage biotech company focused on better tr...

JennerLayne

•11 years ago

7 Replies

Twitchy liver

Hi all, does anyone else get a twitchy or fluttery feeling in their liver? I've recently started noticing this, particularly if I eat fatty foods. It doesn't...

Hi all, does anyone else get a twitchy or fluttery feeling in their liver? I've...

CheshireEm

•11 years ago

29 Replies

Just been told I have osteoarthritis

I'm just wanting to know if anyone has this with their pbc I only found out in September iv got pbc I was sent from a bone scan n got my results yesterday so...

I'm just wanting to know if anyone has this with their pbc I only found out in S...

Clairemumov5

•11 years ago

4 Replies

More information on diagnosis trickling in....

I called my doctor, while I wait for my tests this week to see how strong my AMA titre was. It was 1:160. I googled and it said anything over 1:40 is...

I called my doctor, while I wait for my tests this week to see how strong my AMA...

NotorDJP

•11 years ago

21 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for February 2014

Sleeplessness.

Anyone put weight on with taking uro. ?

Scleroderma is attacking neuropaths in legs. Anybody else with this problem please?

Hi im new to all this.anyone else get back and shoulder pain? Diagnosed last year with pbc but also have under active thyroid.

Got more blood test results-more confused than ever.

Severe dizziness?

Blood test results

Has anyone developed a rash on their face from taking Urso?

Dx 1/2014. My concern is my alk phos?2010 was 75 now has climbed to 245. Should I do further testing? Feel like my doctors say "that's PBC!"

Bizaar question really.mildly curious but does anyone out there suffer from facial thread veins and black'panda'eyes?

Elevated ALT at 65 u/l

Does anyone know what Weak Positive ANA Hep2 means, doc says not alot on its own? thanks.

What meds for pain relief with PBC

Take care to not be blind to other symptoms.

Jaundiced

Hi all. I have just had a liver biopsy to confirm pbc. But it has come back with a possibility of hepatitis. I have to have a second opinion

How often should you have an endoscopy?

How does it feel to be on the waiting list for organ transplantation? Either yourself or a loved one? Please share your stories?

Got appointement with GI doc. Have to wait a month to see him.

Pain killers allowed with PBC

Hi I'm new here :-( having problems coping being newly diagnosed. I have a neg AMA but biopsy confirmed my dx. Is this familiar to anyone?

Pbc and complications

Ultrasound normal!!

Hormonal changes

Had ultrasound today and now I'm even more sore than I was

Osteitis of the Clavicle, wrist pain, dizzy spells, constipated, and a few more concerns.

I ran across this information today and wanted to share in case you are interested: New PBC Research Trial / UK and US

Twitchy liver

Just been told I have osteoarthritis

More information on diagnosis trickling in....

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