Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,381 members • 7,970 posts

All posts for June 2014

Have any of you figured out how to keep the nauseous/bloating feeling away that Urso creates? Do certain foods make you feel worse?

Betsyjc3

•10 years ago

22 Replies

Does anyone take Actigall rather than Urso? And if so, any side effects?

ranick618

•10 years ago

8 Replies

PBC/AIH overlap, anyone else with this diagnosis and on Steroids plus immunosuppressants, I would be interested to hear from you

I am about to start my immunosuppressants next month and am a bit concerned about what to expect the specialist has explained the pros and cons but I would be...

I am about to start my immunosuppressants next month and am a bit concerned abou...

MrsworryGuts

•10 years ago

7 Replies

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Hi everyone long time since I was on here I couldn't get on kept giving me questionare to fill in anyway does anyone have numb feet and very

Bad pains in lower legs and toes because it is driving me crazy and keeping me awake at night don't know if its pbc related x

Bad pains in lower legs and toes because it is driving me crazy and keeping me ...

sophie666

•10 years ago

4 Replies

Has anyone else had infertility issues due to PBC? Where you able to have a child with treatment?

My husband and I have been trying to have a baby for almost two years now. I have learned that PBC causes other immune diseases one being that I do not produce...

My husband and I have been trying to have a baby for almost two years now. I hav...

amanda3296

•10 years ago

14 Replies

Depression, not overwhelming, the looming thoughts. Is this making my fatigue worse?

Hello everyone. For the newbies, I was diagnosed with PBC in March, got my stage in May, Stage 2. I have been on Urso now for a month now and have been...

Hello everyone. For the newbies, I was diagnosed with PBC in March, got my stag...

NotorDJP

•10 years ago

10 Replies

Hi. My partner has just won his tribunal and been placed into the support group from wrag.

We are owed approx £1200, i have spoken with the dwp this afternoon, to speed things up and was told it takes approx 8/12 weeks, we won the appeal on...

We are owed approx £1200, i have spoken with the dwp this afternoon, to speed th...

tubbs1959

•10 years ago

5 Replies

Hi. Has any one have any tip for hair loss. I am on the transplant list. In the last 4 months I've had 2 ops. Due to this I have suffered

From malnutrition. My Dr. Informed that my hair would grow back when i have a transplant My hair is falling out in hand fulls each day. Help

From malnutrition. My Dr. Informed that my hair would grow back when i have a tr...

barclay12

•10 years ago

11 Replies

Morning all this post is not PBC related hope you don't mind...i had a hysterectomy 2yrs ago , than i caught my finger in a car door the

hospital gave me antibiotics which gave me thrush than at the end of the course i started to bleed i panicked as id had the hysterectomy...the hospital gave me...

hospital gave me antibiotics which gave me thrush than at the end of the course ...

happyanno

•10 years ago

1 Reply

Liver Function Tests Questions

I have been on Urso 18 months. For the first time, my results have lots of things elevated, OTHER than ALP. The Alkaline Phosphates have always fluctuated up...

I have been on Urso 18 months. For the first time, my results have lots of thin...

WendyMarie

•10 years ago

7 Replies

My PBC story...

Hi everyone… I am new and thought I would introduce myself. I have been reading the posts on this website for a few weeks. I find that it is very helpful to...

Hi everyone… I am new and thought I would introduce myself. I have been reading...

Tj2929783

•10 years ago

25 Replies

Is there a help desk or something simular for parteners and family members of PBC sufferer's, for us to help and understand more?

I need this help and I'm sure other 'carer's do to.

cigarboxman

•10 years ago

8 Replies

What is consider normal range of alkaline phosphates level in a person with PBC? I

I know in the US, the normal ALP range is 50-130 for a healthy person. However, what is considered normal range for a person with PBC? My ALP ranges from...

I know in the US, the normal ALP range is 50-130 for a healthy person. However, ...

WendyMarie

•10 years ago

5 Replies

Wasp bite ?

I was bitten yesterday on my forearm, it has now swollen from my wrist to just above my elbow. It is extremely hot, itchy and sore. It is still swelling and is...

I was bitten yesterday on my forearm, it has now swollen from my wrist to just a...

Lisacj

•10 years ago

10 Replies

I am in extreme pain in my right rib cage, it feels swollen,and i can't lean on it . i have inflamation of the liver.

lkraft

•10 years ago

4 Replies

To urso or not??

I couldn't take capsules of urso last year because it seems something probably the fillers didn't agree with me.altho the dr doesn't give me a high dose I...

I couldn't take capsules of urso last year because it seems something probably t...

cazz22

•10 years ago

18 Replies

Ignorance is bliss

Has anyone else read the article in the Sunday Mail this weekend about how Urso....... Is extracted from brown bears in China under very cruel and inhumane...

Has anyone else read the article in the Sunday Mail this weekend about how Urso....

Mayflower53

•10 years ago

15 Replies

on ursodoil for about 5 weeks ... Feels like creepy crawly skin from head to toe. Pretty constant but random . Is this the med?

Hidden

•10 years ago

4 Replies

Hi does anyone with Pbc eat lots of sugar (fruit, dessert, juice etc)? I'm trying to see if there is a link with insulin resistance & Pbc

Hi I've always had a sweet tooth but seem to crave sugar more now even it's fruit, juice, honey, sweeten yoghurt etc I figured it helped with my fatigue but...

Hi I've always had a sweet tooth but seem to crave sugar more now even it's frui...

Donna1974

•10 years ago

9 Replies

DIGESTION

HI ALL, DOES ANYBODY HERE HAVE PROBLEMS WITH THEIR DIGESTION? I FEEL FULL AFTER 2 BITES. ALSO, SOMETIMES IT FEELS LIKE THE FOOD IS STUCK AND CAN'T GO DOWN.

HI ALL, DOES ANYBODY HERE HAVE PROBLEMS WITH THEIR DIGESTION? I FEEL FULL AFTE...

ROBINLORI

•10 years ago

9 Replies

I was diagnosed with PBC. My mum has Lupus. What are the likely hood of me developing Lupus along side my PBC

PBC

stevie1

•10 years ago

5 Replies

PAIN

HI ALL, DOES ANYONE SUFFER FROM EXTREME PAIN IN THE LIVER AREA WHEN TAKING A DEEP BREATH? ALSO, DOES IT HURT WHEN YOU SLEEP ON THE OPPOSITE SIDE OF THE...

HI ALL, DOES ANYONE SUFFER FROM EXTREME PAIN IN THE LIVER AREA WHEN TAKING A DE...

ROBINLORI

•10 years ago

13 Replies

Cause of PBC

"They" keep saying they don't know what causes PBC, but no one has ever interviewed ME about my health history - have any of you filled out a detailed...

"They" keep saying they don't know what causes PBC, but no one has ever intervie...

juliannath

•10 years ago

20 Replies

Weight gain in middle

I'm sure there are questions about this on here, but I'm at work and don't have time to search. I have struggled with my weight most of my life, and lost a...

I'm sure there are questions about this on here, but I'm at work and don't have ...

NotorDJP

•10 years ago

6 Replies

Have'nt posted for a while....

I just realised how to look at my replies, thought no one was talking to me....Doh! Well things pretty much the same, although have a met a lovely lady who is...

I just realised how to look at my replies, thought no one was talking to me....D...

rynick

•10 years ago

4 Replies

PBC and DENIAL

I am 47 dx with PBC in Jan '14 via liver bx. I take Urso 300mgx3/per day. In the beg i learned to cope, changed my diet, stopped drinking alcohol until now!!...

I am 47 dx with PBC in Jan '14 via liver bx. I take Urso 300mgx3/per day. In th...

Cher29

•10 years ago

29 Replies

Medigene signs licence agreement with Falk Pharma for RhuDex® in hepatology and gastroenterology

Some interesting news from the New Drugs Development: "Medigene signs licence agreement with Falk Pharma for RhuDex® in hepatology and gastroenterology"...

Some interesting news from the New Drugs Development: "Medigene signs licence ...

Betonarme

•10 years ago

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Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2014

Have any of you figured out how to keep the nauseous/bloating feeling away that Urso creates? Do certain foods make you feel worse?

Does anyone take Actigall rather than Urso? And if so, any side effects?

PBC/AIH overlap, anyone else with this diagnosis and on Steroids plus immunosuppressants, I would be interested to hear from you

Hi everyone long time since I was on here I couldn't get on kept giving me questionare to fill in anyway does anyone have numb feet and very

Has anyone else had infertility issues due to PBC? Where you able to have a child with treatment?

Depression, not overwhelming, the looming thoughts. Is this making my fatigue worse?

Hi. My partner has just won his tribunal and been placed into the support group from wrag.

Hi. Has any one have any tip for hair loss. I am on the transplant list. In the last 4 months I've had 2 ops. Due to this I have suffered

Morning all this post is not PBC related hope you don't mind...i had a hysterectomy 2yrs ago , than i caught my finger in a car door the

Liver Function Tests Questions

My PBC story...

Is there a help desk or something simular for parteners and family members of PBC sufferer's, for us to help and understand more?

What is consider normal range of alkaline phosphates level in a person with PBC? I

Wasp bite ?

I am in extreme pain in my right rib cage, it feels swollen,and i can't lean on it . i have inflamation of the liver.

To urso or not??

Ignorance is bliss

on ursodoil for about 5 weeks ... Feels like creepy crawly skin from head to toe. Pretty constant but random . Is this the med?

Hi does anyone with Pbc eat lots of sugar (fruit, dessert, juice etc)? I'm trying to see if there is a link with insulin resistance & Pbc

DIGESTION

I was diagnosed with PBC. My mum has Lupus. What are the likely hood of me developing Lupus along side my PBC

PAIN

Cause of PBC

Weight gain in middle

Have'nt posted for a while....

PBC and DENIAL

Medigene signs licence agreement with Falk Pharma for RhuDex® in hepatology and gastroenterology

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