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PBC Foundation

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All posts for April 2016

AMA blood work question

My test given was Anti-Mitochondrial Antibody - results read 1.8 units . I am confused on if this is normal range or not . Mayo's website refers to AMA as...

My test given was Anti-Mitochondrial Antibody - results read 1.8 units . I am co...

Gbird

•8 years ago

21 Replies

Newly Diagnosed

Hi - I had written a post introducing myself the day after I was diagnosed, but I can't find it anywhere, so I'm thinking I must have done it wrong. Anyway,...

Hi - I had written a post introducing myself the day after I was diagnosed, but ...

Becca75

•8 years ago

28 Replies

Newly diagnosed and concerned about pain

Hi Everyone, I am newly diagnosed with PBC (diagnosed December 2015) I've started Urso treatment, and my blood tests show that I'm responding well to it. My...

Hi Everyone, I am newly diagnosed with PBC (diagnosed December 2015) I've starte...

Hibbsy

•8 years ago

12 Replies

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Some new crappy symptoms

Hi friends....a few days ago I started having some new, and pretty severe, symptoms at 5am. How weird is THAT? So for the past few days, at around 5am, I am...

Hi friends....a few days ago I started having some new, and pretty severe, sympt...

JennyCville

•8 years ago

12 Replies

Newly diagnosed

Diagnosed by positive AMA and elevated LFT's waiting for liver biopsy appointment for staging ....

Diagnosed by positive AMA and elevated LFT's waiting for liver biopsy appointmen...

Michiganpbc

•8 years ago

13 Replies

Turmeric tablets?

I'm not taking anything as yet for my PBC and wondered if anyone knew if there was any issue in me taking turmeric tablets. I've read loads of places how good...

I'm not taking anything as yet for my PBC and wondered if anyone knew if there w...

AdeleMalcolm

•8 years ago

12 Replies

Ra medication

Hi. I'm having so much trouble getting treatment for ra. I have pbc too. Rhumatogist put me on salazine on 1st dec. Last week I told him its not working for...

Hi. I'm having so much trouble getting treatment for ra. I have pbc too. Rhumato...

wongie

•8 years ago

16 Replies

Test results

Could anyone tell me if there is a website which explains liver test results in layman's terms. I have just got a letter from the hospital and it may as well...

Could anyone tell me if there is a website which explains liver test results in ...

LindyRich

•8 years ago

24 Replies

Felt very sick

Hi, I have people coming over in a few days so have been cleaning. While stretching up high several times I suddenly came over feeling very sick and began to...

Hi, I have people coming over in a few days so have been cleaning. While stretch...

cclcnal7

•8 years ago

6 Replies

Any implications taking Ursofalk without food

The medication advises to take with food, anyone know of any implications of taking Ursofalk without food? Any side effects etc? Thanks

The medication advises to take with food, anyone know of any implications of tak...

amt50

•8 years ago

16 Replies

low blood sugar

hi i am to be tested for hypoglycaemia is this related to pbc please

sophie666

•8 years ago

3 Replies

Waiting for biopsy

Hi everyone. I am 34 years old. I have two kids:. 3 years and 6 months. I have high liver enzymes and itchy skin. Now waiting for a liver biopsy to give an...

Hi everyone. I am 34 years old. I have two kids:. 3 years and 6 months. I have...

Bettyfinn

•8 years ago

21 Replies

Jan

Does anyone else who suffers from PBC get terrible leg pain and extreme weakness, have mentioned this to my GP who says it's arthritis ,I have asked many...

Does anyone else who suffers from PBC get terrible leg pain and extreme weakness...

janetfolley

•8 years ago

16 Replies

PBC - Recently diagnosed after 6 long years

Hi All. This is my first post so I'll give you my experience. In late 2015 I was diagnosed Chronic Cholangiopathy which is similar to PBC. My first symptom...

Hi All. This is my first post so I'll give you my experience. In late 2015 I wa...

Auds5

•8 years ago

7 Replies

Sudden red itchy swollen palms - very painful!

Help! Today my palms became red, swollen and crazy itchy in an all new way. My right wrist is swollen too and difficult to bend. Why is this happening now? My...

Help! Today my palms became red, swollen and crazy itchy in an all new way. My r...

Jowen

•8 years ago

8 Replies

Second hepatology appointment

Hi just thought I would update you on my progress, I have now been prescribed the urso, x3 per day. I am now waiting on the liver biopsy date, my specialist...

Hi just thought I would update you on my progress, I have now been prescribed th...

Twinkle26

•8 years ago

17 Replies

Treatment and advice

Hello, My mother was diagnosed with PBC 2 years ago. She has been taking Urso for about a year now: 3 capsules before bed (she is about 90 kg). Her bilirubin...

Hello, My mother was diagnosed with PBC 2 years ago. She has been taking Urso fo...

temirzhan

•8 years ago

1 Reply

Study for the new med Obetichiolic Acid and my experience

Good Morning, Here's a study for the new med Obetichiolic Acid and my experience for on applying; Subject: NCT02308111, 747-302, Phase 3 Study of Obeticholic...

Good Morning, Here's a study for the new med Obetichiolic Acid and my experience...

kauthement

•8 years ago

1 Reply

Is this disappointing information?

http://www.healio.com/hepatology/autoimmune-cholestatic-biliary-diseases/news/online/%7Be0a752a2-d898-4be3-98a1-92876c505665%7D/udca-fails-to-improve-mortality-

http://www.healio.com/hepatology/autoimmune-cholestatic-biliary-diseases/news/on...

butterflyEi

•8 years ago

8 Replies

Pain relief

Can any of you lovely people help me with advice re pain killers I am in a lot of pain with a recurring back problem am desperate to take some meds but do not...

Can any of you lovely people help me with advice re pain killers I am in a lot o...

chrissey7

•8 years ago

17 Replies

Colon cleanse

Hi everybody, I want to do a colon cleanse with different herbs. Can anyone think of a reason why not? I have PBC and Sjogrens and I take Urso. Has anyone...

Hi everybody, I want to do a colon cleanse with different herbs. Can anyone thin...

kandiepat

•8 years ago

2 Replies

Miss Leading Post

Hi all you wonderful folk out there. Someone posted a miss leading post concerning cannabis. , Well I complained to the moderators about it and I had a lovely...

Hi all you wonderful folk out there. Someone posted a miss leading post concerni...

Brummi

•8 years ago

7 Replies

Tonsils

Just wondering how many of us have had our tonsils removed. I was reading an article about tonsillitis as my daughter has it at the moment. It said that the...

Just wondering how many of us have had our tonsils removed. I was reading an art...

zipitydoo

•8 years ago

13 Replies

Rapid progression of PBC and scared

NHello, I am new to all this. I tested AMA+ 9 months ago had a livergram showing stage 1 Pbc. Just had another livergram and biopsy done now stage 3/4. Dr....

NHello, I am new to all this. I tested AMA+ 9 months ago had a livergram showin...

stoowill

•8 years ago

3 Replies

Jaundice

My friend was Jaundice before 4 year , and now he has problems when he drink alcohol.....?

My friend was Jaundice before 4 year , and now he has problems when he drink al...

Saleenanjas

•8 years ago

7 Replies

Maybe NOT PBC......perhaps Nodular Regenerative Hyperplasia?

Friends... I had my appointment Monday at NIH, the National Institute of Health. For those of you not in the US, this is our country's top hospital and...

Friends... I had my appointment Monday at NIH, the National Institute of Health....

JennyCville

•8 years ago

50 Replies

I won so glad

Okay so I have been fighting for low dose naltrexone for over a year now.. Been paying for it private for over 3 year.. I so glad I had my mum if it was not...

Okay so I have been fighting for low dose naltrexone for over a year now.. Been ...

Karlimc93

•8 years ago

23 Replies

More confused than ever!

Hi, Everyone. I just got the results from my liver biopsy and the results are normal! I know I should be jumping for joy but I just don't have a warm feeling...

Hi, Everyone. I just got the results from my liver biopsy and the results are no...

tinypixie

•8 years ago

5 Replies

MRI instead of biopsy

http://www.prnewswire.co.uk/news-releases/european-consortium-seeks-to-replace-liver-biopsies-with-painless-mri-scans-575358561.html Earlier this year I...

http://www.prnewswire.co.uk/news-releases/european-consortium-seeks-to-replace-l...

butterflyEi

•8 years ago

1 Reply

Urso

I was diagnosed with PBC last month. I did not have any symptoms. Then came Urso.😣. Now I itch at night, feel nauseous and have problems with anger. Too much...

I was diagnosed with PBC last month. I did not have any symptoms. Then came Urso...

LindyRich

•8 years ago

35 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for April 2016

AMA blood work question

Newly Diagnosed

Newly diagnosed and concerned about pain

Some new crappy symptoms

Newly diagnosed

Turmeric tablets?

Ra medication

Test results

Felt very sick

Any implications taking Ursofalk without food

low blood sugar

Waiting for biopsy

Jan

PBC - Recently diagnosed after 6 long years

Sudden red itchy swollen palms - very painful!

Second hepatology appointment

Treatment and advice

Study for the new med Obetichiolic Acid and my experience

Is this disappointing information?

Pain relief

Colon cleanse

Miss Leading Post

Tonsils

Rapid progression of PBC and scared

Jaundice

Maybe NOT PBC......perhaps Nodular Regenerative Hyperplasia?

I won so glad

More confused than ever!

MRI instead of biopsy

Urso

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