Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for October 2017

Second opinion

Have seen a different consultant today for a second opinion, he says I definitely have pbc (from blood work he believes it's early stages as levels not too...

Have seen a different consultant today for a second opinion, he says I definitel...

Louisethew

•7 years ago

14 Replies

Every single part of me hurts.

Seriously, I'm in pain today. Every single part of me hurts. My bones hurt. My joints hurt. This is bullshit. My dr said it is likely related to my vit D...

Seriously, I'm in pain today. Every single part of me hurts. My bones hurt. My ...

IAmTheGlue

•7 years ago

14 Replies

Give me a break !!!

I hate this God forsaken condition , can not recall what it's like not to itch !!!

I hate this God forsaken condition , can not recall what it's like not to itch !...

vicary

•7 years ago

27 Replies

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Follow up from Weekend....

Gastroenterologist called me today to tell me I have 2 choices for a Hepatologist.I can go to Columbus or Cleveland.I chose Cleveland since I seen quite a few...

Gastroenterologist called me today to tell me I have 2 choices for a Hepatologis...

PBCTracy

•7 years ago

2 Replies

Second opinion

Off tomorrow to see a different consultant (armed with 3 pages of questions thanks to the pbc foundation) Lots of questions about my pbc but mainly want to...

Off tomorrow to see a different consultant (armed with 3 pages of questions than...

Louisethew

•7 years ago

5 Replies

Confused how pbc diagnosis works?

What criteria defines Pbc definitively? I had an elevated Ama 2x second at 90. First i believe was high due to 5 months on metrozondale. Severe fatigue since...

What criteria defines Pbc definitively? I had an elevated Ama 2x second at 90. F...

Pbcornot

•7 years ago

7 Replies

First night with Urso

Well thank you for your encouragement. I literally tried a small grain of urso last night and will do that amount until I get a confirmation from hepatologist....

Well thank you for your encouragement. I literally tried a small grain of urso l...

Pbcornot

•7 years ago

9 Replies

Itching and Bruising

So for the past 4 maybe 5 weeks my legs have been very itchy. I know stratches happen but I felt the need to itch it as one would itch a mosquito bite. Then i...

So for the past 4 maybe 5 weeks my legs have been very itchy. I know stratches h...

Amy_Lucille

•7 years ago

6 Replies

AMAs in blood no other tests show it

I posted a few weeks ago and received reassuring replies. I wanted to post again to see if anyone had anymore information for me. I am in Virginia, USA I had...

I posted a few weeks ago and received reassuring replies. I wanted to post agai...

SSMPCW123

•7 years ago

10 Replies

Holy Cholesterol, Batman!

I had my cholesterol levels checked while at the doctor on Friday and can see my results online. I have not spoken to him yet. I've attached a screenshot of...

I had my cholesterol levels checked while at the doctor on Friday and can see my...

IAmTheGlue

•7 years ago

11 Replies

Janhullbridge

Hi does anyone live in Hullbridge ,Rochford Essex area. I have had PBC now for 13yrs and haven't found anyone who also has PBC. I noticed that someone in...

Hi does anyone live in Hullbridge ,Rochford Essex area. I have had PBC now for 1...

janetfolley

•7 years ago

11 Replies

esa appeal won

hi ther does anyone know what you do I have just been told I have won my appeal for esa I don't know what happens now thankyou

hi ther does anyone know what you do I have just been told I have won my appeal ...

clairesimmo

•7 years ago

1 Reply

Sharp RUQ when rolling over from left side to right in bed

Hello, Does anyone else experience a sharp, stabbing pain in the epigastric to RUQ region up high underneath ribs when rolling from left side to right side in...

Hello, Does anyone else experience a sharp, stabbing pain in the epigastric to R...

rlrick

•7 years ago

4 Replies

Need help decoding labwork

Hi all. I have had a rough year in terms of my health. Before this year I was very active and healthy. Played high intensity soccer 4 times a week, hiked, and...

Hi all. I have had a rough year in terms of my health. Before this year I was ve...

Mittenskittens52

•7 years ago

4 Replies

Im ok🙂

Thank you everyone for your concern & kind words. Yes, I've needed to take a bit of a break from a lot of things. A lot has happened since my most recent visit...

Thank you everyone for your concern & kind words. Yes, I've needed to take a bit...

Shulsey

•7 years ago

26 Replies

Elevated bun

Well liver enzymes but bun is elevated..... does anybody else have this issue? I just can’t drink more I pee all night already 🙄 maybe it’s too much protein...

Well liver enzymes but bun is elevated..... does anybody else have this issue? I...

Pamela4475

•7 years ago

2 Replies

Natural Alternative pbc?

Is there a natural treatment for PBC?

Pbcornot

•7 years ago

6 Replies

Scared to take urso ama m2 90

Hi, My new doctor ran extensive tests for my sudden muscle leg spasms that got real stiff last 2 months n severe weakness. I had a negative biopsy 6 years...

Hi, My new doctor ran extensive tests for my sudden muscle leg spasms that got ...

Pbcornot

•7 years ago

6 Replies

PBC and Cigarettes

How many of you smoke or used to smoke? I quit 2 years ago. I read that they think smoking could be a contributing factor to PBC.

How many of you smoke or used to smoke? I quit 2 years ago. I read that they t...

Ellewoods33

•7 years ago

21 Replies

Not sure if this is good news or not

I was diagnosed with PBC in May and have been on 1000 mg of URSO since.Today I went in for blood work.Results in May for Alkaline Phosphatase were 200 today...

I was diagnosed with PBC in May and have been on 1000 mg of URSO since.Today I w...

PBCTracy

•7 years ago

4 Replies

Went to Dr today

So, after being diagnosed PBC/AIH overlap syndrome, my GI put me on prednisone (10mg long term) along with the Urso and Atarax. My last blood tests on Monday...

So, after being diagnosed PBC/AIH overlap syndrome, my GI put me on prednisone (...

IAmTheGlue

•7 years ago

8 Replies

Where is Shulcey

Shannon are you ok we are thinking of you

Hidden

•7 years ago

6 Replies

Shannon/shulcy

Where is Shannon please Are you ok

Hidden

•7 years ago

1 Reply

Sarcoidosis?

Hi all! I have been wondering for a while about my having Sarcoidosis in my liver as well as PBC per diagnosis. Does anyone here have Sarcoidosis as well?...

Hi all! I have been wondering for a while about my having Sarcoidosis in my live...

Q8Cooper

•7 years ago

4 Replies

Flu Shot

I think some of have gotten your shot. I’m about to. I did look on CDC regarding mercury. Only in multi dose vials, to minimize contamination. So I’m good. No...

I think some of have gotten your shot. I’m about to. I did look on CDC regarding...

gwillistexas

•7 years ago

12 Replies

Non-responder stopped taking UCDA/Urso

Hi, I’ve been told I’m a non-responder to ucda after taking it for 13 yrs! My LFTs have progressively worsened in stages with plateaus in between. I’ve...

Hi, I’ve been told I’m a non-responder to ucda after taking it for 13 yrs! My LF...

Kateb17

•7 years ago

20 Replies

PBC pregnant with sinus infection

Help. I'm 37 yrs old and 22 weeks preggo. I'm having severe itching due to slightly elevated bile salts and now I've been sick with nasty cold for eleven days....

Help. I'm 37 yrs old and 22 weeks preggo. I'm having severe itching due to sligh...

Grace8888

•7 years ago

4 Replies

Itching Driving Me Crazy

Hello Everyone. Sorry I haven't been around in a while. I have been itchy to the extreme. The back of my head is the worse but it is also top of 1 foot,...

Hello Everyone. Sorry I haven't been around in a while. I have been itchy to th...

Y-now

•7 years ago

8 Replies

Newly diagnosed

Hi everyone, can anyone explain the 'itch' to me please? I am not clawing my whole body but keep getting what I can only describe as little bite feelings in...

Hi everyone, can anyone explain the 'itch' to me please? I am not clawing my who...

ETW1

•7 years ago

3 Replies

Diagnosed with PCB stage 4 urso effective?

Hello, I'm new here and recently diagnosed with PCB stage 4. My specialist has given me urso but since my diagnosis i've read so much about PCB and almost al...

Hello, I'm new here and recently diagnosed with PCB stage 4. My specialist has ...

Suzie38

•7 years ago

19 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for October 2017

Second opinion

Every single part of me hurts.

Give me a break !!!

Follow up from Weekend....

Second opinion

Confused how pbc diagnosis works?

First night with Urso

Itching and Bruising

AMAs in blood no other tests show it

Holy Cholesterol, Batman!

Janhullbridge

esa appeal won

Sharp RUQ when rolling over from left side to right in bed

Need help decoding labwork

Im ok🙂

Elevated bun

Natural Alternative pbc?

Scared to take urso ama m2 90

PBC and Cigarettes

Not sure if this is good news or not

Went to Dr today

Where is Shulcey

Shannon/shulcy

Sarcoidosis?

Flu Shot

Non-responder stopped taking UCDA/Urso

PBC pregnant with sinus infection

Itching Driving Me Crazy

Newly diagnosed

Diagnosed with PCB stage 4 urso effective?

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