Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,389 members • 7,995 posts

All posts for November 2023

Fibroscan fluctuating scores

Hi there, So I’ve had my routine check up with my hepatologist which involves taking bloods and doing a fibroscan. Whilst I wait for the blood results to...

Hi there, So I’ve had my routine check up with my hepatologist which involves t...

FarahS

•5 months ago

4 Replies

Fibroscan Results with PBC

I had a private fibroscan today which was surprisingly normal and even healthy! CAP198 and Kpa5.5. I say surprised as my LFT's are off the scale high. Over...

I had a private fibroscan today which was surprisingly normal and even healthy! ...

Becks880

•5 months ago

8 Replies

PCB and Edible cannabis

My doctor advises me not to drink any alcohol, but did not say no to cannabis as a recreacional thing. Not that I will= become a chronic user…i won’t, but to...

My doctor advises me not to drink any alcohol, but did not say no to cannabis as...

Gaspereaux

•5 months ago

5 Replies

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Hair&Nails

hi all Ive not been on for a while hope everyone is keeping warm now the weather is changing. In need of advice My hair is thinning a lot around my hair...

hi all Ive not been on for a while hope everyone is keeping warm now the weathe...

Eppy

•5 months ago

6 Replies

bilirubin

i have pbc/aih …. my 3 monthly blood test is back and the bilirubin levels are way up ….. just wondering if anyone knows what this may indicate?

i have pbc/aih …. my 3 monthly blood test is back and the bilirubin levels are w...

She-66

•5 months ago

1 Reply

Double Dosing Cholestyramine

I have been taking a single dose of cholestyramine for several months but now my itching is severe again. Taking a double dose means staying up late to time it...

I have been taking a single dose of cholestyramine for several months but now my...

Carly92

•5 months ago

7 Replies

Treatment for perimenopausal symptoms and PBC

Hi, A year ago I had my first bout of very strange and severe anxiety and depression linked to perimenopause. I am 48. A blood test showed my oestrogen level...

Hi, A year ago I had my first bout of very strange and severe anxiety and depres...

Turquoise2075

•6 months ago

13 Replies

Bloodshot eyes

I've accidentally got shampoo in my dry eyes and made them bloodshot I'm really fatigued today and yesterday

I've accidentally got shampoo in my dry eyes and made them bloodshot I'm really ...

Oldbloke1

•6 months ago

3 Replies

Bruising from fibroscan

I've a very tender area on my ribs a few days after my fibroscan, could that be the cause? Has anyone else experienced this?

I've a very tender area on my ribs a few days after my fibroscan, could that be ...

Cressy

•6 months ago

9 Replies

PBC - liver transplant donors and blood group questions

Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed,...

Hi - I either read on this website or the PBC Facebook site in the last couple o...

Cascade35

•6 months ago

3 Replies

Urso stopped working

hi everyone Can anyone help Urso has stopped working and being put onto Ocaliva. i have been on Urso since diagnosed in 2012. Not sure what to expect ??...

hi everyone Can anyone help Urso has stopped working and being put onto Ocali...

MrsFlee

•6 months ago

7 Replies

Sore throat on urso

Hi Has anyone experienced a constant sore throat when starting urso? I started 3 weeks ago and have been feeling fine, but last 10 days I have had a sore...

Hi Has anyone experienced a constant sore throat when starting urso? I started ...

Misn

•6 months ago

1 Reply

Inner Ear condition

Hi Does anyone have another autoimmune condition affecting inner ear? I’ve had a couple of bouts of ‘acute labyrinthitis’ often have itching in one ear that...

Hi Does anyone have another autoimmune condition affecting inner ear? I’ve had...

DebatDG9

•6 months ago

6 Replies

Hypereosinofilia with Pbc,ursofalk side effects.

Hello !!I have just been diagnosed with PBC,as you can imagine it was a huge surprise considering I have never had health issues before. Everything started...

Hello !!I have just been diagnosed with PBC,as you can imagine it was a huge sur...

Alina8004

•6 months ago

2 Replies

OCALIVA

Hello! Anyone is taking OCALIVA in addition to Ursodiol to lower ALP? Does it work? Do you have any side-effects? How long have you been taking it? My ALP...

Hello! Anyone is taking OCALIVA in addition to Ursodiol to lower ALP? Does it...

iagra

•6 months ago

16 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for November 2023

Fibroscan fluctuating scores

Fibroscan Results with PBC

PCB and Edible cannabis

Hair&Nails

bilirubin

Double Dosing Cholestyramine

Treatment for perimenopausal symptoms and PBC

Bloodshot eyes

Bruising from fibroscan

PBC - liver transplant donors and blood group questions

Urso stopped working

Sore throat on urso

Inner Ear condition

Hypereosinofilia with Pbc,ursofalk side effects.

OCALIVA

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