Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for February 2021

Covid Vaccine

Hi as PBC is classified as a chronic liver disease does anyone know if that means we will be offered the vaccine under level 6? Has anyone not meeting the...

Hi as PBC is classified as a chronic liver disease does anyone know if that mean...

Deecass

•4 years ago

25 Replies

URSO and fluctuating results

Hi... my wife was diagnosed with PBC last year and started on URSO 9 months ago. Her first results were excellent, but her recent blood test showed a small...

Hi... my wife was diagnosed with PBC last year and started on URSO 9 months ago....

dlagasse

•4 years ago

5 Replies

Bladder pain

I have been in the hospital for a few days with severe bladder pain. Has anyone had this while taking Urso as well as frequent urination? Test are all over...

I have been in the hospital for a few days with severe bladder pain. Has anyone...

Jennyhadenough

•4 years ago

5 Replies

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Job

Hi has anyone reasontly given up there job due to fatigue I want to makes me fill like I'm losing my independence and once I've done it theres no turning back...

Hi has anyone reasontly given up there job due to fatigue I want to makes me fil...

Purdy2017

•4 years ago

12 Replies

Meuniers disease

I’m curious to know if any one with PBC has been diagnosed also with meuniers disease I have been asymptomatic PBC for years with few problems . Now at 70...

I’m curious to know if any one with PBC has been diagnosed also with meuniers di...

boneytoys

•4 years ago

17 Replies

Covid Vaccine

Hi all hope you are all keeping safe a question i need some light on has anyone had the Covid vaccine with having a low platelet count (Thrombocytopenia...

Hi all hope you are all keeping safe a question i need some light on has anyo...

cavi

•4 years ago

6 Replies

Low calorie diet

I am thinking of going on a very low calorie diet (800 calories, medically supervised, meal replacement). Is this thought of to be safe with PBC?

I am thinking of going on a very low calorie diet (800 calories, medically super...

sjt58

•4 years ago

5 Replies

PBC and Tylenol

.Hello, I was diagnosed with PBV stage 2 9 years ago. Now early stage 4 , been taking Urso which worked for years but now going to also start on Ocaliva next...

.Hello, I was diagnosed with PBV stage 2 9 years ago. Now early stage 4 , been ...

BCer

•4 years ago

10 Replies

PBC/AIH overlap new diagnosis don’t know what to expect

Hi all, new to this but seeking some advice. Had dark urine and bit of itching so sent for blood test which showed very high levels of ALT. Ultrasound and MRCP...

Hi all, new to this but seeking some advice. Had dark urine and bit of itching s...

Nt14

•4 years ago

4 Replies

Fingers

I am wondering if anyone else has experienced problems with their fingertips and nails (e.g. loss of sensation and thickening of tips of fingers, nails...

I am wondering if anyone else has experienced problems with their fingertips and...

magria

•4 years ago

7 Replies

Raised platelets

Hi. Just got blood results, is high platelets part of PBC.

Nellies47

•4 years ago

7 Replies

Stuff that helps me

Diagnosed 2012 PBC alp222 ALT 60 antibody pos On UCDA for lft since 2013 Bezafibrate my request since 2020 ( papers from Japan/ France Methotrexate for...

Diagnosed 2012 PBC alp222 ALT 60 antibody pos On UCDA for lft since 2013 Bezaf...

milo2002

•4 years ago

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What Stage am I?

I was diagnosed in 2014. I have no idea what stage I am at. Due to Covid etc have not seen a consultant since 2018. Have now heard she has left. Her Secretary...

I was diagnosed in 2014. I have no idea what stage I am at. Due to Covid etc hav...

Balloch58

•4 years ago

20 Replies

Antidepressants

I have recently read that Mirtazapine antidepressant helps in PBC patients is the true as I am suffering with depression and worried about what medication I...

I have recently read that Mirtazapine antidepressant helps in PBC patients is th...

Twill

•4 years ago

2 Replies

Gall Bladder

Are gall bladder problems associated with PBC or taking Urso?

berg944

•4 years ago

2 Replies

Gall baldder polyp

I have been told that I have a 10mm polyp on my gall bladder and that I have to have the gall bladder removed. what are the chances of the polyp being...

I have been told that I have a 10mm polyp on my gall bladder and that I have to ...

nosroblig

•4 years ago

7 Replies

PBC and Poop

Anyone with PBC ever experience having orange poop? After lots of research it turns out that orange poop indicates the lack of bile salts. After learning...

Anyone with PBC ever experience having orange poop? After lots of research it t...

DianaCoats

•4 years ago

12 Replies

PBC

What tests should I have. Recently diagnosed without ant feed back from the abrupt consultant.

What tests should I have. Recently diagnosed without ant feed back from the abr...

HummingBirds1944

•4 years ago

5 Replies

New and confused

Diagnosed with pbc a year ago have aches and constantly fall asleep with out any real warning. Lately feel like I have a chest infection coughing some...

Diagnosed with pbc a year ago have aches and constantly fall asleep with out any...

Mikekel

•4 years ago

4 Replies

Re, vaccine

Hi thanks to all who replied to my post, it's seems there is a mixed reaction. Thanks, Nelly

Hi thanks to all who replied to my post, it's seems there is a mixed reaction. ...

Nellies47

•4 years ago

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Urso - Hair loss and weight gain...

Hi there. I am newly diagnosed with PBC and have been taking Urso for just over two months. I am seeing that my hair is starting to fall out and for no...

Hi there. I am newly diagnosed with PBC and have been taking Urso for just ove...

Willow4096

•4 years ago

10 Replies

Covid vaccine side effects

Hi all. I'm a nurse and will be getting my covid vaccine this week. Some of my colleagues have had both vaccines and a lot were very ill after the 2nd one....

Hi all. I'm a nurse and will be getting my covid vaccine this week. Some of my ...

Nellies47

•4 years ago

15 Replies

Recent Diagnosis. What tests should I ask for?

I was recently diagnosed with PBC with a positive AMA and elevated liver enzymes. Are there other tests I should request to better understand my condition? Is...

I was recently diagnosed with PBC with a positive AMA and elevated liver enzymes...

sjt58

•4 years ago

2 Replies

Worried about fibroscan

Hi. I was diagnosed with seronegative PBC around 11 years ago. There has always been a question about overlap with AIH but there has never been enough...

Hi. I was diagnosed with seronegative PBC around 11 years ago. There has always ...

Smarties18

•4 years ago

10 Replies

When do you know if Urso is working?

Hello, I was recently diagnosed with PBC and just started on Urso . How long does it take before they know if the medication is working? When do they repeat...

Hello, I was recently diagnosed with PBC and just started on Urso . How long doe...

sjt58

•4 years ago

5 Replies

Cystitis

Hi can anyone recommend anything for cystitis, driving me mad.

Nellies47

•4 years ago

14 Replies

Itching driving me mad

I have tried everything I can think of to stop this constant itching. Can't sleep at night as its driving me mad. My skin is so sore from scratching, even my...

I have tried everything I can think of to stop this constant itching. Can't slee...

Spanishnan

•4 years ago

5 Replies

Anyone got ms as well?

Anyone with pbc and ms out there?

Lagathavikings

•4 years ago

25 Replies

Toilet trouble

Hi sorry for post. I got bad constipation. Anyone else?? Any tips x

Lagathavikings

•4 years ago

10 Replies

Can shelly please contact me..

Hi shelly it's traci. We spoke briefly at todays 2pm with the professor... How you doing after covid??? Have you had any specific problems?? I'm just left...

Hi shelly it's traci. We spoke briefly at todays 2pm with the professor... How y...

Lagathavikings

•4 years ago

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Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for February 2021

Covid Vaccine

URSO and fluctuating results

Bladder pain

Job

Meuniers disease

Covid Vaccine

Low calorie diet

PBC and Tylenol

PBC/AIH overlap new diagnosis don’t know what to expect

Fingers

Raised platelets

Stuff that helps me

What Stage am I?

Antidepressants

Gall Bladder

Gall baldder polyp

PBC and Poop

PBC

New and confused

Re, vaccine

Urso - Hair loss and weight gain...

Covid vaccine side effects

Recent Diagnosis. What tests should I ask for?

Worried about fibroscan

When do you know if Urso is working?

Cystitis

Itching driving me mad

Anyone got ms as well?

Toilet trouble

Can shelly please contact me..

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