PBC Foundation | HealthUnlocked

Hi everyone, I was recently diagnosed with Primary Biliary Cholangitis (PBC), and my doctor started me on UDCA. Unfortunately, I’m struggling to tolerate it....

Hi Just wondering if anyone stopped their Urso for a week to see if it helped with stomach issues. I've been on it now for 2 years and my numbers are all good...

I saw where the FDA issued a warning on ocaliva 12/12, because of serious liver injuries in patients who do not have cirrhosis. This is scary considering...

Diagnosed with Pbc last Feb through routine blood test, very high LFT'S, no symptoms, ultrasound normal, fibroscan 7.5, after taking urso within 3 weeks bloods...

What do you think is your strongest personality trait? for me, I think I'm a good listener

I know we have touched on this subject before ( I think) but it is so important to repeat. Although it is part of the guidelines regarding...

Well, yesterday’s visit didn’t go as expected. My GP seems to think my positive ANA & positive AMA relate to 2 separate issues. So I’ve been referred to...

I'm a little under the weather today so my 'tip' is short but I hope somewhat comforting to you..... It's OK to not be OK...... I hope you take...

I have PBC stage 4. Diagnosed 2023 . Very lucky as I was in a very bad way. Not overweight lost 4 stone. Was having weekly blood transfusions, stomach...

What was the best vacation spot you've been to?

Hello Everyone 🙂 Just a quick question: I’m still waiting on my appointment for hi & liver, but in the meantime, I’ve also received an invite for cancer...

anti-mitochondrial antibody This is the antibody seen in PBC. There is no evidence of it doing any harm to us. in and of itself....

osteoporosis This condition refers to the thinning of the bone making patients at greater risk of fractures especially to the hip...

Happy Holidays Everyone

Hello, I joined this group because I’ve been trying to research what it means to have serum anti nuclear antibody’s positive Cytoplasmic, & Mitochondrial...

https://www.fda.gov/safety/medical-product-safety-information/ocaliva-obeticholic-acid-intercept-pharmaceuticals-drug-safety-communication-serious-liver-injury...

Sorry this is so late in the day..... time seems to pass by during the holidays somehow. This time next week we will find ourselves in 2025. How can...

Hello and first of all Merry Christmas/Happy Holidays 🎄🎉 Chronic daytime sleepiness has been an issue for me since developing PBC. Fatigue and cognitive...

First of all, Happy New Year to all of you. I sincerely wish health and peace for you in 2025. Resolution - I...

my mother passed away from pemphigus because she was hemorrhaging from her mouth and nose etc. dr thought her labs were false positives and kept taking her off...

hi I have PBC/AIH overlap and see gastro dr in my local hosp in Northumberland. Can I request to move to a specific dr in a different trust (Newcastle) . Not...

I just wanted to 'check in' and see how everyone is doing with the holidays I know the whole season can be a time of sadness for many...

well that flopped, lol! Posted a picture but it’s chopped off. I’ve always had that issue posting pics on here. Anyway, Happy Holidsys to envy near and far...

Hello friends, I have been following this companies exciting research as they have been developing a nano-particle platform geared at addressing the...

What's the one thing you never got at Christmas ( from Santa, of course) that you had your heart set on?

I was diagnosed with PBC in September and started Urso thereafter. My bloods have all come back to normal range so I guess I’m an Urso responder which is...

After fighting a fungal rash since last April, i can finally say today that it is GONE! I have never had rashes before, and don’t really know if it is...

What 's a Christmas tradition in your own family? be it a food, activity or whatever 🎄

https://liverfoundation.org/resource-center/blog/what-i-wish-people-knew-about-pbc/ I wanted to post this again for you to read. Hopefully you can relate to...

Hi all, I have been reading a number of threads on here and have already learnt a lot, far more than my GP had to offer! I've been suffering with severe...