The PBC Foundation is the only UK organisation that specifically deals with Primary Biliary Cholangitis (PBC) - which is an autoimmune condition that...Read more
Smg7421 hours ago
19 Replies1 Like
Stages of PBC
N-Sedky9 days agoPOPULAR
Hello,I was just diagnosed a few days ago so I'm really still in the shock, dramatic time after hearing this. I have a boy who is 5 & he is ...
Bile in urine
spoul6 days agoPOPULAR
I've noticed my urine darken with a fluorescent yellow tinge over the last week. I'm pretty sure it's bile as I'm a retired midwife and due ...
Elevated Liver Enzymes - Positive AMA
alison6003 days ago
Hidden3 days ago
I have recently been diagnosed with lichen planus in my mouth. I understand it is another autoimmune disease. Does anyone know anything abou...
PBC & Depression
Hidden6 days ago
Hi i was just wondering if anyone else with PBC suffers from depression. I have only noticed it since i was diagnosed. Hope you can help
17 Replies1 Like
Urso side effects
Jaksgirl5 days ago
I've been taking the Urso for 4 days, I've had a terrible headache all 4 days. I've taken a few doses of ibuprofen to try to manage it. I'...
New to PBC
Lignite2 days ago
Just diagnosed with PBC. I am at stage 1-2
Hidden4 days ago
Given that we have to take Urso for the rest of our lives, does anyone know if we have to pay for the prescription? Thanks
Hidden15 days agoPOPULAR
Hi after a diagnosis 17yrs ago just after pregnancy when iitched like mad it has been mild so have not needed to take meds for it apart from...
Chazzy21 hours ago
Had another cancelled appointment and facing an 18 week wait... anyone know the complaint process and going private
Opposing Diagnostics about cirrhosis
Juamcc4 days ago
My gastroenterologist said I didn't have cirrhosis my hepatologist said I did have cirrhosis. Will a fibroscan settle this? I have autoimmun...
CathieG9 days ago
I've just moved from West Yorkshire to West Sussex and while in Yorkshire, attended the liver unit at St James hospital and really happy wit...
Sissymcc10 days ago
Anyone else diagnosed with PBC stage zero? I just got my diagnosis after a liver biopsy and I started Urso 300 3 times per day. My ANA is 1:...
13 Replies1 Like
Obeticholic Acid appointment update
Hidden8 days ago
Hello! I have been taking OCALIVA (Obeticholic Acid) for about 2 months. I've suffered pretty severe pruritis as a side effect and as a resu...
7 Replies4 Likes
Hungry all the time
Bobbycat1213 days ago
CathieG19 hours ago
With my new Ninja Bullet I've been experimenting with juicing and supplements. One that I've been using called Spirulina is, I read, good fo...
Mum has pbc
Flower-fairy7 days ago
Obstetric cholestasis that led to Primary Biliary Cholangitis
lauralocks1239 days ago
Hi all, I have a few elevated liver functioning tests that led to me getting a fibroscan. That result was 4.8. The consultant believes I co...
Confused and scared!
Hidden21 days ago
Hi after approximately 6 months of various blood tests, scans and doctors appointments I was referred to a specialist at my local hospital. ...
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