PBC Foundation | HealthUnlocked

I’m not sure why and I guess it doesn’t matter but the last few days I was wishing I would fall asleep and not wake up. I’m sure I’m not the only one that...

Hi everyone, I was recently diagnosed with Primary Biliary Cholangitis (PBC), and my doctor started me on UDCA. Unfortunately, I’m struggling to tolerate it....

Hi All, anyone on IQIRVO (? Dr. wants to supplement my URSO with it. I take 1000mg a day of URSO, but my ALP level is still elevated. 178. The side effects...

I recently had a fibroscan after 2 years since last one which showed 6.9 kpa now it's 7.7 they said mild fibrosis. Does this mean I'm going downhill? Really...

Hard to believe that today is already February 20. As I get older (soon to be 75!) the years really seem to fly by. I look around and another month is...

This certainly gives us an idea of how many deal with rare diseases every single day.

When I got up this morning - and not sleeping well lately (I know some of you can relate) the fatigue was awful. Just showering was an effort.... walking...

Hi Just wondering if anyone stopped their Urso for a week to see if it helped with stomach issues. I've been on it now for 2 years and my numbers are all good...

Trigger warning if you are easily pulled into depression or anxiety about your condition: Hello all. I posted on here a couple of days ago because I...

In late 2023 I started HRT because my perimenopause symptoms had become so severe - anxiety, depression and lack of sleep. I checked with my liver specialist...

morning, can anybody help I’ve just had results for bloods last week and my alt has a little rise is this something to worry about? I can’t speak with a doctor...

hi has anyone started this medication for pbc? I’ve just started 80mg of elafribnor with a 1000mg of Urso also… Just wondered if anyone has had any good...

hi guys has anybody had their Fibroscan scores improved after taking urso? eleni

Diagnosed with Pbc last Feb through routine blood test, very high LFT'S, no symptoms, ultrasound normal, fibroscan 7.5, after taking urso within 3 weeks bloods...

Looking back, what would you tell your '18 year old self' today?

hi all. PBC diagnosed in 2014. Been on urso since then and been with a gastroenterologist that basically just followed my disease with blood tests. Fibroscans...

What do you think is your strongest personality trait? for me, I think I'm a good listener

After suffering with severe pain in upper abdomen and back for sometime. Scans have revealed my gallbladder doesn't contract properly and problems with...

Who can relate to exchanging little 'themed' Valentines with your classmates? We used to love decorating that special shoe box with the...

Good morning all! (Morning in the US. 24 degrees and freezing rain later today!), If you look at my posts you will see that I have had a "blip" on my PBC...

I know we have touched on this subject before ( I think) but it is so important to repeat. Although it is part of the guidelines regarding...

It's cold, damp, and just yucky here. What is the perfect way for you to spend this kind of day?

Hi, I was diagnosed with PBC last year and am on urso, I have no symptoms and keep well and would like to go abroad on holiday this year. Two companies I've...

Hello Everyone, I have a question about itching as I have read several posts here about PBCers c/o of itching. Most of the posts talk about itching legs or...

senescence This refers to one of the ways that the cells that line the bile ducts ( biliary epithelial cells) respond to injury....

Prof David Jones will be answering your questions in this week's Q&A, which starts at 2pm UK time on Thursday. If you have any questions, please submit them...

Sorry for the late post. I had an early morning appointment almost an hour away - fighting traffic and the rain made for a nerve wracking drive.......

has anyone with findings on their biopsy with Nodular regenerative hyperplasia? I hope I spelt it right…. If anyone can tell me what happens after it is found...

Don't forget that Dr George Mells will be answering your #pbc questions from 2pm (UK time) tomorrow. If you have any questions, please submit them by using...

my mother passed away from pemphigus because she was hemorrhaging from her mouth and nose etc. dr thought her labs were false positives and kept taking her off...