PBC Foundation | HealthUnlocked

According to the Mayo Clinic Coffee ☕️ ☕️ ☕️ has components beyond just caffeine that are beneficial to people with chronic liver disease, including...

What is your favorite movie? Which one have you watched the most times? Hate to admit this but one of mine is Kong Skull Island. Others...

hi everybody, So I’m in my mid 40s and going through the perimenopause and really considering going on to HRT. It’s effecting my sleep, moods, and more...

In case some of you are wondering about the updated covid vaccine which is now available. I got the pfizer shot last weekend. My arm hurt and I was very tired...

Looking for some support as I have PBC and aged 76 Years. I live in Forfar near Dundee.

Does anyone take this? I was advised to take it recently, I have osteoporosis as well as PBC.

What is your favorite way to spend a day at home?

Regarding fatigue.... how you manage your fatigue can be just - or more - important than any drug treatment for it. We all need to learn to...

What item of clothing can you just not get rid of?

I was diagnosed with PBC 12 years ago & I have responded well to Urso. I now have hypothyroidism & NAFLD. My question to the group is whether others suffer...

Alp started going up after being started on Evenity and Repatha Anyone else have this experience?

Over 2 years on Urso and my ALP is in the normal range. Ultrasounds show an unremarkable liver. Yet I experience periodic feelings of despair and panic at...

Ok, folks.... what are you doing just for yourself? We all need to take time for ourselves.. if you have trouble justifying this, you...

When Thursdays rolls around I often begin my day by asking what should I say today to my group? What can I say that would matter? What...

I'm up, showered, did my hair, and even put on some makeup. I have an early morning with my primary this morning. Between the pouring rain and the...

Hi everyone, I had a recent diagnosis of probable PBC and was started on urso tablets for a years trial to see if my bloods improve. I had been fine on the...

Monitoring our PBC can often be confusing and even scary at times - I know how often we hold our breaths waiting for lab results. I know after diagnosis it...

What candy you got on Halloween would you give or trade away ? 😜🍭 Mine would most definitely be Three Musketeers or Milky Way---

What is your favorite Fall meal?

I caught part of Dr. Jones' Q&A today from The PBC Foundation. One of the best suggestions from him has to do with what/how to ask questions of your doctor....

My ALP levels have been normal in the past 10 years since I was diagnosed with PBC and resulting cirrhosis. Now all of a sudden my ALP is rising and has been...

Today is World Kindness Day, let's make a difference. “Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving...

Paraphrased from Dr. Jones' book, The Definitive Guide for Patients with Primary Biliary Cholangitis -...

We all wonder why the damage to the bile ducts even happen. The damage, is in part, due to our immune systems attacking some of its own healthy cells....

What just makes you smile?

I hope you all know how brave you all are..... We have been diagnosed with a disease you didn't cause, likely knew nothing about, got a doctor who hopefully...

Alkaline phosphatase It is an enzyme released as a response to injury to the bile ducts - not the liver itself. As more cells are...

Happy Halloween! 👻🦹‍♀️🎃 I remember so many rainy, cold nights to Trick or Treat in my neighborhood, pillow cases full of candy, masks you could hardly...

Has anyone had any experience with taking montelukast ( generic for singulair) which I have taken for many years for asthma. I have been diagnosed with PBC...

I'm hoping some of you are taking some time just for yourself.. even if it's just sitting quietly in a comfy place, reading a book, or going for a...