The PBC Foundation is the only UK organisation that specifically deals with Primary Biliary Cholangitis (PBC) - which is an autoimmune condition that...Read more
Recently diagnosed with PBC
Ljonesfnpa day ago
Just started taking Urso-itching terrible
Hidden3 days ago
At what stage of PBC would a fibroscan pick up damage from the disease
15 Replies1 Like
Fatigue and Muscle pain
CazK5 days ago
Hi all i got diagnosed with pbc 2 months ago when a routine blood test showed raised liver enzymes. Everything else came back perfect, norma...
Hello sunshine, 17 years diagnosed...
Hidden2 days ago
Hello Pcb people...
Checking back in to report on this crazy ride...
JennyCville2 days ago
Hi friends. I haven't been on these boards for awhile because I've been dealing with other health issues, but I thought I'd check back in an...
2 Replies4 Likes
Quick Urso poll
essexmike7 days agoPOPULAR
Chazzy4 days ago
Had my consultant appointment this morning who confirmed PBC and given me urso prescription to start when my blood results come back. While ...
Lcagar6318 days agoPOPULAR
30 Replies22 Likes
Any hints on taking urso? Having issues.
Hidden8 days agoPOPULAR
I am new here. Diagnosed with PBC a few months ago and prescribed urso. Just cannot tolerate it so far. Has anyone got any hints on what I c...
Vitamin d deficiency
spoul16 days agoPOPULAR
Just interested how many of you take supplements for this. It's cropped up a couple times recently in unrelated posts and seems to have stro...
28 Replies1 Like
PBC and free prescriptions
nazgoddard12 days agoPOPULAR
Hi everyone. My second post in as many days...
21 Replies5 Likes
Bile in urine
spoula month agoPOPULAR
I've noticed my urine darken with a fluorescent yellow tinge over the last week. I'm pretty sure it's bile as I'm a retired midwife and due ...
URSO and Severe Gas
mollymom6 days ago
I was diagnosed in Sept 2012 and put on URSO. I have always suffered from extreme gas since I was a teenager. It has nothing to do with wha...
ginam19 days agoPOPULAR
I was very fatigued, having bouts of itchiness, belching and having upper right quadrant pain. The pain reminded me of when I had gallston...
ama positive, but normal liver enzymes now.
breeski7 days ago
I went to the er with sternum pains for 4 days straight. They did some blood work and found my liver enzymes elevated at 400 and my alkaline...
Smg7423 days agoPOPULAR
26 Replies1 Like
lennie921515 days ago
I had my first 6 month appointment since diagnosis on Thursday its left me a bit upset. All my blood works were within normal boundaries whi...
kandiepat8 days ago
Hepatitis Chronic Screen
butterflyEi14 days ago
Has anyone any experience of being tested for Hepatitis...
Debilitating fatigue but good liver function
spoul18 days ago
Having retired on ill health 6 years ago and been diagnosed 18 yrs I always assume that the less energy I have, the worse my liver condition...
19 Replies2 Likes
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