PBC Foundation | HealthUnlocked

I’m almost a little reluctant to ask this question, but is anyone taking this new drug? My hepatologist would like me to try it considering Ocaliva isn’t...

Hello friends I hope you’re doing well! I’m booked to have a liver MRI ‘with contrast’ which I’m fairly sure uses Gadolinium as the contrast medium, at an NHS...

Does Anyone get palpitations and does anyone know if this is related to PBC?

Do you and your husband ( or significant other) really ever talk about your diagnosis? I know for me, my husband rarely spoke about it....

i am at wit’s end with this pain, that appears much worse at night~. Is this a symptom? I am in agony

What a whirlwind weekend flying to Tucson, AZ Friday afternoon, returning last night. Awful connection problems with all the flights on Friday. Should have...

I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book The Definitive Guide for Patients Who Have...

What was your first car?

Well, after our whirlwind weekend in airports and delayed flights, my husband just tested positive for Covid. Life just keeps giving us challenges, doesn't...

Hi members, just after a bit of advice please. I have hashimoto's and due to blood tests which were requested by my endocrinologist, positive mitochondrial...

I have high cholesterol , at 8 , i have tried all statins and cannot tolerate any of them.My main worry is i have had clots in the past and had a...

Who is dealing with brain fog? What are you experiencing? How are you dealing with it?

Hello all. I just wanted to share my experience and ask if there is anyone out there with a similar profile? In the 1990s I had a lot of symptoms which are...

We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need your help. This is the most important thing the Foundation has ever worked...

Urso responder........ Right now the criteria used is that the patients' alkaline phosphatase result is LESS than 1.67 times the upper...

Here in the Midwest we are suffering with some awful heat and high heat indexes - yesterday 107. I was wondering if the heat affects your level of fatigue?...

I have been on finofibrate and rifampcin for my itch but neither helped. My pharmacist told me colesevelam can help. Has anyone here tried it, and was it...

Hi everyone, I mentioned that in some ways, my PBC diagnosis was a blessing in that it’s led me down a healthier path with better eating choices. I now enjoy...

Hello everyone! I recently started taking ocaliva. I don't know if they help, I'm due to go and have some blood tests done. Pros...the sharp pain I used to...

If at all possible, see a knowledgable hepatologist Only use trusted and reputable sources for information Don’t google unless the article is current and...

hi I have pbc/aih stage 4 cirrhosis. On the usual meds ….. Go on my hols at the end of the month to Turkey , my feet always puff up when I’m there … are...

What would the title of your autobiography be?

What - if anything - has been positive about being diagnosed with PBC?

I'm going out of town for just a couple days Monday afternoon through Wednesday. I'll be in the Branson, MO and Dogwood Canyon area if anyone lives down that...

Curious if anyone experiences random liver area discomfort. Not pain, just a tender discomfort. Last usually 7 or so hours, then its good. Causes? PBC since...

from Dr. Jones's book The Definitive Guide for Patients With Primary Biliary Cholangitis.... One of the most common other auto immune...

www.robertgish.com/blog/the-pruritis-sheet This is a sheet of 'itch' information from one of the Q&A sessions held this week with Dr. Gish. In the search bar...

i am actually writing this for a young lady whom i found out has PBC and is a former student. She is not fifty, and seems to have an aggressive form of PBC....

"Due to family genetic problems, I was diagnosed with type 2 diabetes in 2020. Coupled with some of the things I experienced at the time, I felt like the whole...

Why do you think so many of us still have a difficult time making time for ourselves? Why is it so hard to just do something that takes...