PBC Foundation | HealthUnlocked

What have you found to be the greatest challenge for you since diagnosis?

Moderating a PBC support group before for several years, I had members nearly from every state in the US. If anyone would like to share what state they are...

I'll be leaving for The International PBC Summit in Edinburgh this Friday afternoon. I will return late on April 13th. I am excited to meet some interesting...

What advice did you get from your doctor when you were first diagnosed? or... did you even get any?

About a month or more ago, I wrote about this upcoming drug's potentially to be the next drug for second line treatment. By that I mean that for some reason...

I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a...

If you knew you couldn't fail, what would you try??

My 'Thursday Thoughts' was a conversation (hopefully) about itching. If anyone experiences this with their PBC, I know it would be helpful to others to read...

Would anyone be willing to post here when there are events or meetings locally in areas of the UK? I know these are usually part of The Bear Facts. I would...

Diagnosed with PBC 20 years ago which is !O3IS34zum=& well to OCA. But I have very painful legs particularly when resting . And a recent worrying symptom is...

I’m somewhat perplexed… since my diagnosis I’ve been told I have cirrhosis, because of my biopsy and ultrasound results. A recent fibroscan score was 7.4,...

Does anyone experiences 'brain fog'? If so , how do you deal with it? Has it affected your job performance at all? Does everyone know what this is?

What movie - at the theatre or on TV - have you seen the most times?

Share with us how you've taken care of yourself mentally and/ or physically this past week. We all deserve to take time for us...no matter how small the...

Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice...

has anyone taken milk thistle and alk phos or lft improve? are they any vitamins or supplements that have have been known to help PBC test results? thanks!

hi I have pbc/aih and on the usual meds . Just wondering if anyone has any trouble with their joints . I am getting so much grief from my knees . Had one sore...

I mentioned to you that one of the main premises of the Summit was to think about "what ifs" that we could change about how PBC is perceived and/or treated....

I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and...

Been feeling really draggy and have had a cold which will not go away for a month. So got a physical. Only abnormality was fasting glucose at pre-diabetes...

What are some ways you cope with the fatigue? How has the fatigue affected your life overall? What have you found helpful on those......

I have to be honest here... I'm wondering why so few members are asking for any advice from other members about any aspect of their PBC experiences or...

Hi, I've been on urso 2000mg daily for 8 years now, but it seems to give me diarrhoea lately. Does anyone else have this trouble, also does it mean it has...

I want to share more of The Summit information with you. I know many of you are literally from countries around the world. At The Summit we were given the...

Upcoming seminar....

What have you done for yourself in the past week? We all need to believe we matter enough to take time for ourselves. Share with us what...

I'm excited to be leaving for The International PBC Summit in Edinburgh the end of next week. I'll be bringing back as much information to you as I can about...

I hope each of you have a lovely day today! Easter Greetings from here in the Midwest...🐣🐇

https://my.clevelandclinic.org/health/diagnostics/22058-comprehensive-metabolic-panel-cmp Personally, I always have a CMP (comprehensive metabolic profile)...

I have been URSO for 4 months and will have bloods drawn in May. IF i am a responder (fingers crossed) and my ALP has started to lower, will my AST and ALT...