Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,383 members • 7,979 posts

All posts for September 2021

New with skin-related question

Hi, I'm new here and was diagnosed with PBC in November last year. I'm on 1000mg ursodeoxycholic acid a day. My main symptoms have been pain in the liver area...

Hi, I'm new here and was diagnosed with PBC in November last year. I'm on 1000mg...

Turquoise2075

•3 years ago

8 Replies

Deranged numbers

Hi I have always had deranged levels with my liver 2017 biopsy said zero negative AIH started prednisone numbers didnt change much ...pain in right side but...

Hi I have always had deranged levels with my liver 2017 biopsy said zero negati...

Fee63

•3 years ago

2 Replies

For those who took the vaccine, have you noticed your eGFR doing down?

Covid Vaccine

gwillistexas

•3 years ago

11 Replies

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Travel insurance

Can any one recommend travel insurance with PBC x

walker67

•3 years ago

9 Replies

Has anyone had zoledronic acid infusion. I have PBC and have recently been diagnosed with osteoporosis of the spine.

Zoledronic Acod Infusion

AngelaGM

•3 years ago

4 Replies

elevated ALP ALT AST

hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnosed with PTLD and recurrent PBC was put on ursodiol which within a few months...

hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnos...

azzurra

•3 years ago

19 Replies

Itching or neuropathy

I am currently waiting to see a rheumatologist for sjorgens symptoms, dry eyes, mouth etc however I have been itching like crazy, when I googled those symptoms...

I am currently waiting to see a rheumatologist for sjorgens symptoms, dry eyes, ...

Charlie276

•3 years ago

14 Replies

Good to be back

Hi everyone,just signed up again not been on for a while,hope all you pbcer are keeping good,during this trying time 🥰

Hi everyone,just signed up again not been on for a while,hope all you pbcer are ...

7706170

•3 years ago

1 Reply

Health conditions

Hi all well dreading this week got interview at work about my sickness doctor has been supportive and sent in a doctors repport highlighting my health...

Hi all well dreading this week got interview at work about my sickness doctor ha...

Purdy2017

•3 years ago

11 Replies

Multi trip travel insurance

Is multi trip travel insurance available in the UK? Nobody wants to know it appears. The problem is that most insurance companies use the same medical...

Is multi trip travel insurance available in the UK? Nobody wants to know it app...

Hidden

•3 years ago

3 Replies

Newly diagnosed PBC

Hi everyone. I was told on Monday that I have PBC. I'm still undergoing more tests to check for overlapping AI diseases as I match symptoms of several. Then in...

Hi everyone. I was told on Monday that I have PBC. I'm still undergoing more tes...

Exhaustedfairy44

•3 years ago

9 Replies

Colestyramine

Hi, I've tried taking this in water, juice and mashed banana with a touch of milk and find it impossible. Has anyone tried putting it in glycerine capsules...

Hi, I've tried taking this in water, juice and mashed banana with a touch of mi...

Wallsend

•3 years ago

5 Replies

Hello friends, Just curious on symptoms I have been having since starting Urso 7 months ago.

Anyone get a horse voice about 10 minutes after taking their Urso dose? I take 250mg 3 times a day. I also get very sleepy for about 15 minutes after each...

Anyone get a horse voice about 10 minutes after taking their Urso dose? I take 2...

Laurie62

•3 years ago

4 Replies

Bezafibrate combined with Urso

Hi all , not posted for a while but was wondering in anyone been trialled on Bezafibrate alongside Urso to try bring ALP down to near normal range ? It’s not...

Hi all , not posted for a while but was wondering in anyone been trialled on Bez...

Cody23

•3 years ago

27 Replies

Hello all, advise please

Hello all, Question: does anyone else have chronic sore throats/allergies and sore mouth salivary glands? My gums are also swollen and having to have deep...

Hello all, Question: does anyone else have chronic sore throats/allergies and s...

Geordielasstx

•3 years ago

12 Replies

Tired

Hello all not been on here for a while Fealing more and more tired then I was sleeping in the morning after taking the dogs out and in the afternoon been of...

Hello all not been on here for a while Fealing more and more tired then I was sl...

Purdy2017

•3 years ago

8 Replies

Voltarol

Hi there Does anyone know if it’s ok to use Voltarol Joint pain gel if you have PBC and are on Urso? Thanks

Hi there Does anyone know if it’s ok to use Voltarol Joint pain gel if you have...

Aishah88

•3 years ago

3 Replies

Monitoring Urdsfalk

I have been on Urdsfalk for 10 months and have had 3 appointments canceled How often should you be monitored?

I have been on Urdsfalk for 10 months and have had 3 appointments canceled How ...

HummingBirds1944

•3 years ago

3 Replies

Life expectancy about onlyj

Hi Robert yes l have read many misleading information. I was diagnosed and started on Urso in 2012 At that time being extremely sick since 2008 when my liver...

Hi Robert yes l have read many misleading information. I was diagnosed and star...

Deasimjay

•3 years ago

1 Reply

Do I need to mention PBC to GP?

I hope you all don’t mind, I’ve had subtle things going on for a while. Currently I have gallbladder type pain on and off itchy palms sole of feet some nausea...

I hope you all don’t mind, I’ve had subtle things going on for a while. Currentl...

Furbie

•3 years ago

10 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for September 2021

New with skin-related question

Deranged numbers

For those who took the vaccine, have you noticed your eGFR doing down?

Travel insurance

Has anyone had zoledronic acid infusion. I have PBC and have recently been diagnosed with osteoporosis of the spine.

elevated ALP ALT AST

Itching or neuropathy

Good to be back

Health conditions

Multi trip travel insurance

Newly diagnosed PBC

Colestyramine

Hello friends, Just curious on symptoms I have been having since starting Urso 7 months ago.

Bezafibrate combined with Urso

Hello all, advise please

Tired

Voltarol

Monitoring Urdsfalk

Life expectancy about onlyj

Do I need to mention PBC to GP?

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