Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for May 2021

PBC clusters

Apparently there are geographical clusters of PBC. Does anyone know anything about where these clusters are, or any other information about them? TIA

Apparently there are geographical clusters of PBC. Does anyone know anything abo...

Kakey

•4 years ago

11 Replies

Pfizer and ALP

I just received a letter from my consultant telling me that my ALP has dropped to 746 since my last bloods in December. It’s usually at least double that. The...

I just received a letter from my consultant telling me that my ALP has dropped t...

Diane62

•4 years ago

18 Replies

New here. ALP has been crawling up since past 9 Months. A little nervous thinking about what lies ahead!

Hello All, I'm new here on this forum. I'm 36 year old and last year in October my LFT were severely elevated..I have been heavily drinking week before the...

Hello All, I'm new here on this forum. I'm 36 year old and last year in October ...

idyllic420

•4 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Not officially diagnosed with PBC and need really your help..

Hi all, I am not officially diagnosed with PBC yet. During the regular blood check, it was found that I have slight elevation on my AST ( 36 ) and ALT (60),...

Hi all, I am not officially diagnosed with PBC yet. During the regular blood che...

Zois

•4 years ago

11 Replies

What are you taking for postmenopausal osteoporosis?

My Dexascan showed osteoporosis so doc wants me to start meds. Reading about the various options, I'm not excited! It would help to learn others experiences....

My Dexascan showed osteoporosis so doc wants me to start meds. Reading about the...

Susn

•4 years ago

10 Replies

Covid antibodies

Hi, I am 66 and have had PCB and AIH for 20 years. I am very lucky and have been relatively symptom free. I have been a member of the Biobank for most of...

Hi, I am 66 and have had PCB and AIH for 20 years. I am very lucky and have be...

Sandpiperx

•4 years ago

7 Replies

Symptoms?

Hi, first time posting here. Since having my first baby my LFTs have been higher than expected (not massively high but enough for concern). I am AMA negative...

Hi, first time posting here. Since having my first baby my LFTs have been higher...

Nome11

•4 years ago

6 Replies

Symptoms.s before diagnosis

Hey, before you were diagnosed, what were your symptoms? I went to the Dr's because I have a painless hard lump on the right side of my neck, exhaustion, and...

Hey, before you were diagnosed, what were your symptoms? I went to the Dr's beca...

Whoami76

•4 years ago

16 Replies

Itching

Itching like mad since being on codeine for back ache any else had this problem please?

Itching like mad since being on codeine for back ache any else had this problem ...

Richard35

•4 years ago

4 Replies

Hair loss?

Urdsofalk... I am starting to shed hair. Has anyone else had this experience with ursodeoxycholic acid?

Urdsofalk... I am starting to shed hair. Has anyone else had this experience wi...

HummingBirds1944

•4 years ago

13 Replies

Pain killers prescribed

hello I’m on urzo. Started yesterday can I take zap pain it’s a codine pain killer prescribed for a back injury? Please as well

hello I’m on urzo. Started yesterday can I take zap pain it’s a codine pain kil...

Richard35

•4 years ago

5 Replies

Hot flushes

Hi everyone is black gosh good for hot flushes and is it ok to take with pbc x

Purdy2017

•4 years ago

9 Replies

I have PBC but I also now have degenerative disc disease and the pain is ruining my life. Does prescribed cannabis affect the liver?

Chronic back pain and PBC

Twill

•4 years ago

5 Replies

PBC catchup Melbourne Australia

Hi, is there any PBC members that live in Victoria Australia, we are having a lunch catchup IN Melbourne Wednesday 26th May 12 noon at Bluetrain...

Hi, is there any PBC members that live in Victoria Australia, we are having a lu...

DoreenD

•4 years ago

5 Replies

Happy Mother’s Day

Happy Mother’s Day to all you sweet ladies 🌹 May your day be filled with lots of joy and love! 🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹

Happy Mother’s Day to all you sweet ladies 🌹 May your day be filled with lots o...

gwillistexas

•4 years ago

5 Replies

New Itch Survey

Just to let you all know there is a live survey on the App asking about your itch experience. We would love to hear your perspective. I am sure you all know...

Just to let you all know there is a live survey on the App asking about your itc...

PBCRobert

Partner•4 years ago

8 Replies

Memory/Azathioprine

I completed four college classes with a 90% or higher so far. I have to say that it was not easy , my husband came through in a big way. I feel that he owes it...

I completed four college classes with a 90% or higher so far. I have to say that...

Jennyhadenough

•4 years ago

2 Replies

Benzfibrate

The message I just received from my hep is this…benzfibrate is being studied with ocaliva. He will let me know when the trial is available. 😊

The message I just received from my hep is this…benzfibrate is being studied wit...

gwillistexas

•4 years ago

15 Replies

Trigeminal Neuralgia

Hi, Are there any of you PBCr.s out there have Trigeminal Neuralgia? I am concerned about my liver as the meds I take to control it are for epilepsy?? My last...

Hi, Are there any of you PBCr.s out there have Trigeminal Neuralgia? I am concer...

Jaycee

•4 years ago

4 Replies

Wondering if anyone here has experience with an Endoscopic Liver Biopsy to check on PBC /AIH staging?

Anyone here had a liver biopsy done via and EUS / Endoscopy? Back in 2013, I had a traditional liver biopsy and apparently this is a new technique for...

Anyone here had a liver biopsy done via and EUS / Endoscopy? Back in 2013, I had...

JennerLayne

•4 years ago

4 Replies

ALT and AST?

I noticed my liver hurting more than usual in the past month, my abdomen more bloated, and generally feeling not well. I am always severely fatigued and when...

I noticed my liver hurting more than usual in the past month, my abdomen more bl...

claygi

•4 years ago

1 Reply

PBC back shoulder pain?

PBC pain did anyone also feel back pain? Just wondering because besides the right upper abdominal pain I also have a pain in my back by right scapula.

PBC pain did anyone also feel back pain? Just wondering because besides the righ...

Lorelle09

•4 years ago

15 Replies

Clinical Trial

I did visit with my hep on Friday. I think for the time being, I’m still where I was. The protocol is I can’t be on Ocaliva. Well, we knew that. I told him I...

I did visit with my hep on Friday. I think for the time being, I’m still where I...

gwillistexas

•4 years ago

26 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for May 2021

PBC clusters

Pfizer and ALP

New here. ALP has been crawling up since past 9 Months. A little nervous thinking about what lies ahead!

Not officially diagnosed with PBC and need really your help..

What are you taking for postmenopausal osteoporosis?

Covid antibodies

Symptoms?

Symptoms.s before diagnosis

Itching

Hair loss?

Pain killers prescribed

Hot flushes

I have PBC but I also now have degenerative disc disease and the pain is ruining my life. Does prescribed cannabis affect the liver?

PBC catchup Melbourne Australia

Happy Mother’s Day

New Itch Survey

Memory/Azathioprine

Benzfibrate

Trigeminal Neuralgia

Wondering if anyone here has experience with an Endoscopic Liver Biopsy to check on PBC /AIH staging?

ALT and AST?

PBC back shoulder pain?

Clinical Trial

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