Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,484 members•8,374 posts

All posts for September 2019

Gallbladder

Hello all I was just wondering. Can you still be eligible for liver transplant if you’ve had gallbladder removed. I ask because at one time there has been...

Hello all I was just wondering. Can you still be eligible for liver transplant i...

Irisw

•5 years ago

12 Replies

Dry Wheezy Cough

Dry wheezy cough .. anything to worry about?? As you were all so amazing at helping me get my head round everything I thought why sit here worrying when you...

Dry wheezy cough .. anything to worry about?? As you were all so amazing at help...

Bookwormfanati

•5 years ago

11 Replies

Mary55

Has anyone with pbc had swelling in face and abdomin.

55crousehouse

•5 years ago

3 Replies

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New on here and seeking advice

Hi everyone. Until last week, I knew nothing about PBC and I have found out a lot from this forum and from the pbc foundation website. So thank you. I am...

Hi everyone. Until last week, I knew nothing about PBC and I have found out a lo...

Pootleflump

•5 years ago

2 Replies

Cyst on my pancreas

Does anyone besides myself have a cysttic lesion on their pancreas? I had ct scans ultrasounds and mri’s two . I’m being told I have 2 cystic lessons on my...

Does anyone besides myself have a cysttic lesion on their pancreas? I had ct sca...

Jennyhadenough

•5 years ago

9 Replies

Galbladder

What foods am I not allowed to eat. Looks like I’m losing my gal bladder in the morning

What foods am I not allowed to eat. Looks like I’m losing my gal bladder in the ...

Jennyhadenough

•5 years ago

28 Replies

Gallbladder

I’m sorry for bothering you al with my problems. My ct scan showed my gallbladder inflamed. I’m in the ER. I’m waiting on an ultrasound. Can I decide to have...

I’m sorry for bothering you al with my problems. My ct scan showed my gallbladde...

Jennyhadenough

•5 years ago

10 Replies

The Dreaded Itch

Hi All - Please I need help about the Dreaded Itch... I was diagnosed 1 month ago with PBC (and AIH overlap), For about a year beforehand, the only real...

Hi All - Please I need help about the Dreaded Itch... I was diagnosed 1 month ag...

positivethoughts03

•5 years ago

15 Replies

I’m new here

I was diagnosed today and was surprised my specialist doesn't want to see me until next year. I will be starting Urso tomorrow. Is sit normal not to be seen...

I was diagnosed today and was surprised my specialist doesn't want to see me unt...

kast18

•5 years ago

29 Replies

What happens to me next!!

Hi all! I am 40 years old and was diagnosed with PBC almost 3 years ago. Was originally told it would progress very slowly, but last month was told I need a...

Hi all! I am 40 years old and was diagnosed with PBC almost 3 years ago. Was ori...

Bookwormfanati

•5 years ago

31 Replies

Urso post transplant

Hi, I originally posted this on the liver trust forum, but it was suggested I put it here as well!! Evening all......yep, I used to be a copper!!! Had a trip...

Hi, I originally posted this on the liver trust forum, but it was suggested I pu...

Huggy7614

•5 years ago

10 Replies

Alpha feta protein

So relieved - hepatologist tells me my alpha feta protein has always been slightly elevated and is not a cancer marker unless it steadily climbs. Best not...

So relieved - hepatologist tells me my alpha feta protein has always been slight...

liver-bird

•5 years ago

6 Replies

What antibiotic is safe for liver?

Hi everyone, I am having issues with an infected tooth. I may have to have it pulled. I’ve been to the dentist and he is sending me to an endodontist this...

Hi everyone, I am having issues with an infected tooth. I may have to have it p...

Twojer

•5 years ago

27 Replies

High cholesterol

I haven’t posted in awhile. I’m hoping that all of you are well. My cholesterol has been elevating since diagnosis. It was usually my good cholesterol and...

I haven’t posted in awhile. I’m hoping that all of you are well. My cholesterol...

Jennyhadenough

•5 years ago

4 Replies

Has anyone stopped taking Ursodiol for a short time?

Has anyone stop taking your Urisidol for two weeks if so what happened or what was the longest you were not able to take your - Ursodeoxycholic acid (UDCA) -...

Has anyone stop taking your Urisidol for two weeks if so what happened or what w...

Arlie

•5 years ago

16 Replies

Hot flushes...menopause or PBC?

Hi everyone, I’m getting loads of hot flushes at the moment and not sure if they’re menopause or PBC. I’m leaning towards PBC because they start in the torso...

Hi everyone, I’m getting loads of hot flushes at the moment and not sure if they...

Hils67

•5 years ago

15 Replies

Massachusetts Support

Hello Everyone I am curious to know who is near me in the south of Boston MA area. Looking for support as I was diagnosed a month ago and still learning about...

Hello Everyone I am curious to know who is near me in the south of Boston MA are...

positivethoughts03

•5 years ago

9 Replies

Upper right quadrant pain

Hello all! I think this is my first post. I visit this site a few times a week and appreciate all the information you wonderful people provide. I was...

Hello all! I think this is my first post. I visit this site a few times a week ...

Lili1214

•5 years ago

24 Replies

First post

Can't believe I was diagnosed 4 years ago feels longer.... So tired today. The itch has been worse the last few days what creams so you had to help control it...

Can't believe I was diagnosed 4 years ago feels longer.... So tired today. The i...

Claireclark

•5 years ago

3 Replies

Pip medical

I have my pip medical in a week, feeling rather nervous about the whole thing,any words of wisdom or advice from any one that's gone through this Many thanks...

I have my pip medical in a week, feeling rather nervous about the whole thing,an...

Pinkcrush

•5 years ago

27 Replies

Could high AMA be something else?

Hi all. So back Dec had normal physical, liver enzymes high. Jan see doc for Shingles, liver enzymes at that time went up. I noticed looking over my bloodwork...

Hi all. So back Dec had normal physical, liver enzymes high. Jan see doc for Shi...

tnchikadee

•5 years ago

16 Replies

Food intolerances

Does having PBC cause you to develop food intolerances ? Over the past few years I have developed some food intolerances and I’m not sure if it’s due to my PBC...

Does having PBC cause you to develop food intolerances ? Over the past few years...

fudge13

•5 years ago

25 Replies

Itch

Hi guys I need help, I am currently taking URSO after having a break for a year, never did I have this itch ! Seems to get worse in the evening , What would...

Hi guys I need help, I am currently taking URSO after having a break for a year...

susanashworth

•5 years ago

4 Replies

Happy Birthday

@Oldham12 just want to wish you a very happy birthday Lynne. Hope it’s a relaxing day and you are pampered too. Jane xx

@Oldham12 just want to wish you a very happy birthday Lynne. Hope it’s a relaxin...

P13jne

•5 years ago

9 Replies

Muscle pain - posted 26 days ago

Just a quick update I posted about severe muscle pain upper body neck arms hands and I thank you all for your support. I slowly recovered with just slight...

Just a quick update I posted about severe muscle pain upper body neck arms hands...

boneytoys

•5 years ago

2 Replies

Struggling to function

Hi Everyone This is my first post even though I’ve been a member for more than 4 years since I’d been diagnosed with PBC. I’m now 46 years old, since the age...

Hi Everyone This is my first post even though I’ve been a member for more than ...

Box11

•5 years ago

14 Replies

Living with PBC for 34 years

I am Judith latter stages of PBC 82 years old now in full care past 10 months. Unable to walk, use my arms and have to be feed, Eat well and capable to go out...

I am Judith latter stages of PBC 82 years old now in full care past 10 months. U...

judithtoohey

•5 years ago

16 Replies

Glass half empty girl

Hi all, do any of you with PBC feel meloncholly, sad, grumpy even, pessimistic? I don't remember being this lack lustre all my life. In fact a glass of wine...

Hi all, do any of you with PBC feel meloncholly, sad, grumpy even, pessimistic? ...

kandiepat

•5 years ago

70 Replies

Brain fog! Aaarrrggghhhhhhh

Hi everyone hope you’re all coping with your endless issues as we’ve been given this horrible disease without a magic cure. My biggest issue today was finding...

Hi everyone hope you’re all coping with your endless issues as we’ve been given ...

P13jne

•5 years ago

46 Replies

Three months since diagnosis and Urso

I’m three months into the diagnosis of this disease and prescription of URSO. I’m wondering what everyone has experienced with side effects and/or the symptoms...

I’m three months into the diagnosis of this disease and prescription of URSO. I’...

Katienharley

•5 years ago

7 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for September 2019

Gallbladder

Dry Wheezy Cough

Mary55

New on here and seeking advice

Cyst on my pancreas

Galbladder

Gallbladder

The Dreaded Itch

I’m new here

What happens to me next!!

Urso post transplant

Alpha feta protein

What antibiotic is safe for liver?

High cholesterol

Has anyone stopped taking Ursodiol for a short time?

Hot flushes...menopause or PBC?

Massachusetts Support

Upper right quadrant pain

First post

Pip medical

Could high AMA be something else?

Food intolerances

Itch

Happy Birthday

Muscle pain - posted 26 days ago

Struggling to function

Living with PBC for 34 years

Glass half empty girl

Brain fog! Aaarrrggghhhhhhh

Three months since diagnosis and Urso

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