Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,387 members • 7,992 posts

All posts for May 2014

Hair loss

Hello all! My hair started thinning about a year ago but much worse the first of the year. I started on minioxidil topical and antigen lowering shampoos. My...

Hello all! My hair started thinning about a year ago but much worse the first o...

NotorDJP

•10 years ago

18 Replies

Does anyone suffer with fast heart beat ?

Alley27

•10 years ago

5 Replies

Travel Insurance - thought i would share

some of will know of my mission to pay less than the price of another holiday for travel insurance, my husband and I despite being 46 and 39 are dropping to...

some of will know of my mission to pay less than the price of another holiday fo...

ReiversMrs

•10 years ago

4 Replies

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Hi all , I'm newly diagnosed with pbc and wondering does anyone get pimple looking lumps ? Mainly chest and tops of arms?could it be diet??

mandilou

•10 years ago

7 Replies

Entering the gloom-again

Hi anyone.got to go for MRI this Sunday at 9.10 to acess these nodules yet again on my liver.had ct scan jan 13 to see if I had cancer and it was how they...

Hi anyone.got to go for MRI this Sunday at 9.10 to acess these nodules yet again...

cazz22

•10 years ago

10 Replies

Is it normal to have very smelly gas, regular bouts of nausea and nasty burping attacks with PBC/AIH? Thank you conniefused

Alley27

•10 years ago

12 Replies

Is it genetic

Hi, I have AIH/PBC overlap and one of the questions that has been bugging me is " could this thing be genetic?" I have not seen or heard from my father since...

Hi, I have AIH/PBC overlap and one of the questions that has been bugging me is ...

Alley27

•10 years ago

9 Replies

Men

Just interested. I know only 15-20% of men are sufferers and I've noticed of the handful of men I've met they have all had transplants. Tends the suggest that...

Just interested. I know only 15-20% of men are sufferers and I've noticed of the...

spoul

•10 years ago

19 Replies

My Tips to help all those with the itch which can drive you insane day and night!! (PS photo is of me and hubbys family wedding day 1/5/14).

Drink plenty of water plain is best 1-2 litres per day Avoid too much caffeine, sugar, foods that are high in fat or very spicy. Eat small and often (for me...

Drink plenty of water plain is best 1-2 litres per day Avoid too much caffeine, ...

littlemo

•10 years ago

5 Replies

Has anyone out there with PBC/AIH had to have a blood test done for TB I am waiting results for mine before I can start immunosuppressants?

MrsworryGuts

•10 years ago

4 Replies

Does anyone just have pbc?

I keep seeing people posting more than one autoimmune disorder and I was wandering if anyone has only been diagnosed with pbc. Has me so worried.

I keep seeing people posting more than one autoimmune disorder and I was wanderi...

mabbott

•10 years ago

37 Replies

Thanks for all replies to my holiday insurance request, sorry for delay in sending thanks, have had probs with internet. sorting ins today.

kfordk

•10 years ago

4 Replies

Does anyone have exercise intolerance?

I had never in my life heard of exercise intolerance. When I walked one time around my block, the next day I was so fatigued that I couldn't get out of bed....

I had never in my life heard of exercise intolerance. When I walked one time aro...

Abigail53

•10 years ago

19 Replies

I have a lot of pain on my upper rightside under ma ribcage, my legs ache badly , I feel sooo yucky ,also had pale stools for a few days x

mags_larkhall

•10 years ago

7 Replies

Have fun

Have a good Bank holliday everyone

Brummi

•10 years ago

4 Replies

Consultant appointments

Hi there everyone just wondering about your views on this? I have been having yearly checks at hospital for 15 yrs, but now my liver shows extensive cirrhosis...

Hi there everyone just wondering about your views on this? I have been having ye...

spoul

•10 years ago

15 Replies

Hi to you All,

In January 2011 I was diagnosed with PBC. After visiting the liver clinic at the Queen Elizabeth hospital in Birmingham for 2 years in June 2013 I had a liver...

In January 2011 I was diagnosed with PBC. After visiting the liver clinic at the...

Brummi

•10 years ago

13 Replies

Happy Outcome

Hi Went to see consultant today and he said I have PBC but pre-clinical PBC. and that it may never develop into the disease. He's arranging a bone scan and an...

Hi Went to see consultant today and he said I have PBC but pre-clinical PBC. and...

skywalker

•10 years ago

15 Replies

Why do need to tell my dentist that I have PBC?

What is the reason behind telling the dentist we have PBC? My first visit since diagnosis is coming up soon and if my dentist responds with "So why are you...

What is the reason behind telling the dentist we have PBC? My first visit since ...

Abigail53

•10 years ago

12 Replies

PBC fatigue and nutrition

Hi. I have been recently diagnosed with a cross over condition of PBC and Auto Immune hepatitis. After working for 22 years without a day off, I am finding...

Hi. I have been recently diagnosed with a cross over condition of PBC and Auto ...

Hlj100

•10 years ago

43 Replies

Help My mom was diagnosed with PBC and we need answers if anyone can help.

Hi everyone my mom is 72 years old and was diagnosed with PBC in January of 2013. She has little to no systems at this time. However last month according to...

Hi everyone my mom is 72 years old and was diagnosed with PBC in January of 2013...

andrea042473

•10 years ago

10 Replies

I have seen specialist today n he said I'm to have liver biopsy as I'm getting worse I have pbc and have high anas and amas don't really wan

To have it done as I've heard it hasrisks anyone had this procedure I'm in uk x

sophie666

•10 years ago

25 Replies

Life Assurance

Hi everyone, just wondered if anyone has had problems getting life assurance. My work emailed me today to say they are changing the company they use and I now...

Hi everyone, just wondered if anyone has had problems getting life assurance. M...

Vixta75

•10 years ago

6 Replies

Which one is the culprit for depression? I am currently on ursofalk 250 x 3, solupred 5 mg x 1, zyloric x1, and eltroxin 50 mg x 1 daily.

Since my doctor would not do it, I did; I am gradually withdrawing from solupred, and instead of taking ursofalk three times daily, I am taking two, and...

Since my doctor would not do it, I did; I am gradually withdrawing from solupred...

Batatis

•10 years ago

4 Replies

Everyone suffering from leg cramps!

Yes quinine works as my 85 year old mother used to take that! But it's not the problem!! Fix it in days right! Read my reply to Ducker as that is your body...

Yes quinine works as my 85 year old mother used to take that! But it's not the p...

Mickey1964

•10 years ago

3 Replies

have 2 holidays booked for june and september, can anyone give the names of travel ins firms they have used that cover pbc

kfordk

•10 years ago

18 Replies

Recently my mother underwent Firboscan test, she has median - 41.2 , IQR - 10.1, IQR % age - 24%.Can u tell me the level of liver damage.

She also had an HVPG test with HVPG-13.5 mm of HG. My doctor is keeping us in darkness about the the whole damage %age and treatment. This has led to confusion...

She also had an HVPG test with HVPG-13.5 mm of HG. My doctor is keeping us in da...

zaraki

•10 years ago

2 Replies

Does anyone with pbc suffer with severe leg cramps....

Does anyone have chronic vitamin D issues

Ducker

•10 years ago

22 Replies

I HAVE A POSITIVE AMA AND ANA,LFTS ARE NORMAL BILE DUCTS ARE DILATED 7MM. DO I HAVE PBC OR CAN THIS BE ANOTHER DISEASE?

ROBINLORI

•10 years ago

6 Replies

PBC downunder, South Australia here.

Slow action from long term Docs for a number of years re elevated LFT's until decided to change and then shock action right away, but at least some action....

Slow action from long term Docs for a number of years re elevated LFT's until de...

Luby48

•10 years ago

17 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for May 2014

Hair loss

Does anyone suffer with fast heart beat ?

Travel Insurance - thought i would share

Hi all , I'm newly diagnosed with pbc and wondering does anyone get pimple looking lumps ? Mainly chest and tops of arms?could it be diet??

Entering the gloom-again

Is it normal to have very smelly gas, regular bouts of nausea and nasty burping attacks with PBC/AIH? Thank you conniefused

Is it genetic

Men

My Tips to help all those with the itch which can drive you insane day and night!! (PS photo is of me and hubbys family wedding day 1/5/14).

Has anyone out there with PBC/AIH had to have a blood test done for TB I am waiting results for mine before I can start immunosuppressants?

Does anyone just have pbc?

Thanks for all replies to my holiday insurance request, sorry for delay in sending thanks, have had probs with internet. sorting ins today.

Does anyone have exercise intolerance?

I have a lot of pain on my upper rightside under ma ribcage, my legs ache badly , I feel sooo yucky ,also had pale stools for a few days x

Have fun

Consultant appointments

Hi to you All,

Happy Outcome

Why do need to tell my dentist that I have PBC?

PBC fatigue and nutrition

Help My mom was diagnosed with PBC and we need answers if anyone can help.

I have seen specialist today n he said I'm to have liver biopsy as I'm getting worse I have pbc and have high anas and amas don't really wan

Life Assurance

Which one is the culprit for depression? I am currently on ursofalk 250 x 3, solupred 5 mg x 1, zyloric x1, and eltroxin 50 mg x 1 daily.

Everyone suffering from leg cramps!

have 2 holidays booked for june and september, can anyone give the names of travel ins firms they have used that cover pbc

Recently my mother underwent Firboscan test, she has median - 41.2 , IQR - 10.1, IQR % age - 24%.Can u tell me the level of liver damage.

Does anyone with pbc suffer with severe leg cramps....

I HAVE A POSITIVE AMA AND ANA,LFTS ARE NORMAL BILE DUCTS ARE DILATED 7MM. DO I HAVE PBC OR CAN THIS BE ANOTHER DISEASE?

PBC downunder, South Australia here.

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