Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,383 members • 7,975 posts

All posts for December 2012

Lost sense of smell?

Several years before being diagnosed with PBC (though, in retrospect, not without symptoms), I lost my sense of smell. This could be entirely unrelated to PBC,...

Several years before being diagnosed with PBC (though, in retrospect, not withou...

jrobertson1

•11 years ago

8 Replies

Nosebleeds:(

They aren't full heavy nosebleeds and only happen when I'm clearing my nose. My liver scan was normal apart from a touch of fatty liver but I am overweight so...

They aren't full heavy nosebleeds and only happen when I'm clearing my nose. My ...

Moomin900

•11 years ago

5 Replies

Symptoms - relate to PBC?

Hi I have been wondering recently whether my symptoms actually relate to PBC or whether they could be attached to something else. I always find it hard to...

Hi I have been wondering recently whether my symptoms actually relate to PBC...

hannah1973

•11 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Does everyone with raised levels of bilirubin have itch?

I ask this question as I am one of the unfortunates with PBC who has always had itch even though my bilirubin levels were within the normal range. Thankfully...

I ask this question as I am one of the unfortunates with PBC who has always had ...

littlemo

•11 years ago

1 Reply

Fatigue and tiredness.

can you please describe exactly what this feels like.

Hidden

•11 years ago

11 Replies

How long did referral take?

Hello I am new to the site, I have been experiencing aching legs, rashes, extreme tiredness and I get so cold my feet are constantly freezing and when my hands...

Hello I am new to the site, I have been experiencing aching legs, rashes, extrem...

sarfro

•11 years ago

5 Replies

Am I on the PBC-UK site? It seems mostly everyone on here lives in the UK. Just wondered. Thanks for your reply.

WendyMarie

•11 years ago

11 Replies

So happy

Got bloods done yesterday and they have gone down to 123 so won't be going into hospital lets hope they go down more and stay that way :)

Got bloods done yesterday and they have gone down to 123 so won't be going into ...

Karlimc93

•11 years ago

5 Replies

On a scale of 1-10. how painful is a liver biopsy? 10 being the high number. Thanks for any feedback.

WendyMarie

•11 years ago

67 Replies

Could do with wheelchair can't walk the pain is so bad roll on 15th jan see my nuro then had enough pain pain pain that's life I guess xx

karenlesley

•11 years ago

7 Replies

Gabapentin 100mg take 2 tablets 4 times a day can't walk can't sleep for pain even wrists and fingers feet toes everywhere can't take it

karenlesley

•11 years ago

2 Replies

The pain is back any tips / advise that may help me?

Been on urso for almost 3 years and have managed OK i suppose. Was diagnosed recently with Giant Cell Arteritis and put on high dose steroids, these have...

Been on urso for almost 3 years and have managed OK i suppose. Was diagnosed re...

Hidden

•11 years ago

2 Replies

Hi Anyone had a transplant out there?

its me Snoozy, and ive been on this site for a while now. last week got told by RPA that im going on the transplant list.OMG!!! mid January i have to go in to...

its me Snoozy, and ive been on this site for a while now. last week got told by ...

SNOOZY

•11 years ago

3 Replies

Good and not so good news.

I have had good and not so good news today. The good news is that in all the scans I had last Monday brain.thorax.abdomen, pelvic and bladder no mass showed...

I have had good and not so good news today. The good news is that in all the sc...

Ellanvannin

•11 years ago

3 Replies

Merry Christmas

I just wanted to wish everyone here a very Merry Christmas. We each have different things going on in our lives: health, work, finances, kids, etc that...

I just wanted to wish everyone here a very Merry Christmas. We each have diff...

PBCRobert

Partner•11 years ago

8 Replies

Do I still need to take urso since I had my gall bladder removed

Hi all, not been on site for a while but have had very busy 7 weeks. Did house move and been in hospital twice. I had my gall bladder removed 7 weeks ago...

Hi all, not been on site for a while but have had very busy 7 weeks. Did house m...

Alley27

•11 years ago

4 Replies

Wish it would Go away

I'm 19 and just had a baby 10 months ago and ill I think about is that I'm going to leave my baby behind.. Because my liver is getting worse my bloods are...

I'm 19 and just had a baby 10 months ago and ill I think about is that I'm goin...

Karlimc93

•11 years ago

6 Replies

Karli mcintosh, I'm 19 from Scotland.

I found out I had a over lap of Pbc and a other one... I also got told I have one more. It all started with a itchy legs feet and hands. Doctors just gave me...

I found out I had a over lap of Pbc and a other one... I also got told I have on...

Karlimc93

•11 years ago

2 Replies

I've just been told a transplant is likely!

Hi, my consultant rang me last night following a biopsy I had done this week. He said that I am being referred to the transplant clinic and that this is likely...

Hi, my consultant rang me last night following a biopsy I had done this week. He...

Shellbear

•11 years ago

5 Replies

Xmas came early

Although i had to wait over an hour today to see my consultant. (his clinic running late) the results were worth every minute. My blood results showed only a...

Although i had to wait over an hour today to see my consultant. (his clinic runn...

Hidden

•11 years ago

7 Replies

I want to thank you all for your feedback on my last question. I have another to ask.

my mother is the one diagnosed and im just trying to understand everything to help her. She seems to be getting tired easily and out of breath just walkin...

my mother is the one diagnosed and im just trying to understand everything to he...

korrie

•11 years ago

4 Replies

Can things get any worse.

Well got the call i didnt want,blood results have shown i may have rheumatiod arthritis. So now waiting for an appointment for metabolic bone scan and to see...

Well got the call i didnt want,blood results have shown i may have rheumatiod ar...

donnathompson

•11 years ago

7 Replies

hi

I have just been diagnosed with PBC i just thought i would say Hi :O) and i will be asking lots of questions.

I have just been diagnosed with PBC i just thought i would say Hi :O) and i will...

sooty1

•11 years ago

3 Replies

AMA and ANA

Is anyone else both AMA and ANA positive?

Hidden

•11 years ago

14 Replies

What can I take to relieve neck, shoulder and right hip pain? I'm on Ursodiol

grammabun

•11 years ago

7 Replies

Does anyone experience strange neurological symptoms

Does anyone experience strange neurological symptoms I have PBC/AIH but exp distorted movemnts ie park car pull up handbrake- go to get out of car- but feel as...

Does anyone experience strange neurological symptoms I have PBC/AIH but exp dist...

Gra79

•11 years ago

13 Replies

esa

been for medical for esa this afternoon dont really trust doctors being nice still dont understand the points system if you get over 15 points can they still...

been for medical for esa this afternoon dont really trust doctors being nice sti...

harley1

•11 years ago

Be the first to reply

Urso side effects

Over the past week I've been having diarrhea (it comes and goes). I know that can be a side effect of Ursodiol, but I've been on the Urso for about 3 months...

Over the past week I've been having diarrhea (it comes and goes). I know that c...

Nissa

•11 years ago

10 Replies

Anyone know of any cheap travel insurance I can buy. As soon as I mention pbc the cost shoots up or they refuse me.

June9961

•11 years ago

6 Replies

any advice please on waiting for backdated money from ESA

wondering if anyone has any advice for me please, i recently won my tribunal appeal for esa on november 9th since waiting from march , after phoning numerous...

wondering if anyone has any advice for me please, i recently won my tribunal app...

nicola-037

•11 years ago

7 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for December 2012

Lost sense of smell?

Nosebleeds:(

Symptoms - relate to PBC?

Does everyone with raised levels of bilirubin have itch?

Fatigue and tiredness.

How long did referral take?

Am I on the PBC-UK site? It seems mostly everyone on here lives in the UK. Just wondered. Thanks for your reply.

So happy

On a scale of 1-10. how painful is a liver biopsy? 10 being the high number. Thanks for any feedback.

Could do with wheelchair can't walk the pain is so bad roll on 15th jan see my nuro then had enough pain pain pain that's life I guess xx

Gabapentin 100mg take 2 tablets 4 times a day can't walk can't sleep for pain even wrists and fingers feet toes everywhere can't take it

The pain is back any tips / advise that may help me?

Hi Anyone had a transplant out there?

Good and not so good news.

Merry Christmas

Do I still need to take urso since I had my gall bladder removed

Wish it would Go away

Karli mcintosh, I'm 19 from Scotland.

I've just been told a transplant is likely!

Xmas came early

I want to thank you all for your feedback on my last question. I have another to ask.

Can things get any worse.

hi

AMA and ANA

What can I take to relieve neck, shoulder and right hip pain? I'm on Ursodiol

Does anyone experience strange neurological symptoms

esa

Urso side effects

Anyone know of any cheap travel insurance I can buy. As soon as I mention pbc the cost shoots up or they refuse me.

any advice please on waiting for backdated money from ESA

Search posts

Pinned Posts

Latest poll

Where in the world are you? Please select an option, but feel free to tell us specifically which country you are in, if you would like. No more detail than that, however. Thank you.

Topics

Archive