Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,387 members • 7,990 posts

All posts for August 2014

Hi I had a liver biopsy almost 2 weeks ago and today I have severe needle like pain in my right groin and moving down my leg however my left

Ankle is swollen does anyone know why this is happening x

sophie666

•10 years ago

6 Replies

Just curious

Having just read a post by a teacher who is working with pbc(I am a cover supervisor in a primary school)I was curious to know how many of us with varying...

Having just read a post by a teacher who is working with pbc(I am a cover superv...

cazz22

•10 years ago

9 Replies

Contact

Can anybody please give me pbc phone number xx

sophie666

•10 years ago

2 Replies

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Feeling relieved

Hello again, I posted on here recently as I was very worried about a scan I had. I had a lot of support from members and thank you so much for that. I received...

Hello again, I posted on here recently as I was very worried about a scan I had....

Rosie2410

•10 years ago

10 Replies

Holiday Insurance

Hi Everyone, I have not been on here for ages. Hope everyone is doing really well. I am going to America next friday and was just wanting possible advice on...

Hi Everyone, I have not been on here for ages. Hope everyone is doing really w...

donna30

•10 years ago

11 Replies

35 yr old from USA with PBC

Hi was diagnosed Thursday with PBC from bloodwork I will be having a biopsy to determine if the diagnosis is correct since they first told me it was Lupus...

Hi was diagnosed Thursday with PBC from bloodwork I will be having a biopsy to d...

JenniK

•10 years ago

20 Replies

Anyone else diagnosed also with gastric paralysis

I have been recently diagnosed with gastric paralysis. Just curios if this could have developed because I do have a severe case of PBC/AIH overlap. Diagnosed...

I have been recently diagnosed with gastric paralysis. Just curios if this could...

breekins

•10 years ago

15 Replies

Flu jab

I As it is getting to 'that' time of year again I wonder if any of you have any pros or cons about having the flu jab.i work in a primary school and as yet...

I As it is getting to 'that' time of year again I wonder if any of you have any ...

cazz22

•10 years ago

23 Replies

ATOS DECISION OVERTURNED-after 3 months of lies and 'misinformation'.

I have mental health issues and after an ATOS assessment,in which my answers were written as a complete opposite to what I'd said,I was awarded zero...

I have mental health issues and after an ATOS assessment,in which my answers wer...

JONJAY61

•10 years ago

7 Replies

Out on my own

Hi everyone sorry not been on in a while but so much has happened over the last few months. I have just come to realise that I am out on my own with this. I...

Hi everyone sorry not been on in a while but so much has happened over the last ...

Alley27

•10 years ago

8 Replies

I went for a Colonoscopy two days ago.

I do not mind the test so much but God I hate the prep! The Gastro. Put me on something called Sur - Prep. It was so sickly sweet I was running to the...

I do not mind the test so much but God I hate the prep! The Gastro. Put me on s...

2006

•10 years ago

3 Replies

Alpha-1Feto Protein

I just got my blood test results in. I was looking them over and discovered that My Alpha-1-Feta-Protein is 10. Normal range is 0-7ug/L. My dr. didn't even...

I just got my blood test results in. I was looking them over and discovered tha...

Simba123

•10 years ago

2 Replies

Spider Angioma?

Yesterday I discovered what I think have found out to be a Spider Angioma on my face.(I looked on Google images and it matched those on there!!). I have had...

Yesterday I discovered what I think have found out to be a Spider Angioma on my...

Koinonia

•10 years ago

3 Replies

Getting worried

Received letter from consultant today saying recent endoscopy showed dilated veins in gullet. Have already started on betablockers. Is now arranging for an...

Received letter from consultant today saying recent endoscopy showed dilated vei...

mojo62

•10 years ago

2 Replies

High IGG and IGM levels

Just got into a bit of a panic I was diagnosed with pbc last week and ordered the DVD on PBC from Liver North. The doctor talks about a more aggressive type of...

Just got into a bit of a panic I was diagnosed with pbc last week and ordered th...

Sammie6

•10 years ago

3 Replies

Diarrhoea

I have had diarrhoea for the last couple of weeks which I believe is due to Urso, I take the Urofalk capsules , supposed to take four 250mg per day. Cut down...

I have had diarrhoea for the last couple of weeks which I believe is due to Urso...

Newsroom

•10 years ago

9 Replies

ESA mandantory reconsideration

Has anyone in the PBC community been through this process yet....If so I am desperate for any advice as my ESA has stopped and now i've been put in a postion...

Has anyone in the PBC community been through this process yet....If so I am desp...

Cherry17

•10 years ago

4 Replies

Panda eyes

Bi Bit of a lame question this when so many are struggling with really bad symptoms but curious after googling dark circles around eyes.the answers keep...

Bi Bit of a lame question this when so many are struggling with really bad sym...

cazz22

•10 years ago

11 Replies

Diagnosed yesterday with PBC

I went for a health check at doctors as my blood pressure was a little high. Following blood tests which showed extremely high ALP and GGT I was referred to a...

I went for a health check at doctors as my blood pressure was a little high. Fol...

Sammie6

•10 years ago

17 Replies

Help

Hello Everyone I have just had to finish work because my job was finishing so I received an agreement settlement which includes a lump sum. Now what do I do?...

Hello Everyone I have just had to finish work because my job was finishing so I ...

Hidden

•10 years ago

9 Replies

Transplants

Just a snippet for any Facebook users. On Facebook there is a forum called Liver Transplant Patients, this is a world wide site but throws up the different...

Just a snippet for any Facebook users. On Facebook there is a forum called Liver...

Brummi

•10 years ago

3 Replies

Health insurance

Hi today I tried to get some insurance for if I die or have a critical illness and I was declined. Can anyone advice me of companies that will insure us with...

Hi today I tried to get some insurance for if I die or have a critical illness a...

Giddygaddy

•10 years ago

9 Replies

HU still thinks I am either portuguese or spanish.

How do I change this? All my message notifications, etc, my browser is all in a foreign language. Please help.

How do I change this? All my message notifications, etc, my browser is all in a...

PBCRobert

Partner•10 years ago

2 Replies

Woo hoo good news !!

Got occupational health to agree on ill health retirement ...at last !! With lots of help from Robert and the pbc foundation. Please, if you have any problems...

Got occupational health to agree on ill health retirement ...at last !! With lot...

meandmypbc

•10 years ago

4 Replies

Esa tribunal soon

Awaiting the final date for this hearing and looking for advice. Does anyone know of any charities or organisations that would send a representitive for an HM...

Awaiting the final date for this hearing and looking for advice. Does anyone kno...

Skotten

•10 years ago

2 Replies

AIH - Drug Free Remission

Just been to see liver consultant. (I have AIH/PBC Overlap Syndrome - Diagnosed 2011). Currently on 100mg of Aza for the AIH and he's going to try and wean me...

Just been to see liver consultant. (I have AIH/PBC Overlap Syndrome - Diagnosed ...

Jtxx

•10 years ago

3 Replies

Finally, some good news!!

Got my first set of blood work back after being on Urso for 3 months and my levels are coming down! My ALP went from 500 to 300, and my ALT and AST are now in...

Got my first set of blood work back after being on Urso for 3 months and my leve...

NotorDJP

•10 years ago

14 Replies

Hi I have pbc I am on250m ursogal 3 times aday

I was just wondering if any one else also has scleoderma, as I am awaiting a consultant appointment as my pbc consultant things due to my pbc I may have...

I was just wondering if any one else also has scleoderma, as I am awaiting a con...

hettie01

•10 years ago

4 Replies

PBC/AIH or not?

Hi, I'm new here. I was diagnosed with PBC a couple of months ago and have been on urso since, it does seem to be helping with the fatigue so far. After seeing...

Hi, I'm new here. I was diagnosed with PBC a couple of months ago and have been ...

Godfrey1

•10 years ago

3 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for August 2014

Hi I had a liver biopsy almost 2 weeks ago and today I have severe needle like pain in my right groin and moving down my leg however my left

Just curious

Contact

Feeling relieved

Holiday Insurance

35 yr old from USA with PBC

Anyone else diagnosed also with gastric paralysis

Flu jab

ATOS DECISION OVERTURNED-after 3 months of lies and 'misinformation'.

Out on my own

I went for a Colonoscopy two days ago.

Alpha-1Feto Protein

Spider Angioma?

Getting worried

High IGG and IGM levels

Diarrhoea

ESA mandantory reconsideration

Panda eyes

Diagnosed yesterday with PBC

Help

Transplants

Health insurance

HU still thinks I am either portuguese or spanish.

Woo hoo good news !!

Esa tribunal soon

AIH - Drug Free Remission

Finally, some good news!!

Hi I have pbc I am on250m ursogal 3 times aday

PBC/AIH or not?

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