Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,383 members • 7,978 posts

All posts for February 2019

Hi Cholesterol w/app

Hi Everyone! To date I continue to b on watch for Pbc although my charts already show dx: pbc. My only marker was elevated ama-m2 last June. My cholesterol...

Hi Everyone! To date I continue to b on watch for Pbc although my charts already...

Sdone

•5 years ago

6 Replies

Irretractable itch tried every lotion and medication

I’m currently on the transplant list for irretractable itch it’s destroyed mentally and physically I’m on 100 sertaline.. sleeping tabs zopiderm bezafibrate...

I’m currently on the transplant list for irretractable itch it’s destroyed menta...

Melwoods

•5 years ago

34 Replies

Burning eyes

Hi everyone I have a question....I have always had dry eyes but since I have been on Urso my eyes start burning anytime they get “wet”. Crying, yawning, or...

Hi everyone I have a question....I have always had dry eyes but since I have bee...

Rottiemommy

•5 years ago

6 Replies

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Raw fruit and vegetables

Have any of you 'you tube'd' or checked out Dr. Robert Morse on Facebook? He claims that we are very acidic with high ph and of course our genetic weaknesses...

Have any of you 'you tube'd' or checked out Dr. Robert Morse on Facebook? He cl...

donna01

•5 years ago

16 Replies

Psuedomonas Aurigenosa

My baby died of an infection in his lungs at 32 and half weeks. It was called Psuedomonas Aurigenosa. It’s a bacterial infection he got in the Neonatal ward on...

My baby died of an infection in his lungs at 32 and half weeks. It was called Ps...

bin6zow3

•5 years ago

6 Replies

Fasting

I’ve just been told it’s not a good idea to fast twice a week (500) cal by my consultant. Seriously every time I see her , I come out depressed , she gives me...

I’ve just been told it’s not a good idea to fast twice a week (500) cal by my co...

Mrsfancypants

•5 years ago

28 Replies

Nausea

Hi, does anyone get nausea with this? I’m newly diagnosed (2 weeks ago) I’ve not seen a specialist yet. I’m waiting for an appointment. Liver function has been...

Hi, does anyone get nausea with this? I’m newly diagnosed (2 weeks ago) I’ve not...

Karaxxx

•5 years ago

25 Replies

Cant shake Bronchitis

I recently cought the congestion crud that was going around unfortunately for me it has turned into bronchitis and I cant seem to shake it. I have already been...

I recently cought the congestion crud that was going around unfortunately for me...

Jess5377

•5 years ago

8 Replies

Feeling quite drained

Has anyone had side affects from stopping azathioprine. “Cold turkey”? Or maybe I just picked up a virus and I’m taking longer to heal. I am wiped out I used...

Has anyone had side affects from stopping azathioprine. “Cold turkey”? Or maybe ...

Jennyhadenough

•5 years ago

3 Replies

Vitamins

Hi everyone, I'm just curious, do any of you take vitamins? I take 10,000 iu of Vit D3 with 250 mg of Magnesium (was told we need magnesium to absorb Vit D),...

Hi everyone, I'm just curious, do any of you take vitamins? I take 10,000 iu o...

donna01

•5 years ago

20 Replies

Master switch within immune system

Hi, I truly believe that because of technology advances, imaging technology inventions, and powerful computer modeling that scientists are much closer to...

Hi, I truly believe that because of technology advances, imaging technology inve...

EileenUSA

•5 years ago

3 Replies

"JUST IN.... INTERESTING"

Read this bit of news tonight.... http://www.evaluate.com/vantage/articles/news/trial-results/intercepts-nash-hopes-rest-ocalivas-borderline-hit Stella❤

Read this bit of news tonight.... http://www.evaluate.com/vantage/articles/new...

Ktltel

•5 years ago

8 Replies

Not sure what to do

My liver specialist wants to take me off my azathioprine/immun supressant for 6 weeks. My fecal test came back abnormal for lactoferrin. Dr google said that is...

My liver specialist wants to take me off my azathioprine/immun supressant for 6 ...

Jennyhadenough

•5 years ago

4 Replies

Just told yesterday I have PBC

Hi everyone. Just told yesterday after 6 mo this of raised liver enzymes , ultrasound that showed nothing but tiny benign tumor, that I have PBC. I meet with...

Hi everyone. Just told yesterday after 6 mo this of raised liver enzymes , ultra...

tnchikadee

•5 years ago

16 Replies

PBC vs PSC?

Hey, it's been a while! I wanted to know if there's a significant difference between the two when it comes to diagnosing? Recently, I've had symptom flare and...

Hey, it's been a while! I wanted to know if there's a significant difference bet...

AutoimmunetoStars

•5 years ago

3 Replies

Great Symposium in NJ

Physicians will be there to answer all questions. Dr Burt Berkson there.

SunnyXXOO

•5 years ago

2 Replies

Ganoderma mushrum

Hi my friends. I’ve recently heard about liver protective effect of this herb. Do any one think this may help us or is there anybody who have used this? I was...

Hi my friends. I’ve recently heard about liver protective effect of this herb. D...

Sona_akb

•5 years ago

18 Replies

New PBC App

And so it is here!! The new app is available on both android and iOS, with links below. Now, because of the features of the app, we have tightened security...

And so it is here!! The new app is available on both android and iOS, with links...

PBCRobert

Partner•5 years ago

20 Replies

Anthony Williams LIVER RESCUE and Celery juice

Has anybody tried it?..And what's your opinion about it in relation to our condition?

Has anybody tried it?..And what's your opinion about it in relation to our condi...

luxe66

•5 years ago

14 Replies

Anyone else have their PBC itch stop?

After beginning treatment for another condition (ET) my PBC itch has almost completely disappeared--so happy! Has anyone else had the itch stop? If your...

After beginning treatment for another condition (ET) my PBC itch has almost comp...

kp1234

•5 years ago

10 Replies

Natural treatment for PBC?

PBC. A lot of questions: Okay, reading here is making me overcome my aversion to taking URSO, especially since I was diagnosed 6 years ago and for the past...

PBC. A lot of questions: Okay, reading here is making me overcome my aversion to...

scthompson

•5 years ago

39 Replies

+ AMA; Slightly elevated ALT

Hello, a little history about myself. Last year I had my annual blood test and my ALT was slightly elevated at 45 normal is (0-32); Since it was elevated I...

Hello, a little history about myself. Last year I had my annual blood test and m...

soulshine02

•5 years ago

23 Replies

Ezetimibe

Does anyone on here take zetia or ezetimibe for cholesterol? I cannot tolerate the pain that statins cause and my cholesterol has gone up since I have been...

Does anyone on here take zetia or ezetimibe for cholesterol? I cannot tolerate ...

Pamela4475

•5 years ago

25 Replies

New App

At last it looks like we are getting the go ahead and are looking to have it released for the weekend. Android users will need to delete the old app before...

At last it looks like we are getting the go ahead and are looking to have it rel...

PBCRobert

Partner•5 years ago

3 Replies

Tattoos

Hi, I was really wanting a proper genuine butterfly tattoo, but after reading the “small print re complications/ due to health issues “I decided against it. I...

Hi, I was really wanting a proper genuine butterfly tattoo, but after reading th...

Hidden

•5 years ago

22 Replies

Am I rejecting Urso

i Have been taking Urso for 2 years. I was doing well for the two years. Two weeks ago I started with diarrhea and bad cramps. I went to the emergency room...

i Have been taking Urso for 2 years. I was doing well for the two years. Two we...

Jennyhadenough

•5 years ago

37 Replies

Waiting for PBC Diagnosis

Hi All, I am 41 and female. Not a heavy drinker but love a night cap (or 2, let's be honest) in the evening before bed. Also addicted to hot chips... I have...

Hi All, I am 41 and female. Not a heavy drinker but love a night cap (or 2, let...

Vexing4u

•5 years ago

53 Replies

CHICAGO PBC/SJOGREN’S MEETING RECAP

We had a very successful meeting on Saturday. There were 54 people who attended, if the room was larger, we would have invited more people that also tend to...

We had a very successful meeting on Saturday. There were 54 people who attended...

Lisa1150

•5 years ago

2 Replies

Tired with odd pain

Hi everyone hope you've all had a decent weekend. Mine was ok until today. Extremely tired and have some pain. Location is right hand side, under liver and...

Hi everyone hope you've all had a decent weekend. Mine was ok until today. Ext...

Vespa27

•5 years ago

2 Replies

Extreme brain fog?

I was diagnosed with PBC 3 years ago. I’m been very fortunate that I’ve not had many issues yet. A coupe of days ago, I was sitting at work and experienced...

I was diagnosed with PBC 3 years ago. I’m been very fortunate that I’ve not had ...

Haffull

•5 years ago

23 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for February 2019

Hi Cholesterol w/app

Irretractable itch tried every lotion and medication

Burning eyes

Raw fruit and vegetables

Psuedomonas Aurigenosa

Fasting

Nausea

Cant shake Bronchitis

Feeling quite drained

Vitamins

Master switch within immune system

"JUST IN.... INTERESTING"

Not sure what to do

Just told yesterday I have PBC

PBC vs PSC?

Great Symposium in NJ

Ganoderma mushrum

New PBC App

Anthony Williams LIVER RESCUE and Celery juice

Anyone else have their PBC itch stop?

Natural treatment for PBC?

+ AMA; Slightly elevated ALT

Ezetimibe

New App

Tattoos

Am I rejecting Urso

Waiting for PBC Diagnosis

CHICAGO PBC/SJOGREN’S MEETING RECAP

Tired with odd pain

Extreme brain fog?

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