Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,383 members • 7,979 posts

All posts for June 2016

Anyone waiting on a transplant...?

Edited.

Angelsww

•8 years ago

2 Replies

Fexofenadine Hydrochloride

I had an increase in the Ursofalk earlier this year and since then the itch seems to be worse. I have had two different types of antihistamines before which...

I had an increase in the Ursofalk earlier this year and since then the itch seem...

butterflyEi

•8 years ago

7 Replies

BLOOD TEST RESULTS

Please can someone tell me what are the normal ranges for all the tests that are taken when checking levels due to PBC, as there is nothing on the internet...

Please can someone tell me what are the normal ranges for all the tests that are...

Ginger_11

•8 years ago

9 Replies

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Holidaying in Oklahoma

Just about to leave Oklahoma and return to Southampton, UK. Have had a wonderful time, swimming, horse riding, canoeing and visiting historical sites....

Just about to leave Oklahoma and return to Southampton, UK. Have had a wonderful...

Gioielli

•8 years ago

5 Replies

Co-enzyme Q10

Hi, I saw a liver specialist recently and as well as been put onto Ursodeoxycholic acid I have been recommend to get Co-enzyme Q10. I just wondered if anyone...

Hi, I saw a liver specialist recently and as well as been put onto Ursodeoxychol...

uitlander

•8 years ago

23 Replies

Bowel issues and Itching

Hi I have had PBC for about 9 years. Two uestions for everyone. 1. Has anyone experienced bowel issues requiring a bowel resection and Ostomy? 2. Just...

Hi I have had PBC for about 9 years. Two uestions for everyone. 1. Has anyone...

CBCB

•8 years ago

6 Replies

Intercept are asking for Pbc sufferers to take part in a trial

I just saw this on Facebook and wondered if anyone else have come across it?

Twinkle26

•8 years ago

11 Replies

Contraception

I'm new here and apologise if this has been asked a thousand times before, but am confused. What if any contraception is safe for those with pbc?

I'm new here and apologise if this has been asked a thousand times before, but a...

Buxton26

•8 years ago

2 Replies

Tattoos

Can we get tattoos!? Is it not recommended? Sorry random I know and not massively important but curious

Can we get tattoos!? Is it not recommended? Sorry random I know and not massivel...

Chazzy

•8 years ago

13 Replies

donor match

Hi - so when my sister found out about my PBC she wanted to see if she was a donor match for when that time came. She called me up and asked me about my blood...

Hi - so when my sister found out about my PBC she wanted to see if she was a don...

Becca75

•8 years ago

23 Replies

Fatigue with racing heart

I am tired most of the time, but sometimes when I do something energetic like walking up a lot of stairs or sweeping the floor, I get really exhausted and my...

I am tired most of the time, but sometimes when I do something energetic like wa...

Littletonya

•8 years ago

32 Replies

Help please

I was on wrag from 29may 2014 this may after a appeal I won to go in the support group and was told my my welfare rights man they are back dating it from week...

I was on wrag from 29may 2014 this may after a appeal I won to go in the support...

mariea1965

•8 years ago

1 Reply

Failing gp

Hi I visited my specialist he asked too see medication's I take to my horror he informed me that he had sent a letter too my GP about starting uso a yr ago he...

Hi I visited my specialist he asked too see medication's I take to my horror he ...

katkatkat

•8 years ago

6 Replies

PBC and pregnancy

Hello all, I'm looking for anyone who has experience with pregnancy after being diagnosed with PBC. Specifically, how did your body fare after delivery. I...

Hello all, I'm looking for anyone who has experience with pregnancy after being ...

Photodreamer76

•8 years ago

3 Replies

"PBC in remission" - any other experiences please?

Helllo all Would be very grateful to hear of others experiences. Can PBC be "in remission"? I've always understood that it was a one-way process in which...

Helllo all Would be very grateful to hear of others experiences. Can PBC be "in...

channelview

•8 years ago

6 Replies

Antibiotics

Hello I've just been given Co-amoxiclav and steroids for chest infection and asthma have COPD and PBC .have had other antibiotics which gave me severe liver...

Hello I've just been given Co-amoxiclav and steroids for chest infection and ast...

Anneeileen1

•8 years ago

1 Reply

Has anyone not been helped by Urso?

First of all, I started this post and lost it. I hope it doesn't post twice. If so, I apologize. I was diagnosed in January with PBC - sort of. Short...

First of all, I started this post and lost it. I hope it doesn't post twice. If ...

littysgirl

•8 years ago

8 Replies

Edema anyone?

Wondering if anyone has experience with edema (swelling, fluid retention) in the legs and belly. I've had quite a bit over the past 10-15 days and am quite...

Wondering if anyone has experience with edema (swelling, fluid retention) in the...

tntarheel

•8 years ago

1 Reply

Fibroscan results! 😀

Hi everyone, I just wanted to share my good news. I had a fibroscan today and the normal reading is 7 or below...well I had mine today and the reading was 3....

Hi everyone, I just wanted to share my good news. I had a fibroscan today and th...

Hils67

•8 years ago

9 Replies

Had my biopsy.

I had my biopsy yesterday, it was uncomfortable as I expected, I had to lay mostly on my back and my arm over my head, they took the liver sample between my...

I had my biopsy yesterday, it was uncomfortable as I expected, I had to lay most...

Twinkle26

•8 years ago

14 Replies

UVB therapy

Hi - has anyone tried and had success with UVB therapy for the itching. My family doctor said he's had patients with PBC have success with this therapy in...

Hi - has anyone tried and had success with UVB therapy for the itching. My famil...

Becca75

•8 years ago

1 Reply

PBC and Nodular Regenerative Hyperplasia: I have 2 liver diseases.

Hi friends...I wrote a long post in April explaining my appointment at the National Institute of Health in Bethesda. I have an immune deficiency (called Common...

Hi friends...I wrote a long post in April explaining my appointment at the Natio...

JennyCville

•8 years ago

5 Replies

Bear facts

Hi Everyone One of u talked about "bear facts" in a post. What is this and where can I get information from please Tricia x

Hi Everyone One of u talked about "bear facts" in a post. What is this and where...

Twill

•8 years ago

1 Reply

United States

I have pbc and RA,diabetes among other things, i am looking for some people in the united states to talk to, become friends with abs possibly visit that have,...

I have pbc and RA,diabetes among other things, i am looking for some people in t...

tama

•8 years ago

24 Replies

Horrible dilemma update!

So, i saw the Hepatologist at St James in Leeds. I,m glad that i asked for a hepatology referral, as i was finding that gastroenterologists were not so...

So, i saw the Hepatologist at St James in Leeds. I,m glad that i asked for a hep...

MissusTee

•8 years ago

23 Replies

Pbc support group for wichita falls tx and surrounding areas

I would like to mention that i stated a facebook page for people in wichita falls texas or anywhere in the united states,not that we can't talk on here just...

I would like to mention that i stated a facebook page for people in wichita fall...

tama

•8 years ago

Be the first to reply

Pain and fatigue

Hi lovey people I would like to thank each and everyone of you that replied to my post. You don't realise how much u have helped me by doing so. This is what I...

Hi lovey people I would like to thank each and everyone of you that replied to m...

Twill

•8 years ago

17 Replies

RIFAMPACIN

Does anyone take rifampacin for the dreaded itch? I have been on it for approximately a year now & been told today my pharmacy can no longer get it & I will...

Does anyone take rifampacin for the dreaded itch? I have been on it for approxim...

evelyn1

•8 years ago

6 Replies

Genetics

Morning all. I went to Australia this year for six weeks to meet all my relatives and rekindle friendships with the ones I hadn't seen for 20 years and more....

Morning all. I went to Australia this year for six weeks to meet all my relativ...

CathieG

•8 years ago

4 Replies

constant eye twitch

Hi :) so when i was a kid, every now and then I'd get an eye twitch that lasted only for a bit and someone once told me it's cuz I'm tired. Now both eyes...

Hi :) so when i was a kid, every now and then I'd get an eye twitch that lasted ...

Becca75

•8 years ago

12 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2016

Anyone waiting on a transplant...?

Fexofenadine Hydrochloride

BLOOD TEST RESULTS

Holidaying in Oklahoma

Co-enzyme Q10

Bowel issues and Itching

Intercept are asking for Pbc sufferers to take part in a trial

Contraception

Tattoos

donor match

Fatigue with racing heart

Help please

Failing gp

PBC and pregnancy

"PBC in remission" - any other experiences please?

Antibiotics

Has anyone not been helped by Urso?

Edema anyone?

Fibroscan results! 😀

Had my biopsy.

UVB therapy

PBC and Nodular Regenerative Hyperplasia: I have 2 liver diseases.

Bear facts

United States

Horrible dilemma update!

Pbc support group for wichita falls tx and surrounding areas

Pain and fatigue

RIFAMPACIN

Genetics

constant eye twitch

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