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PBC Foundation

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All posts for October 2016

The rise of LFT

Just had my consultant letter to start URSO nervous of the side effects. Also my ALP gone from 135 in May to 158 in October. Is it normal for it to rise so...

Just had my consultant letter to start URSO nervous of the side effects. Also my...

Chazzy

•7 years ago

17 Replies

Osteopenia

Does anyone else suffer from Osteopenia with their pbc, is it connected or just plan bad luck? Think if I was a dog I would of been put down by now!

Does anyone else suffer from Osteopenia with their pbc, is it connected or just ...

Yvonnejulie

•7 years ago

15 Replies

1 Year with PBC

I was diagnosed with PBC a year ago! I've learned so much this past year, and I've gone through a lot of worry, too. All in all, I think I'm going to be...

I was diagnosed with PBC a year ago! I've learned so much this past year, and I...

chynablue

•7 years ago

6 Replies

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Ursofalk and other medication question

Hi guys, I have just started ursofalk and I'm wondering is there any OTC medications that I cannot take with it? I currently have a chest infection and want to...

Hi guys, I have just started ursofalk and I'm wondering is there any OTC medicat...

lauralocks123

•7 years ago

4 Replies

Bramuda Triangle of autoimmune disease

Hi all, Wow, I guess now I am going to have this stupid PBC too. I have fibromyalgia, sjogren's, undifferentiated connective tissue disease. What the hell? My...

Hi all, Wow, I guess now I am going to have this stupid PBC too. I have fibromya...

Janehouston

•8 years ago

3 Replies

Fibroscan results

have had Pbc for 18 yrs and 2 years ago had a fibroscan. At the time I just remember them telling me I had advanced cirrhosis but didn't pay much attention to...

have had Pbc for 18 yrs and 2 years ago had a fibroscan. At the time I just reme...

spoul

•8 years ago

21 Replies

right flank pain

I have RA and fibromyalgia, as well as osteoporosis, osteoarthritis, sjogrens disease and several others. I am having pretty severe dull pain in right side,...

I have RA and fibromyalgia, as well as osteoporosis, osteoarthritis, sjogrens di...

movinalong11

•8 years ago

3 Replies

Life is good😊😊

Was diagnosed with pbc in April of 2014. Lost my dad the same week. My life as I once knew it would never be the same. 2 and a half years later I am so happy...

Was diagnosed with pbc in April of 2014. Lost my dad the same week. My life as I...

Kentay

•8 years ago

2 Replies

Evie 53

Hi my name is Yvonne I'm 63 years young and have recently diagnosed with PBC. I have nodules throughout the liver, high enzymes, itching, joint pain and...

Hi my name is Yvonne I'm 63 years young and have recently diagnosed with PBC. I...

yvonnero

•8 years ago

1 Reply

at my wits end

In April I had some questionable blood results, high ama's and high ferritin at my regular doctor. She ordered add't bloodwork which came back with more...

In April I had some questionable blood results, high ama's and high ferritin at ...

rowens828

•8 years ago

2 Replies

Medical retirement / ill health retirement

I am working for local government. I am on sick leave since last few months due to health problem. I am going through medical retirement / ill health...

I am working for local government. I am on sick leave since last few months due...

RewaP

•8 years ago

3 Replies

Acute kidney infection

Hi all. Just wondered if anyone has any information on the above. I have been diagnosed for many years but the condition is under control at present with Urso....

Hi all. Just wondered if anyone has any information on the above. I have been di...

Mollymoo50

•8 years ago

3 Replies

PBC, Tired, Moody, & Fibromyalgia???

This is just me venting really. I was diagnosed about 1 1/2 years now, and have been on Urso for that long. The fatigue is still a HUGE problem, and it makes...

This is just me venting really. I was diagnosed about 1 1/2 years now, and have ...

Cstar1079

•8 years ago

38 Replies

UK Disabled Parking Badge

Any PBC'ers out there in the UK applied for one of these? I have good days and bad days, so have hesitated to apply for one. I haven't yet seen the forms, but...

Any PBC'ers out there in the UK applied for one of these? I have good days and b...

masc0t

•8 years ago

9 Replies

disability pension

Just wondering if anyone has ever applied and received a disability pension for pbc in Canada

Just wondering if anyone has ever applied and received a disability pension for ...

morticia1966

•8 years ago

4 Replies

Fibroscan and varices

Hi All re fibroscan, will it pick up if you have varices? Or,is the camera down the throat the only way to tell? Thanks Kandiepat

Hi All re fibroscan, will it pick up if you have varices? Or,is the camera down ...

kandiepat

•8 years ago

5 Replies

Recently diagnosed with PBC

Just started taking Urso-itching terrible! How long before see any effects? Experience with liver biopsy as scheduled on Monday Through readings doesn't seem...

Just started taking Urso-itching terrible! How long before see any effects? Expe...

Ljonesfnp

•8 years ago

14 Replies

Checking back in to report on this crazy ride...

Hi friends. I haven't been on these boards for awhile because I've been dealing with other health issues, but I thought I'd check back in and report on my...

Hi friends. I haven't been on these boards for awhile because I've been dealing ...

JennyCville

•8 years ago

3 Replies

Guys and St Thomas's

Hi all, juts wondering if any one here goes to Guys and St Thomas's for PBC management? I thinking of transferring from Kings, purely for geographical reasons....

Hi all, juts wondering if any one here goes to Guys and St Thomas's for PBC mana...

Lisacj

•8 years ago

1 Reply

Fibroscan 4.7

Had my consultant appointment this morning who confirmed PBC and given me urso prescription to start when my blood results come back. While there had a...

Had my consultant appointment this morning who confirmed PBC and given me urso p...

Chazzy

•8 years ago

9 Replies

feeling sick

morning sorry to ask again but i have now only been taking Ursofalk for 2 weeks and every morning i feel so ill and sick it starts to go by lunchtime anyone...

morning sorry to ask again but i have now only been taking Ursofalk for 2 weeks ...

tinajohnston

•8 years ago

6 Replies

Fatigue and Muscle pain

Hi all i got diagnosed with pbc 2 months ago when a routine blood test showed raised liver enzymes. Everything else came back perfect, normal blood pressure,...

Hi all i got diagnosed with pbc 2 months ago when a routine blood test showed ra...

CazK

•8 years ago

15 Replies

Aching ankles. Help!!@

I occasionally get achey ankles. Mainly when ive worked. Every other weekend i work 4 days in a row. 2 7hr and 2 8hr shifts. Not only am i shattered after this...

I occasionally get achey ankles. Mainly when ive worked. Every other weekend i w...

Louedwards

•8 years ago

4 Replies

URSO and Severe Gas

I was diagnosed in Sept 2012 and put on URSO. I have always suffered from extreme gas since I was a teenager. It has nothing to do with what I eat...it comes...

I was diagnosed in Sept 2012 and put on URSO. I have always suffered from extre...

mollymom

•8 years ago

15 Replies

ama positive, but normal liver enzymes now.

I went to the er with sternum pains for 4 days straight. They did some blood work and found my liver enzymes elevated at 400 and my alkaline phosphatase...

I went to the er with sternum pains for 4 days straight. They did some blood wor...

breeski

•8 years ago

13 Replies

Quick Urso poll

Hi folks I am just interested how you all take your Urso. I'm on liquid form and I know some are on tablets. So a small poll. Just tell me what you use :...

Hi folks I am just interested how you all take your Urso. I'm on liquid form an...

Hidden

•8 years ago

39 Replies

Itchy

Hi just wondering do you get a rash with the PBC itch ,I've had a rash for weeks and nothing takes it away ,so itchy

Hi just wondering do you get a rash with the PBC itch ,I've had a rash for weeks...

Marysla

•8 years ago

8 Replies

Abdominal cramps

Hi I was diagnosed with PBC about a year and a half ago, am on Urso, recently I started to get cramps accross the top part of my abdomen accross my ribs when I...

Hi I was diagnosed with PBC about a year and a half ago, am on Urso, recently I ...

Tg10

•8 years ago

3 Replies

Thinning Hair

Hi Everyone, My doctor upped my Urso to four tablets at night. Since then my hair has got thinner and the texture has changed, its silky and limp. Im hoping...

Hi Everyone, My doctor upped my Urso to four tablets at night. Since then my hai...

kandiepat

•8 years ago

15 Replies

Pbc?

Hi all, so the consultant I met with a few weeks ago thought I had Pbc due to elevated liver functioning AST ALT and ALP. I had a screening done for various...

Hi all, so the consultant I met with a few weeks ago thought I had Pbc due to el...

lauralocks123

•8 years ago

8 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for October 2016

The rise of LFT

Osteopenia

1 Year with PBC

Ursofalk and other medication question

Bramuda Triangle of autoimmune disease

Fibroscan results

right flank pain

Life is good😊😊

Evie 53

at my wits end

Medical retirement / ill health retirement

Acute kidney infection

PBC, Tired, Moody, & Fibromyalgia???

UK Disabled Parking Badge

disability pension

Fibroscan and varices

Recently diagnosed with PBC

Checking back in to report on this crazy ride...

Guys and St Thomas's

Fibroscan 4.7

feeling sick

Fatigue and Muscle pain

Aching ankles. Help!!@

URSO and Severe Gas

ama positive, but normal liver enzymes now.

Quick Urso poll

Itchy

Abdominal cramps

Thinning Hair

Pbc?

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