Posts - PBC Foundation | HealthUnlocked

Has anybody tried krill for joint aches? Somebody mentioned it to me today….

Administrator•8 months ago

8 Replies

Krill

Gaspereaux

•8 months ago

For all of our new members, PLEASE make sure one of the first things you do after your diagnosis is to join The PBC Foundation. It's free. There is so much...

Please join!

For all of our new members, PLEASE make sure one of the first things you do afte...

What movie - at the theatre or on TV - have you seen the most times?

Administrator•8 months ago

4 Replies

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Friday Fun Question

My 'Thursday Thoughts' was a conversation (hopefully) about itching. If anyone experiences this with their PBC, I know it would be helpful to others to read...

Administrator•8 months ago

15 Replies

No one itches???

My 'Thursday Thoughts' was a conversation (hopefully) about itching. If anyone...

Let's talk about that 'itch' today......Do you itch? What have you found helps the itching for you? I know from my own experience how awful and consuming...

Administrator•8 months ago

18 Replies

Thursday Thoughts.....

Let's talk about that 'itch' today......Do you itch? What have you found helps ...

Administrator•8 months ago

ALT - Alanine Transaminase This is a blood test performed as part of your routine liver panel test. It is released more so by the...

Wednesday Word

ALT - Alanine Transaminase This is a blood test performed as part of your rout...

Administrator•8 months ago

https://www.uchicagomedicine.org/forefront/gastrointestinal-articles/masld-drug-clinical-trial...

more hope

https://www.uchicagomedicine.org/forefront/gastrointestinal-articles/masld-drug-...

Administrator•8 months ago

Just this morning there was a post about questioning the legitimacy of a survey about itching - and receiving payment for completing it. Some of you reached...

always question

Just this morning there was a post about questioning the legitimacy of a survey ...

Administrator•8 months ago

I sent an email to CEO of PBC Foundation about legitimacy of the itching survey. It is 100% legit but it comes from the GSK pharmacuetical agents. GSK are...

Legitimate ****

I sent an email to CEO of PBC Foundation about legitimacy of the itching survey....

Administrator•8 months ago

What advice did you get from your doctor when you were first diagnosed? or... did you even get any?

Tuesday Tips

What advice did you get from your doctor when you were first diagnosed? or... d...

Good morning all, I have received an email asking me to complete an online survey regarding itch which has come from The PBC Foundation. I was just wondering...

Administrator•8 months ago

27 Replies

Online itch survey

Good morning all, I have received an email asking me to complete an online surve...

MSJT

•8 months ago

3 Replies

Is sacroiliac pain common?

Hi everyone, Still fighting lower back pain….it was much worse a few months ago, but still, it is painful to sit for any length of time. Just wondering if...

Hi everyone, Still fighting lower back pain….it was much worse a few months ag...

Gaspereaux

•8 months ago

7 Replies

unanswered questions

I'm excited to be leaving for The International PBC Summit in Edinburgh the end of next week. I'll be bringing back as much information to you as I can about...

I'm excited to be leaving for The International PBC Summit in Edinburgh the end ...

I hope some of you share what you've done in the last week or so just for yourself. We all need to believe that we matter enough to make time for us.. no...

Administrator•8 months ago

10 Replies

It's "Monday Me!" Day

I hope some of you share what you've done in the last week or so just for yourse...

Administrator•8 months ago

I’m somewhat perplexed… since my diagnosis I’ve been told I have cirrhosis, because of my biopsy and ultrasound results. A recent fibroscan score was 7.4,...

Ultrasound/Biopsy show cirrhosis, but fibroscan score is 7.4

I’m somewhat perplexed… since my diagnosis I’ve been told I have cirrhosis, beca...

Danteskid

•8 months ago

17 Replies

Breakthrough for PBC

https://health.ucdavis.edu/news/headlines/clinical-trial-may-offer-relief-for-rare-autoimmune-disease-/2024/03 Researchers continue to work for making our...

https://health.ucdavis.edu/news/headlines/clinical-trial-may-offer-relief-for-ra...

Administrator•9 months ago

In the past couple of days, Ive posted the links to the EASL (European) and AASLD (US) Guidelines for the Standard of Care for the diagnosis and treatment of...

links

In the past couple of days, Ive posted the links to the EASL (European) and AASL...

Administrator•9 months ago

www.aasld.org This is the site for the American Association for the Study of Liver Diseases. They make the AASLD Guidelines for the...

AASLD organization

www.aasld.org This is the site for the American Association for the Study ...

Administrator•9 months ago

Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice...

Experiences with urso, ocaliva and bezafibrate

Hi everyone!I was just curious about your experiences taking a combination of ud...

nickey8

•9 months ago

16 Replies

Friday 'Fun' question

What was/is your favorite boardgame to play?

Is an Alkaline Phosphate level of 71 (UK) good? Was put on steroids to deal with newly diagnosed PMR and they fell by 20 units in 2 weeks!

Administrator•9 months ago

4 Replies

Is an Alkaline Phosphate level of 71 (UK) good?

Is an Alkaline Phosphate level of 71 (UK) good? Was put on steroids to deal with...

Gioielli5

•9 months ago

10 Replies

MRE information

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4075049/

Administrator•9 months ago

Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all,...

for all new members of late.....

Hi - and welcome! My name is Donna - I facilitate this support group for The PB...

Administrator•9 months ago

How hard has it been to have support from family and friends since your diagnosis?

Thursday Thoughts...

How hard has it been to have support from family and friends since your diagnosi...

Administrator•9 months ago

I asked the PBC Foundation to send these to me.. I'm passing them along. Here’s the link to the Resource Library on the website which contains the EASL...

'Must Have' Guidelines

I asked the PBC Foundation to send these to me.. I'm passing them along. H...

Administrator•9 months ago

I asked the PBC Foundation to send these to me.. I'm passing them along. Here’s the link to the Resource Library on the website which contains the EASL...

'Must Have' Guidelines

I asked the PBC Foundation to send these to me.. I'm passing them along. H...

Administrator•9 months ago

Can you take Mct oil if you have pbc?

Mct oil

Survived-

•9 months ago

4 Replies

European Guideline for Diagnosis and Treatment of PBC

This is the direct link to the PDF of the guidelines EASLGuidelinesPublication.pdf (pbcfoundation.org.uk) Everyone should make a copy of this!!!...

This is the direct link to the PDF of the guidelines EASLGuidelinesPublication....

Administrator•9 months ago

Find Your Fibrosis ScoreDisease DiagnosisLiver Stiffness ResultYour Liver Cholestatic Disease2 to 7 kPaIs normal. 7 to 9 kPaHas moderate scarring. 9 to 17...

Fibroscan results

Find Your Fibrosis ScoreDisease DiagnosisLiver Stiffness ResultYour Liver Choles...