Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,387 members • 7,992 posts

All posts for January 2018

PBC Foundation

I recently joined the PBC foundation. I live in the US. I am unclear on the best way to contact them. I am afraid to call the number because of it charging a...

I recently joined the PBC foundation. I live in the US. I am unclear on the best...

Dwaffle16

•6 years ago

6 Replies

Stages

Just curious, at stage 2 , but my alt have went down after taking oclavia for now my 3 month. Can a person go to the next stage, even at that? I worry, because...

Just curious, at stage 2 , but my alt have went down after taking oclavia for no...

KevinHall10_

•6 years ago

14 Replies

Gastro vs Hepatologist

I have been thinking about this for some time and have a few things I’d like to say. This is supposed to be a support group. I have noticed for as long as I...

I have been thinking about this for some time and have a few things I’d like to ...

gwillistexas

•6 years ago

33 Replies

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What do these bloods mean

Just got a copy of my recent blood tests and need help reading them. The results are suggestive of pbc. Alpha feto proein 7. Alkaline phosphatase 131. Gamma GT...

Just got a copy of my recent blood tests and need help reading them. The results...

pottery1

•6 years ago

3 Replies

I'm so glad I found this Forum!

Hi Everyone, I've been diagnosed for over a year, I've had a liver biopsy & scan which said I had a fatty liver, I've got other issues, such as emphesema and...

Hi Everyone, I've been diagnosed for over a year, I've had a liver biopsy & scan...

wendytd

•6 years ago

4 Replies

Blood results

Had my first set of blood tests yesterday after doing the treatment of 40 predisone and 1000 urso a day started 1/15 my doctor called my ALT and AST dropped to...

Had my first set of blood tests yesterday after doing the treatment of 40 predis...

mjk98

•6 years ago

2 Replies

Horrific itching - CIMETIDINE

I’ve tried everything and I’m currently on a clinical trial at Queen Elizabeth hospital in Birmingham I have also just been put on Cimetidine, as I can’t...

I’ve tried everything and I’m currently on a clinical trial at Queen Elizabeth h...

Melwoods

•6 years ago

15 Replies

NRH

Has anyone been told they have NRH?

Pamela4475

•6 years ago

11 Replies

Liver transplant

Hello everyone I hope everyone is having a great 2018 so far. Sorry it’s been a while since I been on the blog. Life has been a roller coaster for me lately....

Hello everyone I hope everyone is having a great 2018 so far. Sorry it’s been a...

Prettyeyes79

•6 years ago

9 Replies

Jaundice

Hi, my bilirubin was 104 in October 2017 & now it’s 54 this month jan 2018 Anyone else had this happen, what is a normal level

Hi, my bilirubin was 104 in October 2017 & now it’s 54 this month jan 2018 Anyo...

Kelly68

•6 years ago

5 Replies

If you have PBC, you are at higher risk for Celiac Disease

I have recently been diagnosed with Celiac's Disease which is another autoimmune disorder affecting the small intestine, liver and other body systems....

I have recently been diagnosed with Celiac's Disease which is another autoimmune...

upintheair

•6 years ago

7 Replies

I need a medication break

Its been a year and a day since I got the news my enzymes are elevated. A few weeks later medication started. I’m being careful for what I wish for. I’m...

Its been a year and a day since I got the news my enzymes are elevated. A few w...

Hidden

•6 years ago

4 Replies

Thoughts?

Hi everyone, I've just got back from seeing my gastro and am a little uncertain, annoyed and confused. He's told me that my AMA levels were positive again but...

Hi everyone, I've just got back from seeing my gastro and am a little uncertain,...

JessieKate

•6 years ago

3 Replies

What is a hepatologist

Never heard of of a hepatologist? Is it a stomach Dr

wendymcbride

•6 years ago

10 Replies

Is it time?

Hello everyone. Hoping you are doing well. I have some concerns. I have a colourful health history to say the least. Hypothyroid, Addison’s disease,...

Hello everyone. Hoping you are doing well. I have some concerns. I have a colou...

Tuffymason

•6 years ago

10 Replies

Just checking in and wondering why no longer receiving emails?

I read but have never posted anything. Always was receiving emails, but past few weeks they have stopped. Not sure why.

I read but have never posted anything. Always was receiving emails, but past fe...

Jesse-Louise

•6 years ago

2 Replies

Ama m2 results

I have just received my ama printed from gp surgery. It reads 98.9 iu/ml. Does anyone know what this actually means. I can't get to see gp to ask for a couple...

I have just received my ama printed from gp surgery. It reads 98.9 iu/ml. Does ...

Rleo

•6 years ago

12 Replies

Low positive

I have slightly elevated alkaline phosphatase (150 and 126 most recently) and two low AMA M2 results (24.6 and 29). The doctor is not sure if I have PBC or...

I have slightly elevated alkaline phosphatase (150 and 126 most recently) and tw...

Dwaffle16

•6 years ago

4 Replies

Citalopram

Hi I don’t know if any of you have had this happen but I’ve been on citalopram 10mg which is a low dose, had bloods after 2 weeks ALP went from 280 to 380 Was...

Hi I don’t know if any of you have had this happen but I’ve been on citalopram ...

Rozm2004

•6 years ago

10 Replies

Travel insurance

Hi just looking for travel insurance not getting very far most say no I have PBC & AIH can anybody recommend a travel company that would insure me . Thank you...

Hi just looking for travel insurance not getting very far most say no I have PBC...

Janicemr

•6 years ago

10 Replies

Meds question

The long term prednisone is really getting to me. I was fine with it until the manufacture was changed. I am used to taking a 500 mg of urso and a now 10 mg...

The long term prednisone is really getting to me. I was fine with it until the m...

Hidden

•6 years ago

8 Replies

Worried

Had a liver biopsy 6 weeks ago to see if abnormal blood results are caused by aih or fatty liver ( have been diagnosed with pbc from other blood results ) was...

Had a liver biopsy 6 weeks ago to see if abnormal blood results are caused by ai...

Louisethew

•6 years ago

8 Replies

Urq pain

The reason i asked about progression of stages is because my urq has started to acke. Its a dull pain. Anyone having this with results being not so elevated?

The reason i asked about progression of stages is because my urq has started to ...

KevinHall10_

•6 years ago

10 Replies

PBC foundation

I wonder if someone can help answer questions about the PBC foundation. I live in the US. On December 30 I filled out all the information to join the PBC...

I wonder if someone can help answer questions about the PBC foundation. I live...

Dwaffle16

•6 years ago

3 Replies

Do I have PBC

I'm 69 y.o and was incidentally diagnosed with PBC 15 years ago following routine blood tests which showed 1:80 ama. I was prescribed urso 1500 mg daily. I...

I'm 69 y.o and was incidentally diagnosed with PBC 15 years ago following routin...

Hidden

•6 years ago

12 Replies

Can I take Milk thistle while on ocaliva

I have just recently been started on ocaliva due to poor response from URSO. I wondered if there were any contraindications against taking milk thistle while...

I have just recently been started on ocaliva due to poor response from URSO. I ...

Gilz1702

•6 years ago

18 Replies

Could this be PBC?

Hi folks . I’m 56 after having cirrhosis since 2009 after hep c for around 25 years and after treatment I have been noticing that my skin is hypersensitive...

Hi folks . I’m 56 after having cirrhosis since 2009 after hep c for around 25 y...

Drewi2

•6 years ago

2 Replies

Weird question but...

Does anyone have lumps under upper eyelids? I've had them for years. Sometimes cause no problem but at other they rub, irritate and cause red eyes. Thanks

Does anyone have lumps under upper eyelids? I've had them for years. Sometimes c...

Rleo

•6 years ago

1 Reply

Just diagnosed

I just joined this group and I am needing some guidance. I had a positive AMA result, had a biopsy that suggested PBC but is in very early stage. Dr....

I just joined this group and I am needing some guidance. I had a positive AMA r...

Ellyne

•6 years ago

10 Replies

AMAs in blood but no PBC

This is for all the bloggers who have AMAs in their blood but no PBC. I know that GriittyReads is one. I posted awhile back about my situation. I have AMAs in...

This is for all the bloggers who have AMAs in their blood but no PBC. I know tha...

SSMPCW123

•6 years ago

5 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2018

PBC Foundation

Stages

Gastro vs Hepatologist

What do these bloods mean

I'm so glad I found this Forum!

Blood results

Horrific itching - CIMETIDINE

NRH

Liver transplant

Jaundice

If you have PBC, you are at higher risk for Celiac Disease

I need a medication break

Thoughts?

What is a hepatologist

Is it time?

Just checking in and wondering why no longer receiving emails?

Ama m2 results

Low positive

Citalopram

Travel insurance

Meds question

Worried

Urq pain

PBC foundation

Do I have PBC

Can I take Milk thistle while on ocaliva

Could this be PBC?

Weird question but...

Just diagnosed

AMAs in blood but no PBC

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