Posts - PBC Foundation | HealthUnlocked

PBC Foundation

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All posts for December 2018

Diet soda

Can someone tell me again why we can’t have an occasional carbonated diet soda or and carbonated drinks? Had to give up fats, salts, sugar.....🙄😞

Can someone tell me again why we can’t have an occasional carbonated diet soda o...

Pamela4475

•6 years ago

42 Replies

No consultant

Hi I’m under Queens hospital in Romford, my last appointment for June 2018 was cancelled as the consultation had left. I’m still waiting for an other...

Hi I’m under Queens hospital in Romford, my last appointment for June 2018 was c...

Jonathan1985

•6 years ago

23 Replies

LACK OF APPETITE

Hi hope you all had a good xmas, i haven't written anything on her for a long time, my question is about 5 months ago i really lost my appetite, in the sense...

Hi hope you all had a good xmas, i haven't written anything on her for a long ti...

pbcdisease

•6 years ago

16 Replies

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Uncomfortable stomach

I am currently under investigation for PBC. My hepatologist is carrying out a few more tests as he doesn’t want to formally diagnose me until they come back....

I am currently under investigation for PBC. My hepatologist is carrying out a fe...

Karenlouise75

•6 years ago

13 Replies

HAPPY NEW YEAR TO ALL

We wish health in the New Year and prosperity in private and professional life. Let this year bring you much happiness, which will make...

We wish health in the New Year and prosperity in private and professional life. ...

SunnyXXOO

•6 years ago

1 Reply

Pbc

Hi everyone Hope you have had a good christmas. Has anyone suffered breathing difficulties and flu symtoms. Just happening quite often that all

Hi everyone Hope you have had a good christmas. Has anyone suffered breathing di...

janine541

•6 years ago

10 Replies

Urso and rapid weight gain

Hello there, I've been searching for answers on this for a while now, but don't seem to be getting straightforward answers! I was diagnosed with PBC in October...

Hello there, I've been searching for answers on this for a while now, but don't ...

Rachie34

•6 years ago

23 Replies

New to the group but not PBC.

Hi. I’m 57 and was diagnosed with elevated liver enzymes in 2013 while getting routine blood tests at a Planned Parenthood visit. My Dr did not know why. I was...

Hi. I’m 57 and was diagnosed with elevated liver enzymes in 2013 while getting r...

Chulachela

•6 years ago

12 Replies

URSO in Spain

Hi I’m hoping to rent long term in Spain I take URSO and have yearly appointments. Is there anybody on here living in Spain who takes URSO and if so how much...

Hi I’m hoping to rent long term in Spain I take URSO and have yearly appointment...

kingsnorth

•6 years ago

2 Replies

Headache

Hi guys do any of you suffer headache and confusion sometimes, its more foggy head if honest, but its annoying lol x

Hi guys do any of you suffer headache and confusion sometimes, its more foggy h...

Vespa27

•6 years ago

6 Replies

Rather breezy

Hi guys thank you for the help over the past few weeks. Its appreciated. I have a question...its actually a little embarrassing, but I just need to get it...

Hi guys thank you for the help over the past few weeks. Its appreciated. I have...

Vespa27

•6 years ago

9 Replies

Merry Christmas

A Blessed Merry Christmas And A Very Healthy New Year To Everyone 🎄☃️🎄

Arlie

•6 years ago

6 Replies

Staying Positive

Hi all, I haven’t visited for a while but felt I’d like to share some positivity. I was diagnosed in 2016, it the time I was having so much joint pain, other...

Hi all, I haven’t visited for a while but felt I’d like to share some positivity...

Jules-S

•6 years ago

5 Replies

Holiday Wishes

I want to wish all of you a happy & healthy holiday season. Merry Christmas to all 🎄😘

I want to wish all of you a happy & healthy holiday season. Merry Christmas to a...

gwillistexas

•6 years ago

33 Replies

PBC, vitamin d and nasal cell carcinoma

I have had PBC for many years and have just been diagnosed as having a rodent Ulcer (nasal cell carcinoma). I have been given an information leaflet which...

I have had PBC for many years and have just been diagnosed as having a rodent Ul...

Mary48

•6 years ago

5 Replies

Col sore worry

Hiya all I've got a cold sore for the first time in my life. Is this connected to my pbc? I feel that every ache pain etc is related. I'm confused

Hiya all I've got a cold sore for the first time in my life. Is this connected t...

BabyK

•6 years ago

5 Replies

Nausea and Ondansetron

Does anyone know or take ondansetron for nausea? Other name of drug is zofran.... I have a lot of nausea

Does anyone know or take ondansetron for nausea? Other name of drug is zofran......

Pamela4475

•6 years ago

8 Replies

New research on PBC and light therapy

I was recently at my GI appointment and was telling her that due to my low mood and irritability, I'd started back on my light therapy. I have a litebook,...

I was recently at my GI appointment and was telling her that due to my low mood ...

Lucky4

•6 years ago

15 Replies

Immune suppressants?

Can anyone tell me why immune suppressants and steroids do not help with PBC. As it’s our own immune system attacking you would think that suppressing it would...

Can anyone tell me why immune suppressants and steroids do not help with PBC. As...

Wocket

•6 years ago

27 Replies

Vitamin D and PBC

Some info I found on the role of vitamin D and PBC https://www.hindawi.com/journals/grp/2013/602321/

Some info I found on the role of vitamin D and PBC https://www.hindawi.com/journ...

tonia17

•6 years ago

27 Replies

Another autoantibody has appeared!

Hello. I've been the proud owner of a AMAs for at least 10 years, but I have normal liver function test so the GI people don't want to see me. I'm female, 49...

Hello. I've been the proud owner of a AMAs for at least 10 years, but I have n...

gallnaemare

•6 years ago

11 Replies

Holiday stress

Hi dear PBC friends. So it's a busy time of year with Christmas holidays. I'm involved with my church and the Xmas pageant (tomorrow Sunday). Last night...

Hi dear PBC friends. So it's a busy time of year with Christmas holidays. I'm...

EileenUSA

•6 years ago

19 Replies

Sore and stiff- especially knees

Hi all- happy holidays! I've begun to have very sore joints and stiff muscles as if I'm 100 years old! It comes and goes, but lately my knees are so painful...

Hi all- happy holidays! I've begun to have very sore joints and stiff muscles a...

BskHB

•6 years ago

17 Replies

Low Dose Aspirin

Hi PBC folks, I am having issues with thick blood and was referred to a hemotologist. He ran some genetic tests and said I was negative for different genes...

Hi PBC folks, I am having issues with thick blood and was referred to a hemotol...

Twojer

•6 years ago

21 Replies

Two Diagnosis

Hello, I'm new to the site. I was diagnosed with PBC about a year ago. I've recently changed primary care doctors and on my first visit, he was dismissing...

Hello, I'm new to the site. I was diagnosed with PBC about a year ago. I've rece...

roseygirl

•6 years ago

7 Replies

Pbc

Hi all Has anyone been transferred to a top consultant for them to try a new drug as ursalk is not working

Hi all Has anyone been transferred to a top consultant for them to try a new dru...

janine541

•6 years ago

4 Replies

Drs who don’t understand

I’ve made ER my second home. Pain confusion vomiting and all they say is see your primary dr my primary dr has no clue how to bite it in the butt. What should...

I’ve made ER my second home. Pain confusion vomiting and all they say is see you...

Teri8672

•6 years ago

20 Replies

Aching

Woke up this morning and every bone in my body is sore. Is this linked to my pbc?

Woke up this morning and every bone in my body is sore. Is this linked to my pbc...

BabyK

•6 years ago

9 Replies

Recommendations for Non Alcoholic and Artificial sweeteners free drinks

Hi all. Dont know if it's just me or part of these diseases (AIH & PBC) but I can't seem to tolerate artificial sweeteners. And with Christmas fast...

Hi all. Dont know if it's just me or part of these diseases (AIH & PBC) but I c...

Auds5

•6 years ago

11 Replies

About AMA and the conection with fatigue

hello friends! i saw in the past many articles in witch is said that the levels of AMA are not important after the PBC diagnostic and many Dr s do not perform...

hello friends! i saw in the past many articles in witch is said that the levels ...

Andrei

•6 years ago

4 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for December 2018

Diet soda

No consultant

LACK OF APPETITE

Uncomfortable stomach

HAPPY NEW YEAR TO ALL

Pbc

Urso and rapid weight gain

New to the group but not PBC.

URSO in Spain

Headache

Rather breezy

Merry Christmas

Staying Positive

Holiday Wishes

PBC, vitamin d and nasal cell carcinoma

Col sore worry

Nausea and Ondansetron

New research on PBC and light therapy

Immune suppressants?

Vitamin D and PBC

Another autoantibody has appeared!

Holiday stress

Sore and stiff- especially knees

Low Dose Aspirin

Two Diagnosis

Pbc

Drs who don’t understand

Aching

Recommendations for Non Alcoholic and Artificial sweeteners free drinks

About AMA and the conection with fatigue

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