Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,387 members • 7,990 posts

All posts for February 2016

My Experience so far with PBC

Hello Everyone, I just joined yesterday and I thank those that liked and responded to my post. I've read a few posts from some of you and the responses and...

Hello Everyone, I just joined yesterday and I thank those that liked and respond...

PLB21

•8 years ago

22 Replies

Scared & Confused

I am new to PBC, I have just recently been diagnosed so I do not know all the ins and outs yet. I did not know that PBC can cause forgetfulness. Is this...

I am new to PBC, I have just recently been diagnosed so I do not know all the in...

Cstar1079

•8 years ago

13 Replies

Finally seen Gastro

I went to gastro this week and was given a higher dose of urso. My ALP has been rising instead of lowering or leveling. She also gave me a higher dose of...

I went to gastro this week and was given a higher dose of urso. My ALP has been ...

Lisa15

•8 years ago

29 Replies

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New to the site

Hello Everyone, I"m new to this even though I was diagnosed with PBC through blood tests and a liver biopsy in October 2012. After the initial shock and...

Hello Everyone, I"m new to this even though I was diagnosed with PBC through bl...

PLB21

•8 years ago

6 Replies

Supplements

Hi All, does anyone take NAC when they have PBC? Ive heard that it is excellent for the liver but not sure aboutPBC. Thanks kandiepat

Hi All, does anyone take NAC when they have PBC? Ive heard that it is excellent...

kandiepat

•8 years ago

3 Replies

Do I have Pbc?

4 years ago I got a routine colonoscopy, 2 weeks later I became very ill for 4 months..jaundice , SEVERE cholestatis..high LFT's , hairloss and extreme...

4 years ago I got a routine colonoscopy, 2 weeks later I became very ill for 4 ...

NycGirl

•8 years ago

9 Replies

Bone Density Scan

Hi, Had my 6 monthly check up yesterday, my bloods are stable (they seem to go up and down but only slightly) which is good, I had a vitamin A blood test (my...

Hi, Had my 6 monthly check up yesterday, my bloods are stable (they seem to go ...

Jaxter

•8 years ago

19 Replies

All Bloodwork Came Back Normal

I just got an email from my doc - all my bloodwork came back in the normal ranges - all the liver enzymes, thyroid, Vitamin D, and even cholesterol! I've been...

I just got an email from my doc - all my bloodwork came back in the normal range...

chynablue

•8 years ago

15 Replies

Another thread about ESA, sorry

Hi Has anyone successfully claimed any benefits at all either PIP or ESA for having PBC? I've looked at a few threads of people that are in the process but...

Hi Has anyone successfully claimed any benefits at all either PIP or ESA for hav...

Foundry9

•8 years ago

7 Replies

Gallstones and pbc

Hi there just found out I have 2 gallstones on ultrasound last week . Not due to see consultant till August and wondering what they'll do as I'm asymptomatic.

Hi there just found out I have 2 gallstones on ultrasound last week . Not due to...

spoul

•8 years ago

4 Replies

Diet

Friends.. have your docs given any specific instructions as to your diet? Are there foods they recommend you avoid? Or are there foods you should include in...

Friends.. have your docs given any specific instructions as to your diet? Are th...

JennyCville

•8 years ago

9 Replies

Liver pain

Hi friends. I know I've seen a few prior posts on this...but as a new person to PBC, I am wondering if anyone can explain why I keep having what appears to be...

Hi friends. I know I've seen a few prior posts on this...but as a new person to ...

JennyCville

•8 years ago

8 Replies

Need input

Went to drs today. Found out my AMA was 62. Still not issued urso. Doubled my Neurontin for FM. Ordered oxygen tanks for COPD. I am no longer able to do my job...

Went to drs today. Found out my AMA was 62. Still not issued urso. Doubled my Ne...

Robin15931

•8 years ago

3 Replies

Coffee

What info do you have on coffee and does it have to be caffeinated

Ohio82

•8 years ago

8 Replies

Vitamin D

Hello just had my usual blood test and they have shown up a very low vitamin D I've been put on supplement .could this be due to PBC as never had before all my...

Hello just had my usual blood test and they have shown up a very low vitamin D I...

Anneeileen1

•8 years ago

7 Replies

Fibro myalgia and PBC

Hi all At the time I was diagnosed withh PBC over twenty yeaes ago, I also was diagnosied with FM although I never felt I had it..this diagnosis has gone...

Hi all At the time I was diagnosed withh PBC over twenty yeaes ago, I also wa...

bobbycat

•8 years ago

8 Replies

PBC

Hi, I've been diagnosed in 2014, stage 2 Pbc, AMA and ANA positive and fatty liver. Been on Urso since then and I have been going very well, but out of no...

Hi, I've been diagnosed in 2014, stage 2 Pbc, AMA and ANA positive and fatty liv...

Lekkerbek

•8 years ago

10 Replies

Liver ultrasound scan

Hi all, I've had my liver ultrasound scan today, my GP has still not prescribed me any medication until he's had notification from the liver specialist. I'm...

Hi all, I've had my liver ultrasound scan today, my GP has still not prescribed ...

Twinkle26

•8 years ago

11 Replies

PBC

Hi everyone I'm just asking a couple of questions if anyone can answer me I have had coughs and colds more times in the last few months and was wondering if...

Hi everyone I'm just asking a couple of questions if anyone can answer me I have...

Dese

•8 years ago

13 Replies

Article in The Scotsman Newspaper

I think many of us would like to read this article by Collette Thain so am sharing in the hope it is of interest to you....

I think many of us would like to read this article by Collette Thain so am shari...

butterflyEi

•8 years ago

4 Replies

Hubby just doesn't get it!

I have been diagnosed with PBC for 20 years now. I only found out 10 years ago but that was my own fault and another story. I met my husband 10 years ago and...

I have been diagnosed with PBC for 20 years now. I only found out 10 years ago b...

SuzCurran

•8 years ago

25 Replies

First Post and a Thank You

First off, I'd like to thank each of you for your posts. I have learned more from reading your stories, questions, and responses than all other sources...

First off, I'd like to thank each of you for your posts. I have learned more fr...

MK3117

•8 years ago

1 Reply

Flu shot?

Hi friends - just checking in to see if flu shots are safe for folks with PBC? I haven't gotten one yet because of all of my recent illnesses, but am better...

Hi friends - just checking in to see if flu shots are safe for folks with PBC? I...

JennyCville

•8 years ago

21 Replies

stageing

hi everyone hope you are all ok i wondered if anyone knows what stage 4 is in england and is there only 4 stages to pbc or 6 ? any help would be greatly...

hi everyone hope you are all ok i wondered if anyone knows what stage 4 is in en...

sophie666

•8 years ago

7 Replies

Liver clock

I found Living with Liver Disease on FaceBook so have been following them for a while. This morning there is an interesting article. It is something that I...

I found Living with Liver Disease on FaceBook so have been following them for a ...

butterflyEi

•8 years ago

1 Reply

Liver Biopsy Results today.....

Tonight i learned i have PBC and Autoimmune Hepatitis overlapping each other. Crazy, I know. I've read a lot about Ursodiol /Actigall drug. I have been on it...

Tonight i learned i have PBC and Autoimmune Hepatitis overlapping each other. Cr...

SmileSun69

•8 years ago

15 Replies

Hungry at last

I have started taking Urso three weeks ago..at present on 500mg a day but going up to 750 g next week..which I think is too much for my small weight of 49...

I have started taking Urso three weeks ago..at present on 500mg a day but going ...

bobbycat

•8 years ago

5 Replies

Link between elevated liver enzymes and gall bladder removal?

I stuck my head in the sand for a year just hoping this PBC thing would go away. It didn't. I've finally scheduled a liver biopsy for the middle of March....

I stuck my head in the sand for a year just hoping this PBC thing would go away....

bei15354

•8 years ago

3 Replies

possible chest infection

hi everyone i have had a virus type cold for the past week and was wondering if i should go to the docs its prob not an infection just a virus what do you...

hi everyone i have had a virus type cold for the past week and was wondering if ...

sophie666

•8 years ago

1 Reply

PBC

Hi everyone I was diagnosed with PBC in January this year and have valued every message and comment that you all have written on this forum. My husband has...

Hi everyone I was diagnosed with PBC in January this year and have valued every ...

Twill

•8 years ago

8 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for February 2016

My Experience so far with PBC

Scared & Confused

Finally seen Gastro

New to the site

Supplements

Do I have Pbc?

Bone Density Scan

All Bloodwork Came Back Normal

Another thread about ESA, sorry

Gallstones and pbc

Diet

Liver pain

Need input

Coffee

Vitamin D

Fibro myalgia and PBC

PBC

Liver ultrasound scan

PBC

Article in The Scotsman Newspaper

Hubby just doesn't get it!

First Post and a Thank You

Flu shot?

stageing

Liver clock

Liver Biopsy Results today.....

Hungry at last

Link between elevated liver enzymes and gall bladder removal?

possible chest infection

PBC

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