Posts - PBC Foundation | HealthUnlocked

PBC Foundation

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All posts for July 2018

Pbc and autoimmune hepatitis

Hi sorry I have not been on here for a long time but I want to my hospital appointment a few weeks ago and they think I have now got autoimmune hepatitis with...

Hi sorry I have not been on here for a long time but I want to my hospital appoi...

Cherry69

•6 years ago

31 Replies

Newly diagnosed

I’m 46 I have hashimotos and gluten intolerance already, now Antibodies (which I’ve asked for numerous times) come back I now have PBC I have had symptoms of...

I’m 46 I have hashimotos and gluten intolerance already, now Antibodies (which I...

Joanneconnor

•6 years ago

24 Replies

Anyone clued up on blood results?

Hi all I posted recently about how my GP thinks I probably have PBC based on blood test results. I'm seeing a Hepatologist on Wednesday so I'm sure all will...

Hi all I posted recently about how my GP thinks I probably have PBC based on blo...

Rachie34

•6 years ago

2 Replies

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Safe Pain Meds for Muscle Pain/PBc

Are there any liver safe pain meds for muscle pain from Fibromyalgia? I am allergic to sulfa/penacillin/soy

Are there any liver safe pain meds for muscle pain from Fibromyalgia? I am aller...

Sdone

•6 years ago

9 Replies

SKin/Hair care products with Alcohol

Hi, Are any beauty care products containing alcohol or strong ingrediants like in "Quench Dermalift by Kate Sommerville" not good for the Liver? For about 10...

Hi, Are any beauty care products containing alcohol or strong ingrediants like ...

Sdone

•6 years ago

28 Replies

Gilbert syndrome

Hi, does anyone have the Gilbert syndrome and what blood results do I look at? Can I have PBC and Gilbert syndrome?

Hi, does anyone have the Gilbert syndrome and what blood results do I look at? C...

Lekkerbek

•6 years ago

5 Replies

Living with Pbc

Hi everyone, my name is Zlle. I was diagnosed with pbc in 2016 and have been taking ursodiol since then. I am trying to live healthy but recently we moves to...

Hi everyone, my name is Zlle. I was diagnosed with pbc in 2016 and have been ta...

Zlle

•6 years ago

23 Replies

Grateful

So grateful, i had a fibroscan and it came back 0 to 1.

KevinHall10_

•6 years ago

13 Replies

Pbc and garlic

Has anyone been told to stay away from garlic?

Pamela4475

•6 years ago

12 Replies

positive AMA and ANA for 4 years normal Lifts what to do?

Hello I am new here was wondering if anyone has similar experience I am 37 years old female, have positive ANA and AMA since 2014, picked up by a random test,...

Hello I am new here was wondering if anyone has similar experience I am 37 years...

Tatianau

•6 years ago

5 Replies

PBC and red meats

Hello, I was wondering if anyone has any experience with red meats if not eating them helps condition?

Hello, I was wondering if anyone has any experience with red meats if not eating...

mamma261

•6 years ago

14 Replies

changing so quickly

well with my numbers being normal both on and off for 2yrs my last ultrasound said i have mildly coarse liver all other ones said normal liver does anyone know...

well with my numbers being normal both on and off for 2yrs my last ultrasound sa...

oreo2016

•6 years ago

5 Replies

Another vitamin d question

Morning all. I've looked through past posts and can't seem to find anything that relates. I took 'loading' dose of vitamin d last night and have woken up in...

Morning all. I've looked through past posts and can't seem to find anything that...

Rleo

•6 years ago

3 Replies

PBC and Itch

Hello! If you believe that your itch is caused by PBC or taking Urso, can you describe, what sort of itch is it? I'm experiencing itching and burning around my...

Hello! If you believe that your itch is caused by PBC or taking Urso, can you de...

iagra

•6 years ago

17 Replies

Blood Donation

Hello, does anyone know if you can donate blood if you have PBC and are taking Urso? It’s not on the list of conditions / medications listed on the NHS site....

Hello, does anyone know if you can donate blood if you have PBC and are taking U...

Suzielbeau

•6 years ago

12 Replies

Ocaliva, dosage, elevated cholesterol

Hi, diagnosed with pbc 3/17, started on urso 4/17, improvement flattened 9/17, started ocaliva 5mg 11/17. Saw immediate improvement but now my liver function...

Hi, diagnosed with pbc 3/17, started on urso 4/17, improvement flattened 9/17, s...

Ottley3

•6 years ago

12 Replies

Pbc/Aih

Hi everyone Hope everyone is well. Im awaiting a consultant appointment to explain a letter they sent stating i had : Pbc/Aih overlap syndrome : vascular...

Hi everyone Hope everyone is well. Im awaiting a consultant appointment to expla...

janine541

•6 years ago

3 Replies

Hello. I am KKate

Diagnosed with PBC, taking Ursodial, in 2017. Multiple other issues: on second aortic valve replacement, radical cystectomy for bladder cancer, pace maker,...

Diagnosed with PBC, taking Ursodial, in 2017. Multiple other issues: on second ...

KKate2018

•6 years ago

4 Replies

Not feeling to good

Hello , I wonder if any one feels like there's no energy left . One day I can do things like house garden or pop out to shops with my Daugther Then the next...

Hello , I wonder if any one feels like there's no energy left . One day I can do...

246810

•6 years ago

14 Replies

Best test results in years due to bizafibrate

Hi pbcer's just want to announce how thrilled i am that after a year on Bizafibrate my bilirubin has gradually gone done fro 600 to 19 WOW ! ALT is 61,...

Hi pbcer's just want to announce how thrilled i am that after a year on Bizafibr...

shaza1966

•6 years ago

23 Replies

Liver Biopsy

I have had PBC for 10 yrs. Would be interested in hearing others experience with having a liver biopsy. Had my first CAT scan guided liver biopsy on Monday...

I have had PBC for 10 yrs. Would be interested in hearing others experience wit...

mtrafter

•6 years ago

16 Replies

Pbc

My wife has pbc and we went with tesco travel insurance and it cost no more than a normal annual insurance. And we had tesco write an addendum saying pbc would...

My wife has pbc and we went with tesco travel insurance and it cost no more than...

elsbells

•6 years ago

5 Replies

Travel Insurance

I know this has been asked before but can anyone recommend a travel insurance company. Thank you Eileen

I know this has been asked before but can anyone recommend a travel insurance co...

IOW-gal

•6 years ago

12 Replies

I have had elevated levels of AMA twice. First i got tested in October, now in July

What does it mean? My ALT and ALP levels seem normal. The M2 test was positive (30 units in Oct last year ) and now 36 (in july this year). On holidays and...

What does it mean? My ALT and ALP levels seem normal. The M2 test was positive (...

james828

•6 years ago

3 Replies

Non -responder to ursodeoxycholic acid

Hi everyone So I saw my consultant on 18th June and he told me I’m not responding to urso !!! He said I fit the criteria for oclavia but would need to take...

Hi everyone So I saw my consultant on 18th June and he told me I’m not respondi...

Rozm2004

•6 years ago

5 Replies

White scaring

Does anyone have white scaring around your eyes caused by high colesterol? Mine is out of control and makes me so insecure when I step foot out of my home....

Does anyone have white scaring around your eyes caused by high colesterol? Mine ...

Teri8672

•6 years ago

1 Reply

Low dose naltrexone

Has anyone been given low dose naltrexone for PBC or any other autoimmune disease. I have been doing a wee bit of reading about it and it seams to be the...

Has anyone been given low dose naltrexone for PBC or any other autoimmune diseas...

flora

•6 years ago

13 Replies

Ibuprofen

Is it ok to take ibuprofen small amount short term? Hurt my back and it’s Sunday so can’t ask anyone

Is it ok to take ibuprofen small amount short term? Hurt my back and it’s Sunday...

Pamela4475

•6 years ago

16 Replies

I have pbc and aih

I am a mother 46 year old have acute aih and pbc. What is the life span for this diease? Also I need a support group in Los Angeles .

I am a mother 46 year old have acute aih and pbc. What is the life span for this...

Lucky1972

•6 years ago

6 Replies

Itching

Really struggling with itching. I’m sure it’s the heat. I’m getting the really deep itch and the prickly/insect crawling itch. Lots of people have talked about...

Really struggling with itching. I’m sure it’s the heat. I’m getting the really d...

Catherine3883

•6 years ago

6 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for July 2018

Pbc and autoimmune hepatitis

Newly diagnosed

Anyone clued up on blood results?

Safe Pain Meds for Muscle Pain/PBc

SKin/Hair care products with Alcohol

Gilbert syndrome

Living with Pbc

Grateful

Pbc and garlic

positive AMA and ANA for 4 years normal Lifts what to do?

PBC and red meats

changing so quickly

Another vitamin d question

PBC and Itch

Blood Donation

Ocaliva, dosage, elevated cholesterol

Pbc/Aih

Hello. I am KKate

Not feeling to good

Best test results in years due to bizafibrate

Liver Biopsy

Pbc

Travel Insurance

I have had elevated levels of AMA twice. First i got tested in October, now in July

Non -responder to ursodeoxycholic acid

White scaring

Low dose naltrexone

Ibuprofen

I have pbc and aih

Itching

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