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PBC Foundation

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All posts for March 2015

Liver pain?

Hi just wondering if anyone has suffered liver pain recently and if so what were you prescribed for it and did it help? I am from N.Ireland and currently...

Hi just wondering if anyone has suffered liver pain recently and if so what were...

mayday-Yeah

•10 years ago

5 Replies

Eating issues

Hi I've been officially diagnosed just a year. I have the usual run of issues itching, fluctuating bloods changes to skin, hair fatigue & terrible weak...

Hi I've been officially diagnosed just a year. I have the usual run of issues it...

teddybear7

•10 years ago

8 Replies

Encephalopathy with Liver issues. Looking for stories to share .......to help others and me!

I seek people who are prepared to share anecdotes of some of their worst moments of Encephalopathy. I know this will be difficult to achieve, (sharing extreme...

I seek people who are prepared to share anecdotes of some of their worst moments...

PCBnPBC

•10 years ago

7 Replies

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HEMANGIOMA........

Hi, diagnosed with PBC last September, scans, ct & mri since then & just been told I have a liver hemangioma, got to go back for another mri scan and blood...

Hi, diagnosed with PBC last September, scans, ct & mri since then & just been to...

Justineasprey

•10 years ago

2 Replies

The good news!

This is the first time i am writing here. My mother was diagnosed with PBC over a decade ago. She was not properly medicated and followed so in 2012 we were...

This is the first time i am writing here. My mother was diagnosed with PBC over ...

kiki1980

•10 years ago

3 Replies

Question ?

Hi I wonder if any one else has developed a low mood and lack of self confidence since being diagnosed? I look at myself and see many changes since diagnosis,...

Hi I wonder if any one else has developed a low mood and lack of self confidence...

Alley27

•10 years ago

10 Replies

Anyone ever heard of liver "shunts?"

I had an MRCP & several tiny spots were found on my liver. My Dr. thinks they are "shunts," which is like a cluster of blood, that is fairly common in people...

I had an MRCP & several tiny spots were found on my liver. My Dr. thinks they a...

WendyMarie

•10 years ago

5 Replies

So scared my husband got positive M2 antibodies

Hello all, I am just so scared because my husband was (+) for M2 (although negative for anti-mitochondrial). He has been getting abnormal liver labs for more...

Hello all, I am just so scared because my husband was (+) for M2 (although negat...

Carol76

•10 years ago

3 Replies

Clinical trials for pbc

Hi, as a non-responder to URSO I am to start on a clinical trial program. Any advice or an idea of what to expect would be very much appreciated. Thank you 😃

Hi, as a non-responder to URSO I am to start on a clinical trial program. Any ad...

Godfrey1

•10 years ago

4 Replies

Blood Transfusion

Has anyone else had a blood transfusion in the past, nothing sinister just a thought passing through my fuddled brain :o)

Has anyone else had a blood transfusion in the past, nothing sinister just a tho...

dollydaydreams

•10 years ago

16 Replies

Bloods results

I have pbc x just had ma blood results my alkaline and white cells are raised what does this mean ?

I have pbc x just had ma blood results my alkaline and white cells are raised w...

mags_larkhall

•10 years ago

2 Replies

Antibiotic use

I think I've got a tooth access I'm going to the dentist later, im sure he will prescribe antibiotic s . I have PBC ...am I allowed to take antibiotics?

I think I've got a tooth access I'm going to the dentist later, im sure he will ...

Lucylongstockings

•10 years ago

15 Replies

vitiligo

my skin has changed twofold since being diagnosed with pbc i have vitiligo on my under arms and my skin in general is looking sun kissed does anyone else...

my skin has changed twofold since being diagnosed with pbc i have vitiligo o...

chrissey7

•10 years ago

12 Replies

Pbc in question

Found positive AMA, Ana, elevated enzymes, and more GI tests to come. Feel all sorts of energy loss some days_, fatigue, headaches, and constantly cold,...

Found positive AMA, Ana, elevated enzymes, and more GI tests to come. Feel all s...

carigirl

•10 years ago

3 Replies

mr. Brendan Corr

brendancorr1

•10 years ago

1 Reply

Vitamin B complex

Hi does anyone know if there is anything in Vitamin B complex that we should not have, I thought not but then read somewhere a bit about Niacin sort of being a...

Hi does anyone know if there is anything in Vitamin B complex that we should not...

dollydaydreams

•10 years ago

17 Replies

Food to eat

OK, I know to cut down on salt but is there any other foods I should or shouldn't eat? My Dr. left me twisting in the wind so far what I've learned about PBC I...

OK, I know to cut down on salt but is there any other foods I should or shouldn'...

donsheray

•10 years ago

12 Replies

Urso and nausea

I've been taking urso for over 2yrs now and I still get an upset stomach i am so tired of feeling sick I can't stand it. Any advice?

I've been taking urso for over 2yrs now and I still get an upset stomach i am so...

donsheray

•10 years ago

7 Replies

Enlarged spleen

I was diagnosed with PBC about 2 years ago at my last ultrasound my spleen had doubled in size. My question is .... is there anyone else out there with the...

I was diagnosed with PBC about 2 years ago at my last ultrasound my spleen had d...

donsheray

•10 years ago

8 Replies

diagnosed at same time as polymyalgia, consultant didn't prescribe anything, am concerned. can you help?

Hi, I was diagnosed last September and it was found when they were investigating what turned out to be polymyalgia Rheumatica. I went to Liver specialist (...

Hi, I was diagnosed last September and it was found when they were investigating...

Wispa123

•10 years ago

4 Replies

Urgent help/advice

This morning at 5am I was woken with agonising pain under and around lower right rib, couldnt breathe properly; after 15 mi nutes there was a loud pop, the...

This morning at 5am I was woken with agonising pain under and around lower right...

Alley27

•10 years ago

7 Replies

Interesting facts!

Saw a specialist today in Sydney .....so thought I would share this with u all . He told me that pbc is prevalent in some areas in UK due to the water !...

Saw a specialist today in Sydney .....so thought I would share this with u all...

janeliz

•10 years ago

30 Replies

Friends from Ireland

Hi I'm Living in cork Ireland and was diagnosed with pbc in 2004 when I was 29. I'm now at stage 4 . Feeling relative healthy the usual symptoms of feeling...

Hi I'm Living in cork Ireland and was diagnosed with pbc in 2004 when I was 29. ...

lynda75

•10 years ago

14 Replies

Is this going to kill you?

I live in Miami, Florida. Progressive state wouldn't you think? So I went to my eye doctor for a regular exam. Told him I had PBC. So he asks what's that?...

I live in Miami, Florida. Progressive state wouldn't you think? So I went to m...

Dolly67

•10 years ago

20 Replies

Reducing hours at work?

Please can anyone offer any advice.im a classroom assistant and often cover classes if teachers are not available.the only pbc symptom I appear to have is pain...

Please can anyone offer any advice.im a classroom assistant and often cover clas...

cazz22

•10 years ago

6 Replies

Exactly What Is PBC ?

Can anyone tell me exactly what PBC? Also is it hereditory?

sapphire73

•10 years ago

22 Replies

Hormone link and PBC

I am very interested in research or lack thereof regarding PBC and Hormone levels. Since it effects mostly women that would be a very telling causal effect....

I am very interested in research or lack thereof regarding PBC and Hormone level...

loriejw

•10 years ago

11 Replies

GP's ignorance

A couple of months ago I posted that I had been diagnosed with PBC in 1999 via having elevated AMAs, but have since been in the care of my GP . During that...

A couple of months ago I posted that I had been diagnosed with PBC in 1999 via ...

rainbowsong42

•10 years ago

7 Replies

Itching

At times I itch like crazy, I know I have two blocked bile ducts again. PBC is a slow progressive disease so we know that has not returned. Most likely causes...

At times I itch like crazy, I know I have two blocked bile ducts again. PBC is a...

Brummi

•10 years ago

6 Replies

Pressure inside my nostril

Hi I have had PBC for 7 years .lately I have been experiencing what could be interpreted as pressure in my left nostril .i am seeing my Gastro specialist next...

Hi I have had PBC for 7 years .lately I have been experiencing what could be int...

boneytoys

•10 years ago

3 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2015

Liver pain?

Eating issues

Encephalopathy with Liver issues. Looking for stories to share .......to help others and me!

HEMANGIOMA........

The good news!

Question ?

Anyone ever heard of liver "shunts?"

So scared my husband got positive M2 antibodies

Clinical trials for pbc

Blood Transfusion

Bloods results

Antibiotic use

vitiligo

Pbc in question

mr. Brendan Corr

Vitamin B complex

Food to eat

Urso and nausea

Enlarged spleen

diagnosed at same time as polymyalgia, consultant didn't prescribe anything, am concerned. can you help?

Urgent help/advice

Interesting facts!

Friends from Ireland

Is this going to kill you?

Reducing hours at work?

Exactly What Is PBC ?

Hormone link and PBC

GP's ignorance

Itching

Pressure inside my nostril

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