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PBC Foundation

9,484 members•8,374 posts

All posts for July 2024

if you are interested....

The 2 articles I just shared with you come in a regular email to me from The Autoimmune Association. It would be worth looking into so you can be aware of...

The 2 articles I just shared with you come in a regular email to me from The Aut...

DonnaBoll

Administrator•4 months ago

3 Replies

..we do matter - the medicine world is listening

https://go.autoimmune.org/e/864732/-and-advance-outcomes-patients/q7sqyb/1753037742/h/PdstIt6MiRhPAWx4ctYojij4kCaLTTM_gdidCe0Mx2A

https://go.autoimmune.org/e/864732/-and-advance-outcomes-patients/q7sqyb/1753037...

DonnaBoll

Administrator•4 months ago

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...about drug shortages

https://go.autoimmune.org/e/864732/eaking-down-us-drug-shortages-/q7sqy7/1753037742/h/PdstIt6MiRhPAWx4ctYojij4kCaLTTM_gdidCe0Mx2A

https://go.autoimmune.org/e/864732/eaking-down-us-drug-shortages-/q7sqy7/1753037...

DonnaBoll

Administrator•4 months ago

1 Reply

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Wednesday's Word

fatigue - sound familiar - all too familiar for most of us There are 2 types of fatigue: 1. Central fatigue - this is the inability to even...

fatigue - sound familiar - all too familiar for most of us There are 2 type...

DonnaBoll

Administrator•4 months ago

4 Replies

Tuesday's Tips

Two of the common conditions associated with PBC are thyroid conditions and with those that cause anemia. This is because they both have shared genetic...

Two of the common conditions associated with PBC are thyroid conditions and wit...

DonnaBoll

Administrator•4 months ago

8 Replies

It's 'Monday Me!'

Today I just want you to be aware of the last time you really took any amount of time just for you. Going for a walk, reading a good book,...

Today I just want you to be aware of the last time you really took any amount of...

DonnaBoll

Administrator•4 months ago

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Good day!

I just hope you are having a good day today! The sun is shining here.... We can make a day just with our attitude.

I just hope you are having a good day today! The sun is shining here.... We can...

DonnaBoll

Administrator•4 months ago

2 Replies

Friday Fun Question

What is your favorite flavor of ice cream?

DonnaBoll

Administrator•4 months ago

11 Replies

Thursday's Thoughts

I've been with you now for 6 months. This is your group... please let me know if there is any other way you would think you could benefit from belonging...

I've been with you now for 6 months. This is your group... please let me know if...

DonnaBoll

Administrator•4 months ago

14 Replies

supply issues Urso

I live in Glasgow and I am having difficulty getting my prescription filled for Cholurso 250mg all local pharmacy’s saying supply issue anyone else...

I live in Glasgow and I am having difficulty getting my prescription filled for ...

Storm15

•4 months ago

5 Replies

Ask Your Questions

Prof David Jones is our guest for tomorrows #PBC Q&A joined by the #PBCTeam live from the obeticholic acid protest in Brussels! Click here for the privacy of...

Prof David Jones is our guest for tomorrows #PBC Q&A joined by the #PBCTeam live...

DonnaBoll

Administrator•4 months ago

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Wednesday's Word

"Batteries Running Down" This term is frequently used to describe the type of fatigue that is the most common symptom of PBC. Those who...

"Batteries Running Down" This term is frequently used to describe the type of f...

DonnaBoll

Administrator•4 months ago

6 Replies

Weight Gain and Urso

I was wondering... Did any of you gain weight after starting on Urso? I feel like since I started Urso, my weight has been creeping up and I feel "puffy" and...

I was wondering... Did any of you gain weight after starting on Urso? I feel li...

Toddyboo

•4 months ago

15 Replies

Tuesday 'Tip'

According to Dr. Jones, PBC is not genetic - but is familial. There is no 'PBC gene' that is passed to our children. Our immune system 'make up' ,however, can...

According to Dr. Jones, PBC is not genetic - but is familial. There is no 'PBC g...

DonnaBoll

Administrator•4 months ago

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One of the many 'perks' belonging to The PBC Foundation

We look forward to welcoming the #PBCCommunity to our Choose Me Tuesday Self-Care Session at 6pm tomorrow UK time. Click this link to login:...

We look forward to welcoming the #PBCCommunity to our Choose Me Tuesday Self-Car...

DonnaBoll

Administrator•4 months ago

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It's Monday 'Me'....

Please share with us what you've done to take care of yourself lately. I know for some of you that this concept of self care may be new - or...

Please share with us what you've done to take care of yourself lately. I know f...

DonnaBoll

Administrator•4 months ago

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Please watch...

For those of you who belong to The PBC Foundation, please go to their Facebook page. Yesterday Robert and Mo did an hour long webinar on the impact and facts...

For those of you who belong to The PBC Foundation, please go to their Facebook p...

DonnaBoll

Administrator•5 months ago

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Friday Fun Question

If you could only eat one thing for the rest of your life what would it be?

DonnaBoll

Administrator•5 months ago

8 Replies

first time on here

Hi! I am a 35 year old female. I was diagnosed officially with PBC at age 25. At this point in life I had a biopsy and found out I was already stage 2-3...

Hi! I am a 35 year old female. I was diagnosed officially with PBC at age 25. At...

PBC2014

•5 months ago

7 Replies

Upcoming PBC Patient Conference

For those who belong to The PBC Foundation, the PBC Patient Conference is coming up in September in Edinburgh.This is a wonderful chance to meet others with...

For those who belong to The PBC Foundation, the PBC Patient Conference is coming...

DonnaBoll

Administrator•5 months ago

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Totally understand

Not one of us has read anything about PBC that the 2 words fatigue and itch haven't been mentioned. I just want to share this with you. Just as often as we...

Not one of us has read anything about PBC that the 2 words fatigue and itch have...

DonnaBoll

Administrator•5 months ago

7 Replies

Thursday's Thoughts

In what way is your life more positive since your diagnosis? For me it surely has made me aware of my physical surroundings. I take the time to...

In what way is your life more positive since your diagnosis? For me it surely h...

DonnaBoll

Administrator•5 months ago

3 Replies

Send in your questions.....

PBC Foundation · A change to our usual PBC Q&A. Dr Andreas Kremer will be with us at 2pm UK time on Friday to answer your #PBC questions. Click here for...

PBC Foundation · A change to our usual PBC Q&A. Dr Andreas Kremer will be w...

DonnaBoll

Administrator•5 months ago

10 Replies

What Can I Control?

In my post ' a different mindset', I referred to the fact that you can control your attitude. I really believe our mental status contributes so much to our...

In my post ' a different mindset', I referred to the fact that you can control y...

DonnaBoll

Administrator•5 months ago

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Wednesday's Word

Rifampicin - This is used for moderate to severe itching. Usually given if cholestryamine has been ineffective in helping the itch. Dosage begins...

Rifampicin - This is used for moderate to severe itching. Usually given if chole...

DonnaBoll

Administrator•5 months ago

2 Replies

A different mindset...

I've been reading portions of Dr. Jone's book. One very good point that he makes is that if you have been diagnosed with PBC it can lend some credibility to...

I've been reading portions of Dr. Jone's book. One very good point that he makes...

DonnaBoll

Administrator•5 months ago

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Itch anyone?

Do you or anyone you know have #PBC and experience itch. This survey aims to better understand you and the itch to identify the most pressing unmet needs. You...

Do you or anyone you know have #PBC and experience itch. This survey aims to bet...

DonnaBoll

Administrator•5 months ago

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Monday 'Me'

What have you done lately to take care of yourself?

DonnaBoll

Administrator•5 months ago

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I am new to the group

Hello everyone. I was diagnosed with PBC 2 years ago. I am fortunate in that I have responded well to URSO and my latest blood test results are within...

Hello everyone. I was diagnosed with PBC 2 years ago. I am fortunate in that...

pixiejojo

•5 months ago

6 Replies

itching with pbc

I have been on urso now for good few years now and overall I’m ok but last three days my symptoms of itching have come back so bad I could cry ,I’m so bruised...

I have been on urso now for good few years now and overall I’m ok but last three...

Shezza123

•5 months ago

13 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for July 2024

if you are interested....

..we do matter - the medicine world is listening

...about drug shortages

Wednesday's Word

Tuesday's Tips

It's 'Monday Me!'

Good day!

Friday Fun Question

Thursday's Thoughts

supply issues Urso

Ask Your Questions

Wednesday's Word

Weight Gain and Urso

Tuesday 'Tip'

One of the many 'perks' belonging to The PBC Foundation

It's Monday 'Me'....

Please watch...

Friday Fun Question

first time on here

Upcoming PBC Patient Conference

Totally understand

Thursday's Thoughts

Send in your questions.....

What Can I Control?

Wednesday's Word

A different mindset...

Itch anyone?

Monday 'Me'

I am new to the group

itching with pbc

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