Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for June 2018

Sertaline

Has anyone tried sertaline for itch

Melwoods

•6 years ago

5 Replies

Sunshine

Is anyone else struggling with the sun? Every time I try to go outside - even if its only a few minutes I feel terrible. Normally I love this weather and...

Is anyone else struggling with the sun? Every time I try to go outside - even if...

Angel_b

•6 years ago

13 Replies

Totally Confused🤨

G’morning. I’m hoping Robert can help me understand my question. I’ll try to keep it short as I have to get ready for work. Diagnosed a year ago, Internist...

G’morning. I’m hoping Robert can help me understand my question. I’ll try to ke...

gwillistexas

•6 years ago

49 Replies

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Trimethoprim and pbc

Hi, I was put on a 5 day of Trimethoprim for a UTI, finished the course and now my itching is a lot worse. Dr said it was ok take and wouldn’t affect my liver....

Hi, I was put on a 5 day of Trimethoprim for a UTI, finished the course and now ...

Catherine3883

•6 years ago

4 Replies

Test Results

Just got my test results for Liver Panel and AST and ALT have significantly reduced and I am in the low end of the reference range. I am delirious with...

Just got my test results for Liver Panel and AST and ALT have significantly redu...

Ellyne

•6 years ago

13 Replies

Reversal of fortune in bloodwork but staying positive

Diagnosed in 3/2017 from a blood test. No symptoms just elevated enzymes. I started Urso and was a partial responder -biopsy confirmed stage 1pbc in...

Diagnosed in 3/2017 from a blood test. No symptoms just elevated enzymes. I star...

Ottley3

•6 years ago

10 Replies

Australia Melbourne PBC meetup

PBC Meet up 12.30pm Wednesday 22nd August Melbourne CBD. We are looking for a good cafe where we can get a good healthy variety of food. We had a 6 PBCers...

PBC Meet up 12.30pm Wednesday 22nd August Melbourne CBD. We are looking for a g...

DoreenD

•6 years ago

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Pbc/Aih

How to make family more aware. Not sure if anyone else has family that are unaware of how tired we get with this illness we have. I carry on running around...

How to make family more aware. Not sure if anyone else has family that are unawa...

janine541

•6 years ago

6 Replies

Novosphingobium Antigen possibly causing PBC

https://www.tandfonline.com/doi/full/10.1586/eci.09.23 Interesting site, new find, may be big game changer

https://www.tandfonline.com/doi/full/10.1586/eci.09.23 Interesting site, new fin...

SunnyXXOO

•6 years ago

3 Replies

PBC COULD BE CAUSED BY INFECTION NOVOSPHINGOBIUM ANTIGEN.

Found very interesting information regarding PBC. This info is new and could be a game changer. https://www.tandfonline.com/doi/full/10.1586/eci.09.23 Sunny...

Found very interesting information regarding PBC. This info is new and could be...

SunnyXXOO

•6 years ago

1 Reply

Are multiple nuclear dot ANA patterns ever seen in "normal" people?

Hey folks! I was hoping you all might be able to answer a few questions I haven't been able to answer on my own. For brief context, I've been experiencing a...

Hey folks! I was hoping you all might be able to answer a few questions I haven'...

heydanny

•6 years ago

4 Replies

Red Reishi Mushroom capsules

Has anyone tried these? They claim to reduce cholesterol and lower blood pressure amongst other things. I inow we should always check with our dostors before...

Has anyone tried these? They claim to reduce cholesterol and lower blood pressur...

jrobertson1

•6 years ago

1 Reply

Liver Biopsy

I finally have the results from my liver biopsy but first let me say this the biopsy was quick and painless. They gave me a sedative and numb the area and...

I finally have the results from my liver biopsy but first let me say this the bi...

keepin15

•6 years ago

5 Replies

Sudden Drastic Change in AST and ALT

As of the beginning of 2018 I had the ALP, AST and ALT somewhat stabilized and under control with Urso. The ALP (normal 33-130) was running in the 300’s, but...

As of the beginning of 2018 I had the ALP, AST and ALT somewhat stabilized and u...

GhostHunter

•6 years ago

17 Replies

Chicagoland Event

Meeting Reminder To all PBCers in the Chicago land area!! Please sign up for our summer PBC Program: Saturday, June 23, 2018 10:30 AM – 1:00 PM Marriott Suites...

Meeting Reminder To all PBCers in the Chicago land area!! Please sign up for our...

Lisa1150

•6 years ago

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Tumeric

As I was flicking through the Which magazine, I came across this snipet that might be good for some Tumeric users to be aware of - there is a particular...

As I was flicking through the Which magazine, I came across this snipet that mig...

badpiglet

•6 years ago

2 Replies

15 yrs with pbc

I was diagnosed when I turned thirty. Seen drs every 6 months allergic to urso allergic to many many medications. I’m stage at stage 3 as of now. Fell down in...

I was diagnosed when I turned thirty. Seen drs every 6 months allergic to urso a...

Teri8672

•6 years ago

10 Replies

Results back today

Hello , had ECG results back , all ok !! Also liver results came back , bile acids ok , doctor can give me tablets for upset tummy too. I'm so relived,...

Hello , had ECG results back , all ok !! Also liver results came back , bile aci...

246810

•6 years ago

10 Replies

Estriol Suppository

Hi, My wife has been complaining about some post menopause complications in lower abdomen (genitals, lower urinary ways etc.). She thinks this is due to...

Hi, My wife has been complaining about some post menopause complications in lowe...

Betonarme

•6 years ago

8 Replies

Disability

My doc says that all of her PBC patients had to go on disability. She has taken me out of work but it freaks me out. I'm only 43 and now have worries about my...

My doc says that all of her PBC patients had to go on disability. She has taken ...

Jessica1975

•6 years ago

8 Replies

LOW CARB EATING TO HELP UNWANTED PBC SYMPTOMS!

Today I've started a low carb way of eating, initially cutting out all beige foods, as TV doctor recommended, ie: not eating rice, bread, potatoes, cake,...

Today I've started a low carb way of eating, initially cutting out all beige foo...

Pin44

•6 years ago

18 Replies

Just had my 6 month check-up with Hepatologist

He was happy my AST & ALT are in normal range.My Alkaline Phosphate was 149.Defintely getting lower every time.My Vitmain D 25 was under the norm at 27.4.So I...

He was happy my AST & ALT are in normal range.My Alkaline Phosphate was 149.Defi...

PBCTracy

•6 years ago

3 Replies

PBC and pain meds for other issues at same time

I take 3 different narcotics for pain. one 4x day of which has acetomenaphin-Norco 10/325, (which im trying to get changed, have to take stomach meds due to...

I take 3 different narcotics for pain. one 4x day of which has acetomenaphin-Nor...

shubb

•6 years ago

9 Replies

Osteoporosis and PBC

Hi everybody...I just learned they are going to want to treat my osteoporosis due to postmenopausal and PBC. Is any one here getting treatment for osteoporosis...

Hi everybody...I just learned they are going to want to treat my osteoporosis du...

Pamela4475

•6 years ago

17 Replies

Finding the blessings and gratitude in the disease

Everyday upon awakening, i thank the Universe for another day on the planet. I strive to find the beauty of the world around me. This was not always the...

Everyday upon awakening, i thank the Universe for another day on the planet. I s...

mrspeffer

•6 years ago

3 Replies

Turmeric

Hi Diagnosed with PSC 2 years ago aged 68 after years of UC put on Urso but it gives me Back pain and AcidReflux stopped using and Blood liver test were high...

Hi Diagnosed with PSC 2 years ago aged 68 after years of UC put on Urso but it ...

Roccadave

•6 years ago

5 Replies

Newly diagnosed......

Hi My name is Michele. I recently was diagnosed with stage 1PBC. I have hashimoto disease for 20 yrs +. I am 42 yrs old I just started ursodiol 2x...

Hi My name is Michele. I recently was diagnosed with stage 1PBC. I have hashi...

Mimi61196

•6 years ago

14 Replies

PBC sweats

I live in California I’m 14 yrs diagnosed with PBC lately been having horrible sweats

I live in California I’m 14 yrs diagnosed with PBC lately been having horrible s...

Teri8672

•6 years ago

11 Replies

Brand vs generic & R-alpha lipoid acid

Hello all, So maybe 3 to 4 weeks ago, I had posted a question asking if anyone had used Dr Burt Berksons therapy for PBC. Dr Berkson has worked with Dr...

Hello all, So maybe 3 to 4 weeks ago, I had posted a question asking if anyone...

Caseymayr1102

•6 years ago

42 Replies

To Any Hyperhidrosis Suffers

Is there anyone out there who suffers with full body Hyperhidrosis (excessive sweating) who lives in North Suffolk or South Norfolk I live in Beccles Suffolk....

Is there anyone out there who suffers with full body Hyperhidrosis (excessive sw...

Helensmiff

•6 years ago

4 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2018

Sertaline

Sunshine

Totally Confused🤨

Trimethoprim and pbc

Test Results

Reversal of fortune in bloodwork but staying positive

Australia Melbourne PBC meetup

Pbc/Aih

Novosphingobium Antigen possibly causing PBC

PBC COULD BE CAUSED BY INFECTION NOVOSPHINGOBIUM ANTIGEN.

Are multiple nuclear dot ANA patterns ever seen in "normal" people?

Red Reishi Mushroom capsules

Liver Biopsy

Sudden Drastic Change in AST and ALT

Chicagoland Event

Tumeric

15 yrs with pbc

Results back today

Estriol Suppository

Disability

LOW CARB EATING TO HELP UNWANTED PBC SYMPTOMS!

Just had my 6 month check-up with Hepatologist

PBC and pain meds for other issues at same time

Osteoporosis and PBC

Finding the blessings and gratitude in the disease

Turmeric

Newly diagnosed......

PBC sweats

Brand vs generic & R-alpha lipoid acid

To Any Hyperhidrosis Suffers

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