As I am new to this and only being diagnosed a week ago with pbc. I have lots of questions to ask. Some of which I am writing down ready to ask my consultant when I next visit the hospital. I have yet to have scan in 2 weeks then a follow up appointment for the results in 6 weeks. In the meantime I am reading what my consultant has given me to read and also learning lots on this site from all of you. So has anybody heard of " Propolis" It is a natural resin found in the buds of trees which bees then collect and use to disinfect their hives and its apparently very good for the immune system of bees and humans ! . Then it is collected from the hives and produced as an alternative medicine to help in our immune system.. However I have been told this by a bee keeper.and read up on it... When I asked my GP he was reluctant and said he cannot comment as both propolis and milk thistle has not been medically proven nor backed up by the medical board. Also these products bought from health shops also contain other additives and are not therefore pure products. Does anybody else have any views on alternative medicines or therapies. I would not dare take anything unless it has been recommended from either an expert or somebody else who has pbc. Also what are the best foods to eat and what to avoid. I know to avoid sat fats and salt. Also I hardly drink alcohol anyway , special occasions only, but is this now out of the question ? Even though I have never been a fan of fruit and probably only ever eaten a handful of fruit in a year, I am now forcing myself to eat it. I have also noticed you all talking of bilibrium levels ???? that I dont know anything about but now know I must ask what my level is and what is dangerously high, high med etc. When you get pain what do you take ? Is paracetamol ok ? I see Ibruprofen is a no no .. comical really my last GP had me on that for almost 4 years.... I suppose I can join the gang on asking " Why me ? How did I get PBC ? " Also why is it more common in the UK than the rest of the world ?
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