You may have seen my other questions but briefly I had auto immune anemia all my life, had spleen removed in 2009 and now suffer fatigue, weakness, headaches, foggyness amongst other symptoms, it was put down to ME and recently fibrolyalgia. I saw someone at Guys hospital who took lots of bloods, I tested positive for AMA, Vit D deficiency and elevated bilirubin but other LFTs ok.
I just saw my GP, I had e-mailed him about this previously to pre-warn him of my questions but unsurprisingly he hadn't read it. He hadn't read the letter from Guys either. He wouldn't even contemplate the possibility of PBC saying lots of people test positive for AMA. I tried explaining to him to look at my history, my age, my symptoms and that it all fits and surely it's worth looking into. He said it's like hanging a coat on a peg that doesn't fit!
Am I mad and making this all up! He did eventually agree to refer me saying it will take a long time, whether he will or not time will tell.
I left feeling so stressed and upset. Maybe I have read too much into it online and wound myself up that this is why I feel the way I do and he is right?