painful muscles thighs

[daisyd]

I have had pains in my legs I think muscular could be joint or bones mainly in my left leg, previously Dvt rt leg during pregnancy, it has been putting me off walking even standing up straight is painful

Just wondered if anyone else has anything like this, I am going to discuss it with doctor tomorrow, but from previous experience thought it might help to get some answers off here too

Thanks

[lupus-support1 Administrator]

Glad you are seeing the doctor.

Hope all goes well!

With good wishes,

Ros

[MaryF Administrator]

Good idea to have an appointment with your GP. From my own personal experience, my legs and arms used to hurt a great deal with my mix of autoimmune diseases and I found treating my Thyroid, Vit D and B12 problems removed quite a bit of it, so maybe worth getting levels checked of things, perhaps the GP can do some tests? MaryF

[lenore77]

i too suffer with leg discomfort and weakness. Standing is uncomfortable and I can't stand for long periods. Been on warfarin since 2009 following dvt. Frustrating.

[snorkle272]

I too experience leg pain, even though I have never had a clot in my legs.

The APS specialist I saw here in Canada mumbled something in passing that the leg pain was probably due to muscle degeneration due to one of the many co-morbid illnesses related to people with APS. Then said specialist declined to take me on as a patient saying that I already knew more about my illness than I needed to! That was when I quit looking for help. And my GP refuses to educate himself. I think my GP is hoping he will be retired before my next medical crisis.

I had to fight for daughter for a good 25 years because of her being on the Autism spectrum and having a mental illness. So I can relate to giving up. I’m tired of fighting for proper medical care.

[KellyInTexas Administrator in reply to snorkle272]

you are officially the next James Bond just to peeve your GP off.

2022 reboot “Die Another Day”

( I mean… you are very adventurous! Code spy name: snorkel 272… )

[snorkle272 in reply to KellyInTexas]

My spy name is because I like to live “under ‘da sea”. Lol

[KellyInTexas Administrator in reply to snorkle272]

I remember you said that some time ago. ( NAUI certification here and PADI for my husband. Seizures stopped all that for me. But I always also really enjoy being unencumbered with just snorkelling. ( I feared going under just enough to get salt water in the tube- I’m goofy like that!)

[snorkle272 in reply to KellyInTexas]

I was never certified for diving, but 9 years ago I was snorkeling in the Great Barrier Reef in Australia. I was in heaven! I was so lucky to be able to do that. Days later I felt like a cannibal when dinning on fresh calamari.

My friends and I had a bet on meeting a shark while there. Because of my bizarre past experiences they assumed I would run into a shark. When I returned to Canada I collected $120 from my friends, because a SHARK ran into me! It was a nurse shark trying to escape a giant tortoise. It accidentally hit me in the side, and spun me around in the water when I was coming out of a coral bed. Lol. Too funny.

[kathyD64 in reply to snorkle272]

I am so sorry to hear how appallingly you are being treated and your poor daughter is suffering too ❤️ Life can be such an uphill struggle what is it with these medical professionals?? Stay strong stay educated that’s no doubt how you are keeping alive and safe! X.

[snorkle272]

disregard my post please. I’m having a pity party today. Thanks

[KellyInTexas Administrator in reply to snorkle272]

pity party- hugs for you! 🥰 you deserve a brief pity party- let it serve as a reboot-

[kathyD64 in reply to snorkle272]

we all need these don’t be hard on yourself my lovely ❤️

[KellyInTexas Administrator]

I can say I get really weird deep muscle pain up high - smack in the the middle of back of my upper thighs- but it’s soft tissue.

My rheumatologist thinks it Sjögren’s…

I think it might me small capillaries deep in the muscles having microclotting.

So I’m no help to you… but it’s really a strange / painful feeling. It repeats in the same place.

[daisyd]

I am still having a lot of pain spoke to the nurse at the surgery, she has given me a prescription for more codeine, I am even more sleepy now, I am still waiting to hear about my X-rays but I think if I don’t exercise they won’t do anything, my husband is really good and does everything in the house don’t know what I would do without him, I was wondering if I was just lazy, but I never used to be like this

Thanks Mary I am taking vit D 3 and I have at last found my blood results my b12 is good I do take iron and folic acid because I am low in both of those

My TSH level thyroid was 1.96 ( should be 0.27–4.2)

My serum T4 level was 11.9 ( normal 12.0-22.0) just under I haven’t been given any treatment for it

Sorry for moaning

[kathyD64 in reply to daisyd]

Don’t be sorry you are in pain and deserve to express that ❤️ Xx