Pregnancy and APS: Hi I am after some... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Pregnancy and APS

gemgemz profile image
10 Replies

Hi I am after some advise on anyone who has been pregnant with antiphospholipid syndrome.

Can I ask how u felt during the pregnancy and if u suffered with headaches/muzzy head days?? I am 17 weeks and being looked after well but wondered if I could get some advise from anyone who has been through it.

Many thanks in advance 😁

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gemgemz profile image
gemgemz
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10 Replies
rach1081985 profile image
rach1081985

I was fine up until 33 weeks on my youngest... Then clotted badly but all worked out well in end. Good luck and have a word with your specialists and its good u being looked after well.. My 1st pregnancy went well with my eldest aswell but didn't know had aps then at 17.. This prob don't help... Hope u feel better soon and enjoy your pregnancy,, z😊

gemgemz profile image
gemgemz in reply torach1081985

Thank u so much

rach1081985 profile image
rach1081985 in reply togemgemz

U welcome message me if u like

daisyd profile image
daisyd

Are you on clexane and asprin

gemgemz profile image
gemgemz in reply todaisyd

Yes both

MaryF profile image
MaryFAdministrator

Hi, I hope you have a good team looking after you? I was fine once I had the condition sorted and was on Fragmin and Aspirin, although with my first one only Fragmin. I felt good on Fragmin and if anything I was better than usual, however I did have the odd emergency, probably related to my other conditions. If you have very bad headaches, you must check in with your GP, and or your medical team, or any new symptom for that matter. I had three successful pregnancies.

Mary F

gemgemz profile image
gemgemz in reply toMaryF

I will thank u so much Mary

HollyHeski profile image
HollyHeskiAdministrator

Headaches/muzzy head days could relate to a lot of things, so really worth talking to the team that are looking after you, may not even relate to APS, your hormones, stress, tiredness etc could be the reason, but worth having a check up?

Even without APS (Mine were prior to diagnoses) when we are pregnant we worry about everything.

Get that reassurance from your team, then you will feel better.

gemgemz profile image
gemgemz in reply toHollyHeski

We definitely do. Thank u for all your advise. I really appreciate it

gemgemz profile image
gemgemz

Thank u so much for all your responses

I very much appreciate it!!!!!

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