Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for October 2018

Acenocoumarol - anyone tried this instead of warfarin?

Hi My anticoagulation team have really been struggling to stabilise my INR despite using a coaguchek self monitoring machine daily, 3 visits to the hospital a...

Hi My anticoagulation team have really been struggling to stabilise my INR despi...

•6 years ago

In need of a consultant who follows Prof Hughes protocol

Basically I was diagnosed sero negative in 2004 by Prof Hughes and treated with warfarin, later fragmin. Now I have nobody to support me. I don’t want to be on...

Basically I was diagnosed sero negative in 2004 by Prof Hughes and treated with ...

•6 years ago

Mirena coil

Hi girls , I haven’t been on here in a while . Health been pretty good since I have been put on Amitriptyline , most of my symptoms have gone 🎉🎉. I decided...

Hi girls , I haven’t been on here in a while . Health been pretty good since I h...

•6 years ago

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New member.

Hi. I'm new. I have a sharp pain that moves constantly. I'm in the process of getting my heart checked out but we're pretty sure that it's not the cause. This...

Hi. I'm new. I have a sharp pain that moves constantly. I'm in the process of ge...

•6 years ago

Inconclusive results for connective tissue disorder

Hello all, I was recently given an initial diagnosis of antiphospholipid syndrome after being hospitalized with a second pulmonary embolism since 2015. The...

Hello all, I was recently given an initial diagnosis of antiphospholipid syndrom...

•6 years ago

Pseudo Rheumatologist

I have not see a qualified Rheumatologist for 2 and half years. The consultant I am seeing now is an Acute specialist who in his words is helping out. This...

I have not see a qualified Rheumatologist for 2 and half years. The consultant I...

•6 years ago

Professor Graham Hughes' Blog August 2018

Here is the link to the blog on the GHIC website: https://ghic.world/self-help/blog/august-2018 Mary F

Here is the link to the blog on the GHIC website: https://ghic.world/self-help...

Administrator•6 years ago

INR 4.9!

Hello, I haven't posted in a long time. I am on Warfarin and I have never been able to get in range. Usually too low. Now I have another ailment with my lungs...

Hello, I haven't posted in a long time. I am on Warfarin and I have never been a...

•6 years ago

What’s the cons on Riveroxoban

Hi all, I’ve been on Riveroxoban now for about 2yrs ish. I’ve been ok on it but the last couple months I noticed my legs feeling heavy, my blood clots almost...

Hi all, I’ve been on Riveroxoban now for about 2yrs ish. I’ve been ok on it but ...

•6 years ago

The sticky blood Explained relaunch

Hello everyone, I haven’t been on here much I’m sorry to say. I tend to read Facebook posts as it is so easy but I do need to visit here too. I will make more...

Hello everyone, I haven’t been on here much I’m sorry to say. I tend to read Fac...

•6 years ago

Info for GP needed re Coagucheck strip irregularities.

Is there a paper that I can give to my GP re the Coagucheck strip irregularities as I had a 0.9 difference between Coagucheck and venous blood test?...

Is there a paper that I can give to my GP re the Coagucheck strip irregularities...

•6 years ago

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