In need of a consultant who follows P... - Hughes Syndrome -...

Hughes Syndrome - APS Support

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In need of a consultant who follows Prof Hughes protocol

Daisy1962
Daisy1962

Basically I was diagnosed sero negative in 2004 by Prof Hughes and treated with warfarin, later fragmin. Now I have nobody to support me. I don’t want to be on fragmin forever it’s been 3 years now plus I’m getting older too.

But I’m afraid to see anybody I’ve had 2 nhs Drs say they’ve not heard of seronegative and would never have treated me.

Can anybody help?

2 Replies
MaryF
MaryFAdministrator

Please give The London Lupus Unit a ring, they have quite a few doctors there, and will help you as much as they can. MaryF

Hidden
Hidden

"Seronegative" often means...

1) you got a weakly positive..

2) antibodies petered out after immunosuppressive

3) someone forgot to look at the entire lab history

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