In need of a consultant who follows Prof Hughes protocol
Basically I was diagnosed sero negative in 2004 by Prof Hughes and treated with warfarin, later fragmin. Now I have nobody to support me. I don’t want to be on fragmin forever it’s been 3 years now plus I’m getting older too.
But I’m afraid to see anybody I’ve had 2 nhs Drs say they’ve not heard of seronegative and would never have treated me.
Can anybody help?
"Seronegative" often means...
1) you got a weakly positive..
2) antibodies petered out after immunosuppressive
3) someone forgot to look at the entire lab history
My DS has seen the Prof and has weak positive test. Severe almost daily Migraine and extreme fatigue
another city, but do GPs care about inconvenience? Prof Hughes has not requested this and has only...
request/book a private appointment with Professor Hughes please?
Thanks in advance.
I have Hughes syndrome also called APS I have no balance I black out and shake can't find a Dr that...
Please give The London Lupus Unit a ring, they have quite a few doctors there, and will help you as much as they can. MaryF