MELODY STUDY - Patients Needed : MELODY study... - Vasculitis UK

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MELODY STUDY - Patients Needed

John_Mills profile image
John_MillsVolunteer
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MELODY study

The study aims to recruit people who have received solid organ transplants, people with rare autoimmune diseases receiving immunosuppression and people who have had a diagnosis of blood cancer.

#MELODYStudy Mass evaluation of lateral flow immunoassays for the detection of SARS-CoV-2 antibody responses in immunosuppressed people

Open NOW to all patients with solidorgan transplants: please register here melodystudy.org we need you!

The study, known as ‘MELODY’, will involve 36,000 immunocompromised patients across the UK, starting with those with kidney and other organ transplants, and then later including patients with cancer and #autoimmune diseases.

melodystudy.org/?fbclid=IwA...

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John_Mills profile image
John_Mills
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AndrewT profile image
AndrewT

I have 'Signed Up', to this Study- since I 'Tick' most of the Boxes.

Thank you John, Merry Christmas to you and Susan.

AndrewT

May7 profile image
May7

John I missed this post at the time, but nevertheless received a letter last month (February) from Imperial College saying,

"We have chosen your name at random from a list of people who may either have a rare autoimmune disease or type of blood cancer which is usually treated with immunosuppressive treatment held by the National Disease Registration Service".

I volunteered of course, and have received the kit and done the test.

(12th March).

I'm pleased to say that my test showed Positive results for the longer lasting IgG antibodies.

I was also pleased to be able to contribute to the questionnaire about life and covid fears, plus effects on my mental health.

I have started a new thread on this subject to see how our friends on here are doing.

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