I was diagnosed with CNS ten years ago. My initial symptoms were severe headaches, neck pain, seizure and possible hemorrhage. While I was diagnosed in a relatively short time frame (2 1/2 months) and treated, my headaches continued for several years. For the last five years, I have been symptom free until two months ago. It started with smaller headaches and neck pain then a seizure, numbness on the right side of my face and now four weeks of constant headaches and nausea. Though there have been extensive white matter changes on the MRI since the previous one in 2008, there are no new lesions. There are no construction of blood vessel on angiogram as is initial. I feel just as I did the first time only less intense pain though am finding it more stressful dealing with this as an outpatient with long wait times. Does anyone have any experience of relapse or flares to share? I would be most grateful to hear your story
Last edited by Kat13
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