Hi! I am taking 10 mg of Methotrexate and 4mg prednisone for unspecified Vasculitis. I also take Tribenzor, Lipitor, Panteprazole. Aspirin81, Actonel, various vitamins etc. I was taking folic acid until I discovered I have a homozygous C677T MTHFR mutation so now I have to take methylfolate instead. The problem is that my lips have started burning and my eyes are red and burning and blur when I try to read. The doctor said I must be allergic to something but doesn't know what.
Could it be a new form of Vasculitis or a drug interactions or the methylfolate, or a side effect of methotrexate? Has anyone experienced anything like this?
Hi, I had to look up your terminology on Google and found this page. You might find the info useful; stopthethyroidmadness.com/m...
I'm sorry I can't help you further, but I hope things improve for you. Best wishes.
Hi, raspberry_tea! Thank you so much for replying and giving me that wonderful link. I have read quite a bit about MTHFR, but some of it was quite confusing, That link was very comprehehsive and had so much practical and easy to understand information for the layman. I have one doctor who is wonderful. He is not an authority on Vasculitis or MTHFR but he is trying to help me sort through it all. There were some very good suggestions for testing to see what supplements might be beneficial.....and which might be harmful that I will share with him. Sometime I feel like we are Don Quitxote and Sancho Panza jousting at windmills. But, I dont know what else to do. The "specialist" just want to throw drugs at me and ,so far, they aren't working that well. ( I'm in Fort Worth, Texas...... That explains a lot
Best wishes to you too.
It sucks that you're having to educate your doctors. I hope you get some answers and improve soon. We are so lucky to have the NHS here, I can't really complain about the treatment I've had - it's been mostly positive. I just hate having this condition. Take care of yourself.
Does anyone at your clinics over there have any idea about why some people get Vasculitis and others don't .....other than it's just sitting in our genes waiting for something to set it off? If I knew what started it, maybe I could figure how to get rid of it. Wouldn't that be great????
Best wishes
I hate having it too!!!
Hi again, I was told when I asked that there was no known real cause vasculitis. There has been links made with a bacterial infection (Streptococcus, I think but not sure or what strain- I'm sure others on this forum may know) and other triggers have been mentioned such as pregnancy and certain medicines. I have read that some people related stress and anxiety as contributing to the cause of their illness too. Personally, I'm as in the dark as you but I have modified my diet and that has improved my overall well being. I have recently embarked on a gluten free diet as well in the hope that it helps me further (as I have hormonal problems and psoriasis too). I'm only in my second week but I'm already feeling less sluggish. I'm focused on improving the quality of my life as I'm fairly certain if there was as diy cure we'd have found out by now. Still, I live in hope. Best wishes