Diagnosis

[Tony-LakeDistrict]

Diagnosis was within 2 hours of being hospitalised, thank you Dr Gibson at Preston

[hamble99b Volunteer]

It's good to hear that some doctors are on the ball!

[luggsey]

Must be a record of sorts?

Skin vasculitus is easier to diagnose of course.

[Tony-LakeDistrict in reply to luggsey]

mine was kidney & lung, so I was really lucky.

Tony

[Hidden]

Sounds dreadful and terrifying. You must have been in so much pain (e.g. agony).

Which type of vasculitis were you diagnosed (if it is known)? How are you getting on with the treatments? Thank you for sharing & take care

[Tony-LakeDistrict in reply to Hidden]

Hi ferntree

I have M P A.

As for pain , very little, I spent most of the first year `in-between worlds` most of the time.

The memory of that time, to a great degree is fading

the treatments are working, though still ANCA pos`.

All things considered, I`m doing well, but could do without the fatigue.

I`m so lucky in comparison to so many.

Be lucky yourself

Tony

[Hidden in reply to Tony-LakeDistrict]

"As for pain , very little, I spent most of the first year `in-between worlds` most of the time.

The memory of that time, to a great degree is fading

the treatments are working, though still ANCA pos`.

All things considered, I`m doing well, but could do without the fatigue.

I`m so lucky in comparison to so many.

Be lucky yourself"

Tony

Thank you so much for your kind words, Tony. "in-between worlds" - what an apt phrase to describe what you had go through. I'm sorry you have MPA. Whilst your treatments are working, I could easily imagine how restrictive this condition might be. I no longer seem to have much stamina these days either. Hope you'll continue to recover smoothly. Thank you for your reply once again and take care.