I keep being told by my consultants that my Churg Strauss has been in remission for a while now yet every time I mention that I am lethargic, tired, lack concentration, flu-like symptoms and no strength I am looked at with sympathy and what looks like a blank wall? Am I mad or are the doctors just unable to explain why? It really is getting on my .......... now! After 10 years of this response I should be able to manage their responses but having newly been diagnosed with CSS Cardiomyopathy and feel the doctors missed the risks of cardiac issues, I could blow my top!
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