Hi

Iv posted several times on her with various symptoms. As yet i dont have a vasculitis diagnosis.

I have lots of pain and at the moment the pain is worse on my upper back and shoulders made worse when laying down. I have noticed very small blister like spots below my shoulders..this area feels like there is fluid present.

If anyone has had this can you please let me know....im going to see my gp next week and i want to get the right tests done...the pain is extreme at times and worrying.

Thanks

Christine

2 Replies

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  • Yorkshire girl John had these blister like spots in the early days of diagnosis and he has WG (GPA) If you phone the helpline or write an email to John he will be able to advise you on what blood tests to ask for and questions to ask. john.mills@vasculitis.org.uk vasculitis.org.uk/helpline

    Susan

  • Thanks..... i will contact John..i think we have had contact before .

    Thanks

    Christine

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