I've recently had a flare of Churg Strauss syndrome. And the docs are helping me get it under control with medication. The major thing I'm struggling with is trying to sleep on large doses of predisolone - I think I'm pretty sensitive to it anyway as I get pretty shaky and highs and lows. I was infused with 500 a day for three days in hospital, discharged at 40 and a week later I'm on 30 - and I have noticed a little improvement in these side effects. All night I alternative between one or two hours awake or asleep and I do try and sleep a little in the afternoon if I can. My partner and I are in different time zones as quite often I fall asleep if we try and watch a film together. I've decided the best approach is go with my body and nor fight it and I have tried sleeping pills but they don't really work - and it's another pill. I have also tried alternative therapy reflexology, aromatherapy oils etc and I've tried to ban myself from my iPad at night. I know it will probably get better the dose is dropped further - just wondered if anything worked for anyone else?
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