Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,408 posts

All posts for July 2013

I was diagnosed with Scleroderma last year, do other people feel exhausted some days, as I feel as though I have no energy at all some days

jeano

•11 years ago

18 Replies

Really really fed up of this shrinking feeling

Every morning I wake up feeling like death. My hands and feet are painfully tight and I feel so weak and beaten up like I have been in the boxing wring all...

Every morning I wake up feeling like death. My hands and feet are painfully tigh...

AMDP

•11 years ago

15 Replies

employment and support allowance

I am in the process of being switched to the ESA and have to attend an assessment. Has any else been to one? What should i expect?

I am in the process of being switched to the ESA and have to attend an assessmen...

mind1e

•11 years ago

2 Replies

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iloprost at the royal free

Just wondered if anyone else was going for ilorpost at the royal free in nivember and staying at the premier inn

Just wondered if anyone else was going for ilorpost at the royal free in nivembe...

lollipop

•11 years ago

5 Replies

Magnesium Oil

Maybe some of you have discovered this already, but it was new to me. Even in the summer, my feet are still freezing with the air conditioning everywhere. I...

Maybe some of you have discovered this already, but it was new to me. Even in ...

faith89

•11 years ago

3 Replies

Notify DVLA of my disability

Hi guys just getting to drive again and I'm wondering do I have to notify DVLA of my systemic scleroderma , I do claim DLA higher component and been told I'm...

Hi guys just getting to drive again and I'm wondering do I have to notify DVLA o...

Dka48

•11 years ago

3 Replies

Scleroderma and the Outcome.

Why does it take so long to get an answer?My left arm is agony all the time. STILL, I'm undergoing blood tests......

Why does it take so long to get an answer?My left arm is agony all the time. STI...

meggi56

•11 years ago

11 Replies

Night sweats

Is anyone else getting really bad night sweats ... everything is getting soaked and have to change bedding etc once or twice a . Night ..

Is anyone else getting really bad night sweats ... everything is getting soaked ...

fairygoddess83

•11 years ago

9 Replies

Does anyone know if acupuncture can help with Raynauds?

Has anyone any experience of trying acupuncture to see if helps their Raynauds?

SheepJane

•11 years ago

4 Replies

I'm not sure if it exists but anyway...

I am lookin for a device on my tablet that I can download for free. It is to helpme with writing/typing on the tablet. I am looking for an app where I can talk...

I am lookin for a device on my tablet that I can download for free. It is to hel...

littlemissshy

•11 years ago

4 Replies

Hi guys I'm back and after advice.....

Hi all I hope you are well, about 6 weeks ago I told you that I had been told that they no longer thought I had raynauds but peripheral arterial disease...

Hi all I hope you are well, about 6 weeks ago I told you that I had been told th...

jogoody

•11 years ago

1 Reply

ginkgo biloba

I have raynauds and scleroderma I have started taking ginkgo biloba as my rheumatologist has told me to....I was wondering if anyone has had hot sweats with...

I have raynauds and scleroderma I have started taking ginkgo biloba as my rheum...

sandycharlie

•11 years ago

1 Reply

Is anybody else having a problem getting their rheumatology appointment through from The Royal Free?

In 2012 I telephoned to say I had not received an appointment all year and was firstly told I had been discharged. When I said I had the results of my heart...

In 2012 I telephoned to say I had not received an appointment all year and was ...

Hidden

•11 years ago

4 Replies

fractures in spine

I have had XR s recently which showed lumbar and thoracic wedge fractures in my spine. i have been complaining for about three years of severe pain . the...

I have had XR s recently which showed lumbar and thoracic wedge fractures in my ...

lynbw

•11 years ago

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Short of breath with no Lung or heart involvment

Is there anyone on here that suffers from breathlessness, but has no lung or heart involvement? It happens to me about 2 hours after an intense workout and...

Is there anyone on here that suffers from breathlessness, but has no lung or hea...

glitzygem

•11 years ago

1 Reply

News on the Upgrade to HealthUnlocked

As many of you have noticed there’s been an interruption to service today with a new-look site that replaced the existing one. It was a big moment for...

As many of you have noticed there’s been an interruption to service today with a...

matt

•11 years ago

Be the first to reply

Lost information

Hi all, I have a quick question as what else I can with this situation. This is going to be long but bare with me. I asked tesco to collect my repeat...

Hi all, I have a quick question as what else I can with this situation. This...

Cammeronuk2

•11 years ago

3 Replies

Vestibular disease

Has anyone been diagnosed with vestibular disease as a result of scleroderma? I just have and would like to know if anyone else has and if any medication is...

Has anyone been diagnosed with vestibular disease as a result of scleroderma? I...

Hidden

•11 years ago

4 Replies

Lost prescription

Hi all sorry for spelling errors not easy to type on a mobile. Can anyone offer advice for the following issue? My doctors signed my repeat prescription on the...

Hi all sorry for spelling errors not easy to type on a mobile. Can anyone offer ...

Cammeronuk2

•11 years ago

Be the first to reply

I have a question regarding Nifedapine and EM

I have primary Raynuad's and was put on Nifedapine early last year... not a problem I hear you say. I had the early side effects in the 1st 4 weeks of taking...

I have primary Raynuad's and was put on Nifedapine early last year... not a prob...

ceegee

•11 years ago

7 Replies

I thought you guys would find this amusing and very true

Dear shop keeper, Look out side - it is warm outside YIPEEEEE :) everyone is in their summer cloths - t shirts, shorts, dresses etc. Unfortunately your...

Dear shop keeper, Look out side - it is warm outside YIPEEEEE :) everyone ...

Rp321

•11 years ago

3 Replies

My rheumy wants me to get RECLAST in August for osteoporosis, I have read that folks with scleroderma have a lot of side effects,anyone??

lifeforce

•11 years ago

10 Replies

Looking for help

I'm infected with scleroderma with severe Raynauds since 18 years and unfortunately lost all the fingertips of my hands and some of the toes I am a resident of...

I'm infected with scleroderma with severe Raynauds since 18 years and unfortunat...

Faad

•11 years ago

3 Replies

keeping warm.....

is anyone else finding it necessary to use an electric blanket, hot water bottle, sleeping bag and warmest pj's at this time of year, i live in wales, but...

is anyone else finding it necessary to use an electric blanket, hot water bottle...

littlemissshy

•11 years ago

14 Replies

Hi I have just been prescribed plaquenil 200mg hydroxychloroquine sulphate. Having read side effects and poss eye probs I am apprehensive?

newbe

•11 years ago

16 Replies

Any one had surgery on the stomach sphincter to help reduce reflux ?

I have CREST & Barretts - today I saw my Rheumy who said I should see gastroenterology consultant as they might be able to help my chronic GERD. I take...

I have CREST & Barretts - today I saw my Rheumy who said I should see gastroente...

AliW

•11 years ago

2 Replies

Adalata LA

Hi all, is anyone else on this ?. My doctor put me on these along with Amitriptyline for my headaches. I have only just started to take these this week and...

Hi all, is anyone else on this ?. My doctor put me on these along with Amitripty...

Cammeronuk2

•11 years ago

3 Replies

Paul Klee and shrinking disease

Why is Paul Klee's death from scleroderma called the shrinking disease?

AMDP

•11 years ago

2 Replies

Food sensitivities & Systemic Sclerosis

Weight control is a problem for lots of us with Raynauds, osteoarthritis & Autoimmune conditions. I have all of these & my poor old of knees would really...

Weight control is a problem for lots of us with Raynauds, osteoarthritis & Autoi...

Madge51

•11 years ago

5 Replies

is peripheral neuropathy have significance to underlyimg problem

Hidden

•11 years ago

3 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for July 2013

I was diagnosed with Scleroderma last year, do other people feel exhausted some days, as I feel as though I have no energy at all some days

Really really fed up of this shrinking feeling

employment and support allowance

iloprost at the royal free

Magnesium Oil

Notify DVLA of my disability

Scleroderma and the Outcome.

Night sweats

Does anyone know if acupuncture can help with Raynauds?

I'm not sure if it exists but anyway...

Hi guys I'm back and after advice.....

ginkgo biloba

Is anybody else having a problem getting their rheumatology appointment through from The Royal Free?

fractures in spine

Short of breath with no Lung or heart involvment

News on the Upgrade to HealthUnlocked

Lost information

Vestibular disease

Lost prescription

I have a question regarding Nifedapine and EM

I thought you guys would find this amusing and very true

My rheumy wants me to get RECLAST in August for osteoporosis, I have read that folks with scleroderma have a lot of side effects,anyone??

Looking for help

keeping warm.....

Hi I have just been prescribed plaquenil 200mg hydroxychloroquine sulphate. Having read side effects and poss eye probs I am apprehensive?

Any one had surgery on the stomach sphincter to help reduce reflux ?

Adalata LA

Paul Klee and shrinking disease

Food sensitivities & Systemic Sclerosis

is peripheral neuropathy have significance to underlyimg problem

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