Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,410 posts

All posts for November 2022

Hi everyone

Hi Everyone I'm new to the group. just wanted some advice and tips please. thank you

Hi Everyone I'm new to the group. just wanted some advice and tips please. than...

•1 year ago

Gloves!

Can anyone recommend gloves that really do keep our hands warm. I have spent a fortune over the years and still suffer so badly with cold hands

Can anyone recommend gloves that really do keep our hands warm. I have spent a f...

•1 year ago

A cold

Can't seem to shift my cold,which I've had for weeks.I'm on a lot of medication including methotrexate... It's not a horrid cold. Just feel exhausted and fed...

Can't seem to shift my cold,which I've had for weeks.I'm on a lot of medication...

•1 year ago

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Red nailbeds

Hi everybody,Sorry for my English, but I am no native speaker. Since 1 year, I notice that my fingers and nails are changing. My fingers are puffy in the...

Hi everybody,Sorry for my English, but I am no native speaker. Since 1 year, I n...

•1 year ago

Priority Services Register for power outages

My sister had an email from her electricity network provider (different to her electricity provider) asking if she needed to be on their priority...

My sister had an email from her electricity network provider (different to her e...

•1 year ago

Recently diagnosed with systemic scleroderma

hi I’m new to do anything like this, but have recently been diagnosed with having systemic scleroderma. This was after going to see dermatologist for the...

hi I’m new to do anything like this, but have recently been diagnosed with havin...

•1 year ago

Has anyone had flolan infusion for raynauds being referred as no other medication worked

being referred as no other medication or iloprst infusion worked. Norther Ireland based not sure if it's day patient is it like iloprst 8hr drip over how many...

being referred as no other medication or iloprst infusion worked. Norther Irelan...

•1 year ago

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how am I going to get through this winter my raynaulds is getting realy bad

my raynaulds is getting realy bad but I can’t afford to keep my heating on I just need to deal with it I’m getting bad raynaulds attacks even when I come out a...

my raynaulds is getting realy bad but I can’t afford to keep my heating on I jus...

•1 year ago

Energy bills rise and no heating

Hi everyone, I have Raynaud’s and my partner is worried about me that he was able to even get heated blanket. Our energy supplier is sending it to its...

Hi everyone, I have Raynaud’s and my partner is worried about me that he was a...

•1 year ago

Early signs of skin involvement?

Hi all, recently diagnosed in April 2022 with diffuse systemic sclerosis. Raynauds since 2020, Telangiectasias and scl70 +ve. No organ involvement at baseline....

Hi all, recently diagnosed in April 2022 with diffuse systemic sclerosis. Raynau...

•1 year ago

Palpitations

Does anyone get heart palpitations with raynaurds when they are cold?

Does anyone get heart palpitations with raynaurds when they are cold?

•1 year ago

Systemic sclerosis and mycofit

I was on pulse therapy with cyclophosphamide infusion but the cycle of cyclophosphamide has been already finished so I have been prescribed mycofit by my...

I was on pulse therapy with cyclophosphamide infusion but the cycle of cyclophos...

•1 year ago

Channel 5 TV programme

Has anyone managed to find the TV programme on Raynaud's , mentioned in the latest issue of SRUK news?It's part of a series entitled Women's Health; Breaking...

Has anyone managed to find the TV programme on Raynaud's , mentioned in the late...

•1 year ago

Does your raynaurd's cause pain?

Just that really. Mine does, but there are two people l know whose raynaurds is painless. Curious as to why this might be.

Just that really. Mine does, but there are two people l know whose raynaurds is ...

•1 year ago

We need priority under Programme Yarrow - for lengthy winter blackouts

I have just emailed this 'letter' to SRUK - as a first step to raising the issue of Scleroderma, Raynaud's (and probably other autoimmune condition sufferers)...

I have just emailed this 'letter' to SRUK - as a first step to raising the issue...

•1 year ago

Lung function test?

I (25F) was diagnosed with SS ten years ago and had a pulmonary function test yesterday. I probably had a lung function test previously, but certainly not like...

I (25F) was diagnosed with SS ten years ago and had a pulmonary function test ye...

thepictrofdoryingrey

•1 year ago

SRUK Webinar

Just to say I attended one of these last Friday: Dr Elizabeth Renzoni on lung involvement in SSc – it was very good indeed; she answered questions that no one...

Just to say I attended one of these last Friday: Dr Elizabeth Renzoni on lung in...

•1 year ago

eye problems with Scleroderma

I was diagnosed with diffuse cutaneous scleroderma in 2018. Currently no treatment but I suffer with dry eyes which have become worse over the last few weeks...

I was diagnosed with diffuse cutaneous scleroderma in 2018. Currently no treatme...

•1 year ago