Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,823 members • 5,405 posts

All posts for August 2014

Living with raynauds em and meopause

Hi my name is Britt over the years I have attended the royal free twice a year for illoprost infusions am planning to move back to Scotland soon is there...

Hi my name is Britt over the years I have attended the royal free twice a year ...

•10 years ago

Colloidal silver

Any one tried this that has got scleraderma

Any one tried this that has got scleraderma

•10 years ago

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Recently diagnosed with scleroderma

Hi im not sure how I feel right now !!! I was diagnosed with p.b.c in January , and diagnosed yesterday with scleroderma (strong positive blood result) I see...

Hi im not sure how I feel right now !!! I was diagnosed with p.b.c in January ,...

•10 years ago

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Raynauds and Nifedine

Hi, I'm just wanting info on ppl who hv stopped taking Nifedine what was your outcome. I hv been taking it for 13 yrs with no probs, it's helped keep raynauds...

Hi, I'm just wanting info on ppl who hv stopped taking Nifedine what was your ou...

•10 years ago

Menopause accompanied by raynauds and scleroderma

For months I have been plagued with symptoms of the menpause accompanied by sudden severe attacks of raynauds and complications surrounding my scleroderma....

For months I have been plagued with symptoms of the menpause accompanied by sud...

•10 years ago

Mycophenolate - how do you know it's working?

I started it a fortnight ago and my hands are swollen itchy and achy again...is it expected to relieve those symptoms? I realise it takes a while to kick in :)

I started it a fortnight ago and my hands are swollen itchy and achy again...is ...

•10 years ago

Calcinosis

Hi, I know I have written on this blog about calcinosis in the past. However I have just been to see Mr. Goddard at the Royal Free about the really bad...

Hi, I know I have written on this blog about calcinosis in the past. However I h...

•10 years ago

Anti social aspects of scleroderma

I realise that compared with the problems that so many of you have to deal with this really is insignificant but lately i am finding some of the aspects of gut...

I realise that compared with the problems that so many of you have to deal with ...

•10 years ago

Getting depressed

Hi I am a male who have Systemic Scleroderma and things were looking up, being taken of Methotrexate, but just lately I am having really bad mood swings keep...

Hi I am a male who have Systemic Scleroderma and things were looking up, being t...

•10 years ago

Shadow on my lungs

Recently I have had 2 CT scans, one with contrast, and they have found a 'shadow' on my lungs. I am now waiting for an appointment with a Lung doctor, the 'C'...

Recently I have had 2 CT scans, one with contrast, and they have found a 'shadow...

•10 years ago

Pulmonary Hypertension

I've just had all the tests and been diagnosed with Pulmonary Hypertension. Fortunately, I have my Rheumatologist to thank for it has been picked up very...

I've just had all the tests and been diagnosed with Pulmonary Hypertension. F...

•10 years ago

Work, side effects & fatigue

Hey everyone - happy Friday :) I just wanted to share that I have the best employers in the world - I've kept them informed and called a meeting with them...

Hey everyone - happy Friday :) I just wanted to share that I have the best emp...

•10 years ago

What is raynauds?

So back I'm Dec 2013 I was DX with fibromyalgia along with raynauds it was a cold winter day my hands were freezing purple and numb... and that's how the Dr....

So back I'm Dec 2013 I was DX with fibromyalgia along with raynauds it was a col...

•10 years ago

Does this sound like Raynaud's?

When I'm out in cold temperatures my fingers go cold and numb, they go from purple and change to red and kind of tingle when they change to red, I know that me...

When I'm out in cold temperatures my fingers go cold and numb, they go from purp...

•10 years ago