Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,409 posts

All posts for October 2020

Skin darkening query

Hello, I have CREST syndrome, and recently some of the skin around my groin and at the top of my thighs has darkened, slightly. I look like I have a mild...

Hello, I have CREST syndrome, and recently some of the skin around my groin and ...

•3 years ago

Some good info here for those hoping to understand more about the condition...

https://www.selfmanagescleroderma.com/lessons/how-does-scleroderma-affect-the-body.html

https://www.selfmanagescleroderma.com/lessons/how-does-scleroderma-affect-the-bo...

•3 years ago

Does anyone recognize these symptoms? Any tips?

Having bloating, heartburn, pain in joints, weird small veins appearing on rib cage and on one leg, strange pin sized bruises looking like a rash of some type...

Having bloating, heartburn, pain in joints, weird small veins appearing on rib c...

•4 years ago

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Tight wrists anyone?

Does anyone find their wrists hurt and are really sooo tight? Can endure the tight legs and arms but wrists really sore. Any suggestions please? Thank-you

Does anyone find their wrists hurt and are really sooo tight? Can endure the tig...

•4 years ago

Some interesting news

https://sclerodermanews.com/2020/10/15/stem-cell-transplant-quality-of-life-scleroderma-patients-study/?utm_source=Scleroderma&utm_campaign=2d6b76b118-RSS_MONDA

https://sclerodermanews.com/2020/10/15/stem-cell-transplant-quality-of-life-scle...

•4 years ago

Missed appointments

Has anyone not been called in for a check up or other appointment because of Coronavirus?

Has anyone not been called in for a check up or other appointment because of Cor...

•4 years ago

First iloprost infusion

Hi I’m due to have my first treatment on the 28th Oct at Chapel Allerton Hospital in Leeds. My consultant has requested I have one 6 hr treatment a month...

Hi I’m due to have my first treatment on the 28th Oct at Chapel Allerton Hospit...

•4 years ago

UV light treatment

UV Light treatment for hands. Hello everyone. Has anyone had experience of the above treatment please? Keep warm .. M

UV Light treatment for hands. Hello everyone. Has anyone had experience of the a...

•4 years ago

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Sparse capillaries

Would it be unusual to have sparse nailbed capillaries in primary raynauds? My rheumatologist said he thought it likely i had primary raynauds triggered from...

Would it be unusual to have sparse nailbed capillaries in primary raynauds? My r...

•4 years ago

Intro

I am new here, i am interested in sharing information about scleroderma and ways to cope with it, i was diagnosed almost 3 years ago but have been trying to...

I am new here, i am interested in sharing information about scleroderma and ways...

•4 years ago

Crying 😢

Hi there , I just came out of hospital and had many tests and 3 biopsy’s . I have Diffuse systemic sclerosis , mainly in my hands and legs. However , it’s now...

Hi there , I just came out of hospital and had many tests and 3 biopsy’s . I hav...

•4 years ago

PICC line

How many times can you have a PICC line inserted? I’ve had 3 in the past 18 months, last time in June and the Interventional Radiologist had difficulty...

How many times can you have a PICC line inserted? I’ve had 3 in the past 18 mont...

•4 years ago